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Steven Johnson Syndrome
Anyone had it?


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3 replies to this topic

#1 ellie1326

Posted 05 January 2013 - 01:49 PM

I know it's really rare, so might not get any responses, but was just wondering if there is anyone else out there with it, and how did you recover? How long it took?

I had the 1st attack just before Xmas and it was nasty. I recovered somehow, but now I have relapsed.  

I am recovering from the relapse, but they told me that I can have many relapses and that they can all pose a grave risk.

Just wondering if anyone has been through this.

#2 Lady Garden

Posted 05 January 2013 - 01:57 PM

I'm sorry to hear you are struggling with SJS. My daughter suffered a toxic reaction to a drug last year which caused various immune responses we are still dealing with, but not on the scale of SJS. What is your treatment plan during an attack? My daughter takes vitamin c, msm and fish oil. She has been very lucky.

#3 TeaTimeTreat

Posted 05 January 2013 - 02:00 PM

.

Edited by sparkler, 20 January 2013 - 11:41 PM.


#4 ellie1326

Posted 05 January 2013 - 03:02 PM

Thanks guys. I am very tired, but still have to run a household.  I am just feeling do sick.





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