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Lichen Sclerosis & Betnovate anyone?


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13 replies to this topic

#1 brazen

Posted 14 October 2012 - 11:20 AM

I've been prescribed betnovate ointment to deal with LS and apparently it's no longer made and only the cream is available. from the googling i've done the cream is not suitable to treat.

i've been going through the public gyno clinic but wasn't going to go back as i was p*ssed off having to wait over an hour for an apmt where no one knows why they're seeing me or what they're supposed to do and have to run off to check with the head dr (who i haven't seen at all) so i have a 2 min apmt that takes about 15 more mins waiting....

anyway i can't get to my next apmt anyway but now that this betnovate prob has happened i'm trying to decide whether to do the clinic one more time or go to my GP armed with info on the new alternative.

any experiences anyone?

PS: does it ever get better or is it just ongoing management? the ointment does make things less painful but i certainly don't feel like "normal" sad.gif

#2 purplekitty

Posted 14 October 2012 - 11:24 PM

Betnovate 0.05 and 0.1% ointment still seems to be available online.

#3 morgansacre

Posted 15 October 2012 - 05:13 PM

Hi Brazen,

I suffer from LS too sad.gif it's the pits...

I have been using Advantan ointment with great success so far. I used it for the last 4-5 years. Unfortunately you can only get one prescription each time, so a monthly visit to the Drs. But worth it.

Lynn

#4 brazen

Posted 19 October 2012 - 06:35 PM

thanks Lynn. yep, absolutely the pits sad.gif

i will mention that to my GP, thanks for that original.gif

thanks purplekitty, i'll try a google original.gif

of course i didn't get a call back from the gyno clinic *sigh*

#5 avonlea

Posted 26 November 2012 - 07:08 PM

I have LS too.  I Use advantan and sigmacourt. Diagnosed 18 mths ago after suffering for around 8 years.

Morgans acre -My dermatologist called up and got me an authority script which got me 4 or 5 tubes at once at I think a discount rate.  Perhaps you can ask for that.

Brazen - I went to doctor after doctor trying to work out what was going on. So many times diagnosed with thrush or given other anti fungal creams or antibiotics.

It isn't something many doctors seem to know much about.

I've been told I will be need steroid ointments to treat it forever to keep it at bay.  I do have the occasional flare up from stress or hormonal.

Just had a miscarriage at 10 weeks and flared after the d & c. Didn't need that.

Feel free to pm me .

#6 Chelara

Posted 26 November 2012 - 07:11 PM

My dh just bought betnovate ointment a few weeks ago- definitely the ointment not the cream.

#7 whydoibother

Posted 06 December 2012 - 07:04 PM

I used to use dermovate cream strongest one you can get in Australia.  
Now I just put up with it as I can't be bothered as it is too hard to find a doctor who knows about it and it is only really bad when I am in the low oestrogen part of the cycle.

#8 brazen

Posted 08 December 2012 - 11:49 AM

thanks all original.gif

#9 brazen

Posted 17 February 2013 - 09:16 AM

finally got my dr to prescribe the advantan (well, actually she selected) and it seems to be making things worse not better. did anyone else go through this first before improvement?

#10 avonlea

Posted 21 February 2013 - 08:27 AM

It can sting and be uncomfortable while it's actually getting rid of the LS.
Keep going with it and you should see improvement in a week or two.
All the best.

#11 brazen

Posted 12 March 2013 - 01:11 AM

thanks avonlea. still not improving really sad.gif


#12 FluffyOscar

Posted 12 March 2013 - 06:03 AM

I had LS about 15 years ago, it was awful as a newlywed, I sympathise OP. I saw a gyno in Melbourne who is a specialist in vulva disorders and he prescribed Diprosone OV ointment, twice daily and tapering off as the LS stabilised.

After a couple of years I decided to go off the pill, 8 months laters LS was in remission. I do think there is a link between LS and hormones, but the condition used to be so rare there was precious little research.

Good luck.

#13 brazen

Posted 12 March 2013 - 06:36 AM

thanks.

i will keep that ointment in mind

#14 avonlea

Posted 12 March 2013 - 08:24 AM

Hi Brazen.  I actually used Diprosone ointment when first diagnosed for around 6 weeks when first diagnosed.  I remember now that was the one that used to sting but was told to bear with it as it would improve.
It did and then I started on the Advantan which isn't as strong.
I think the Diprosone is the strongest.





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