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Cyclic vomiting


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#1 Looking for answer

Posted 24 December 2012 - 02:57 PM

Just wondering if there's any others out there that have had a similar experience as this...My 2.5 yr old wakes up vomiting once every 30-40 days. There's no signs or symptoms to let us know its going to happen. He will just wake up one day and start vomiting, nothing but bile. He will vomit every 10-15 min for about 5 hrs. He will then sleep for a couple hours and wakes completely normal, eating, running,playing and talking non stop. Has been happening on average every month now for just over a year. It's starts and finishes the same way every time and no-one else in the family has ever been sick around the same time. We've been to a specialist and had tests for food allergies, X-rays and scans on his tummy but they have no idea what might be causing it. Would just be interested to know if anyone else has had a similar experience and if they found out what was causing it???

#2 Turtles Mum

Posted 24 December 2012 - 03:03 PM

My 12yr old daughter has this - can be completely happy and normal and the next minute pale and vomitting with no signs or symptoms. Our GP prescribed Zofran which has been so far working.

It is incredibly frustrating, and so draining on the kids sad.gif we have vomit bags on hand at ALL times car, house, school bag, etc etc

Good luck - I feel your pain! sad.gif



#3 Looking for answer

Posted 24 December 2012 - 03:06 PM

QUOTE (Turtles Mum  @ 24/12/2012, 03:03 PM) <{POST_SNAPBACK}>
My 12yr old daughter has this - can be completely happy and normal and the next minute pale and vomitting with no signs or symptoms. Our GP prescribed Zofran which has been so far working.

It is incredibly frustrating, and so draining on the kids sad.gif we have vomit bags on hand at ALL times car, house, school bag, etc etc

Good luck - I feel your pain! sad.gif

Oh that sucks for you and her! Does it happen randomly? My son only does it once a month type thing and for about 5hrs that day. Because it happens first thing when he wakes in the morning we haven't been caught out, too many times. Just do a quick cancellation of the days plans.
What does the zofran do?




#4 mellymoos

Posted 24 December 2012 - 03:09 PM

maybe parasites in the gut? laying dormant then getting active for a period. can you get a blood/feces test for parasites?
ETA: i met a lady whose son gets severe stomach cramps once a month or so with vomiting which lasts a few hours to a day, there's some sort of parasite been found which she believes is the cause, and she can't find anything which kills the parasite, but is looking into medical and alternative ways to deal with it.
OR it could be something completely different?!?

Edited by mellymoos, 24 December 2012 - 03:13 PM.


#5 lizzzard

Posted 24 December 2012 - 03:10 PM

I wonder if this might be a type of migraine...

#6 Turtles Mum

Posted 24 December 2012 - 03:16 PM

QUOTE
I wonder if this might be a type of migraine...


That was what we originally thought, but was later diagnosed with cyclic vomitting syndrome

QUOTE
maybe parasites in the gut? laying dormant then getting active for a period. can you get a blood/feces test for parasites?


We have had every test under the sun, no parasites etc


QUOTE
Oh that sucks for you and her! Does it happen randomly? My son only does it once a month type thing and for about 5hrs that day. Because it happens first thing when he wakes in the morning we haven't been caught out, too many times. Just do a quick cancellation of the days plans.
What does the zofran do?


As she is getting older it is less frequent, but still enough to be annoying for her. She was on avg about 2-3 times a month, but now it is approx 1 per month. Hers could be any time of the day or night without warning

Zofran is a wafer that dissolves under her tongue which is used for nausea - the minute she is looking pasty and we know whats coming we give her one.

Hope that helps original.gif

#7 Looking for answer

Posted 24 December 2012 - 03:20 PM

QUOTE (mellymoos @ 24/12/2012, 03:09 PM) <{POST_SNAPBACK}>
maybe parasites in the gut? laying dormant then getting active for a period. can you get a blood/feces test for parasites?
ETA: i met a lady whose son gets severe stomach cramps once a month or so with vomiting which lasts a few hours to a day, there's some sort of parasite been found which she believes is the cause, and she can't find anything which kills the parasite, but is looking into medical and alternative ways to deal with it.
OR it could be something completely different?!?


I will ask our specialist next visit if she can test for parasites. We've had a huge number of blood tests for almost everything they can think of so could have already been done. Thanks for that tho, will def. be asking!

#8 Looking for answer

Posted 24 December 2012 - 03:22 PM

QUOTE (lizzzard @ 24/12/2012, 03:10 PM) <{POST_SNAPBACK}>
I wonder if this might be a type of migraine...



I've convinced myself its cyclic vomiting syndrome, which according to google is linked (but not proven) to migraines when older.


#9 twinmumplus1

Posted 24 December 2012 - 03:32 PM

My son has just been diagnosed with CVS and abdominal migranes.  Give me a yell if you want any more info - its been quite a ride.

#10 TenOfSwords

Posted 24 December 2012 - 03:35 PM

I used to get it as a child, but I also had horrible stomach pain too and it was diagnosed as an abdominal migrane.

Hope you get some answers OP. I know my mother tried for years to find out what was wrong with me, she even started thinking I was making it up!

#11 ~*Twilight~Zone*~

Posted 24 December 2012 - 07:51 PM

My DD has had CVS since she was about 8, she is now 17.

Took years and years to get any answers and even then that was only because of my research.

Horrible thing to have.

#12 ~ky~

Posted 25 December 2012 - 01:33 AM

QUOTE (lizzzard @ 24/12/2012, 03:10 PM) <{POST_SNAPBACK}>
I wonder if this might be a type of migraine...



QUOTE (Turtles Mum  @ 24/12/2012, 03:16 PM) <{POST_SNAPBACK}>
That was what we originally thought, but was later diagnosed with cyclic vomitting syndrome



I thought CVS was often a type of migraine?


Quoted from eMedicineHealth ...

QUOTE
Migraine-associated cyclic vomiting syndrome (periodic syndrome): This syndrome is characterized by recurrent periods of intense vomiting separated by symptom-free intervals. Many people with cyclic vomiting have regular or cyclic patterns of illness. Symptoms usually come on quickly at night or in the early morning and last 6-48 hours. Associated symptoms include abdominal pain (80%), nausea (72%), retching (76%), anorexia (74%), paleness (87%), lethargy (91%), photophobia (32%), phonophobia (28%), and headache (40%).

â—¦Headache often does not appear until the child is older. Migraine-associated cyclic vomiting syndrome usually begins when the person is a toddler and disappears in adolescence or early adulthood. (It rarely begins in adulthood.) This syndrome affects more females than males.

Edited by ~ky~, 25 December 2012 - 01:34 AM.


#13 cameo

Posted 25 December 2012 - 06:44 AM

DS has cyclic vomitting syndrome too diagnosed by the hospital and paed.  He has had it for several years, we used to think he got tired and would vomit as that's what DH did but his episodes have gotten more severe.

At first they used to last half a day but the last (unmedicated one) lasted 3 days at Christmas.  He spent the day being sick and we kept on thinking he would stop as normal but he didn't  Still feel massive guilt at that, my poor boy....

He now has Zofran and when he had an episode last time we stopped the vomitting after a few hours with the Zofran.

CVS and migraines are connected and CVS can turn into migraines at a later stage, that's what we were told.



#14 Waratah

Posted 25 December 2012 - 06:52 AM

I have spent the first 6 months of this year with my DD who was then 12 in hospital due to cyclic vomiting.  My DD has always been a kid that vomits ever since she was a little one.  Which now with the diagnosis of CVS and Adominal Migraine she finally got after six months of suffering with hospital stays for up to a month at a time almost makes me think she has had it since she was very little.  My DD was also diganosed with SMA Syndrome as she very thin.  My DD would vomit for weeks at a time.   She is now taking Periactin once a day to stop the adominal migraine and touch wood we have only had to visit the hospital once since June and that ended up being a stomach virus.

After all the reading I have done one thing that I read was watch the cycle of vomiting.  See if it comes at the same time each month.  

I feel for you it is horrible watching your kids just vomit and vomit.

#15 Looking for answer

Posted 25 December 2012 - 01:31 PM

QUOTE (Waratah @ 25/12/2012, 06:52 AM) <{POST_SNAPBACK}>
I have spent the first 6 months of this year with my DD who was then 12 in hospital due to cyclic vomiting.  My DD has always been a kid that vomits ever since she was a little one.  Which now with the diagnosis of CVS and Adominal Migraine she finally got after six months of suffering with hospital stays for up to a month at a time almost makes me think she has had it since she was very little.  My DD was also diganosed with SMA Syndrome as she very thin.  My DD would vomit for weeks at a time.   She is now taking Periactin once a day to stop the adominal migraine and touch wood we have only had to visit the hospital once since June and that ended up being a stomach virus.

After all the reading I have done one thing that I read was watch the cycle of vomiting.  See if it comes at the same time each month.  

I feel for you it is horrible watching your kids just vomit and vomit.


Oh that sounds horrible, I'm grateful we haven't had to go to the hospital yet! We have been keeping track of when it happens and it is on average once a month but then he goes and does an 80 day stint and then jumps back to 30days for another 6 myths.  Hopefully as he gets older he might be able to tell us more and let us know if he can feel it coming on.



#16 Looking for answer

Posted 25 December 2012 - 01:33 PM

QUOTE (cameo @ 25/12/2012, 06:44 AM) <{POST_SNAPBACK}>
DS has cyclic vomitting syndrome too diagnosed by the hospital and paed.  He has had it for several years, we used to think he got tired and would vomit as that's what DH did but his episodes have gotten more severe.

At first they used to last half a day but the last (unmedicated one) lasted 3 days at Christmas.  He spent the day being sick and we kept on thinking he would stop as normal but he didn't  Still feel massive guilt at that, my poor boy....

He now has Zofran and when he had an episode last time we stopped the vomitting after a few hours with the Zofran.

CVS and migraines are connected and CVS can turn into migraines at a later stage, that's what we were told.


Cn I ask how long it took you to get a diagnoses? I'm really convinced this is what my son has. I hate the thought of putting him trough more blood tests and scans etc, if they can't really do anything for him. Bt at the same time I'd like a diagnoses so others don't think I'm just making it up.

#17 Looking for answer

Posted 25 December 2012 - 01:37 PM

QUOTE (twinmumplus1 @ 24/12/2012, 03:32 PM) <{POST_SNAPBACK}>
My son has just been diagnosed with CVS and abdominal migranes.  Give me a yell if you want any more info - its been quite a ride.



Can I ask what your son would do? Was he pretty on the spot when he vomited? He long did it take for them to give you a diagnoses? And was all the tests etc worth it? I'm pretty convinced this is what my son has, and I hate the thought of them giving a million more tests if they can't really do anything to stop the episodes. D you think it's worth it? Does it actually get worse as they get older??
Sorry for all the questions, as much as it sucks for you and your son, it's nice to know we aren't the only family going through it.

#18 Waratah

Posted 26 December 2012 - 06:10 AM

From what I know there is not a test to determine CVS same with abdominal migraine. I think it is more a watch and see thing determining if it is coming regularly.

#19 mpjp

Posted 26 December 2012 - 06:29 AM

My dd does the same. I'd suggest you see a gastro paed. Our did a endoscope and was able to easily see that she had a weakness of the valves between stomach and oesophagus and also the stomach and intestines. She has a hiatus hernia, and slow gastric motility.

Basically all this means that she has bile in her stomach which is highly irritating, causing her to vomit. It also means she has reflux, which also causes her vomiting. She is on gut motility drugs, and losec. We elevate her bed, put her on a low fat diet and....no more vomiting, much less tummy pain.

It's really worth ruling things out by having a look inside rather than relying on gp,s mucking around w blood tests. Our gp thought he could handle it and delayed our simple diagnosis for a year.

#20 cameo

Posted 26 December 2012 - 08:07 AM

Looking for answers, we went to a paed (one I didn't really like but anyway) and he said that DS had CVS.  We went to the paed because of his vomitting and also to check about his height (he is on the small side)

He told us to get tests - blood tests, stool tests etc but I never went back to him.  DS's CVS if he has it, is very mild and only really vomits twice a year or so.  The last episode was extremely severe but we can now monitor it with Zofran.

When we went to hospital to get him drugs to stop him vomitting, the ER dr agreed with the diagnosis of CVS.

Now, I always have Zofran around but he has it so infrequently.

It would be good to have a permanent diagnosis, at least to stop the comments of "oh he is just tired" from MIL but I don't want to put him through that when it is so mild.

He did get worse as he got older, but not in frequency, just in duration.

Good luck...




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