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Baby who doesn't communicate verbally.


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#1 Feral_Pooks

Posted 21 January 2013 - 07:46 PM

Sorry to post in this section but I figure you are all the experts.

I would like to get DS (11 months) assessed/looked at by a professional in terms of his language. He doesn't babble, has no words, but the main thing that concerns me is that he doesn't seem to understand any words either (though we do have hand signals we use and he responds to). I am very confident it isn't a hearing issue as we had him tested at birth and at 8 months because of my own hearing issues (now at a functional level) and I know some of the tricks to check. He does blow raspberries, squeal and grunt, and makes a "hungry noise" like ermmermmerm. I do talk to him, read to him, sing, I don't think it's got to do with any of that.

My GP is friendly and agreeable and she has always made whatever referrals I've requested, though tends not to make any suggestions as such. I am not a big fan of my MCHN as in the past she has brushed off some of my concerns which have later been found to be well founded (my own mental health, DS's reflux and then later his eczema). What kind of specialist do you think I'd be best asking for? And if anyone is in northern Melb and knows exactly where I should go, please PM wink.gif

TIA.


#2 kandj

Posted 21 January 2013 - 08:27 PM

If you are really worried I'd look at getting referred to a Developmental Paed. Maybe a speech pathologist?




#3 baddmammajamma

Posted 21 January 2013 - 08:57 PM

Another vote for developmental paed + speech therapist. I would see both, not one in lieu of the other.

Developmental paeds are experts in child development (hence the name original.gif ) and will look across all aspects of your son's development to see if there are any issues or potential issues - including things that extend beyond speech & communications. However, given that the waiting list is likely to be long (private or public), at least you can get the ball rolling by consulting a good speech therapist.

I hope some of the Melb mums will chime in with suggestions. Below is a list of professionals in the Eastern & Northern suburbs who are well versed in ASD-related stuff -- I'm not implying that your little guy has ASD, but generally speaking, professionals who work with kids with ASD really know their stuff re normal v. atypical development. There are speech therapists & developmental paeds listed within:

http://www.med.monash.edu.au/spppm/researc...n-directory.pdf

I will also check my archives & see if I have some good personal recs.

#4 Feral_Pooks

Posted 21 January 2013 - 09:18 PM

Thank you for that I will see the GP Wednesday and ask for a referral to a speech therapist and developmental paed.

#5 rosiebird

Posted 21 January 2013 - 10:57 PM

Pools, you need an audiology assessment first and foremost, then a speechie and then a paediatrician.

#6 Feral_Pooks

Posted 21 January 2013 - 11:15 PM

Thanks Rosiebird I will get him tested again. My hearing loss is related to my cleft palate, which DS didn't inherit, and the tests he has had looked good, but it's worth checking.

#7 peppaandgeorge

Posted 22 January 2013 - 01:09 PM

OP, I just tried to PM you with some recommendations for paed and speech (I'm also in Melb's north), but it failed, twice.

This is my first time trying to PM someone - does anyone know what I might be doing wrong?  When I hit 'send message' it came back saying my message must be more than 3 characters long, which obviously it was...

#8 baddmammajamma

Posted 22 January 2013 - 01:11 PM

P&G:

Make sure you have something in the "title"line -- like "Hi!""or "Recommendations"

#9 peppaandgeorge

Posted 22 January 2013 - 01:20 PM

BMJ - made sure I had something in the title, but still no joy...

#10 Hypnic Jerk

Posted 22 January 2013 - 03:04 PM

P&G - I'd also like to see your suggestion of a speech path.  We currently go to essendon, happy with the service but the travel does me in.

#11 peppaandgeorge

Posted 22 January 2013 - 04:36 PM

OP and Duffy -do you want to try PMing me, and I will see if I can reply.  I still can't figure out why my PMs are failing - once the kids are in bed tonight I will have another look at it - presumably there is some sort of EB administrator or help desk.


Edited by peppaandgeorge, 23 January 2013 - 07:01 AM.


#12 ednaboo

Posted 22 January 2013 - 07:53 PM

I too was going to say to start with an audiology assessment.  You can get one without a GP referral and some private centres bulk bill while others seem to charge a small fee.  I believe Tarralye charge a small fee, for example.  All my DS's tests were bulk billed (he's had about 15) at a private audiology clinic.  The wait time was  usually about 5 weeks.

#13 Tilli+Macey

Posted 22 January 2013 - 08:46 PM

Sorry pooks, no advice for you as haven't got any knowledge In that area, but P&G I had the same thing. I can't remember exactly how I fixed it but I went on to the forum technical support and questions page and searched. It's quite common. You just need to play with the settings a little but go in there and search and you'll find exactly how to do it. Good luck.

#14 peppaandgeorge

Posted 23 January 2013 - 09:35 AM

Thanks all, my PM problems are sorted.  Apologies for hijacking this thread, and to BJM for filling your inbox with spurious messages  smile1.gif

OP - one more suggestion for you - make sure you write down all your concerns, along with any questions you might have, to take with you to your appointments.

#15 Hypnic Jerk

Posted 23 January 2013 - 10:23 AM

OP, the Speech clinic that P&G has told you about we also go to.  The receptionist is very good, well informed and will be able to steer you in the right direction.

We saw a speechy for school funding who just did diagnostic and assessment work - no therapy. Let me know if you want her details.  We saw her at Fawkner.

#16 caitiri

Posted 24 January 2013 - 08:11 AM

Taralye does charge its not alot though and you can usually get in very quickly.  



#17 Feral_Pooks

Posted 24 January 2013 - 03:05 PM

My normal GP is away so I saw a different one today, and he was saying DS looks happy and healthy and seems fine and I need to calm down and then asked if I needed to review my mental health treatment. He was being very kind but it has left me a bit deflated. I will try to see my GP when she is back, or I am seeing the MCHN in another 3 weeks. I'm really doubting myself now. I'm sorry if I wasted people's time.

#18 mummy.to.one

Posted 24 January 2013 - 03:35 PM

Pooks don't feel deflated and you haven't waste anyone's time.

I'm sorry the dr didnt take your concerns seriously. I have dealt with that on numerous occasions people/dr's included see a hapt child and think you are overreacting.

I was told DS was just a tad slower nothing wrong, I pushed for a paed appt and he is delayed in some areas severely. Do see your normal gp and remember you know your son best and much better than a dr who met him for 15mins.

#19 baddmammajamma

Posted 24 January 2013 - 03:45 PM

QUOTE (Pooks_ @ 24/01/2013, 04:05 PM) <{POST_SNAPBACK}>
My normal GP is away so I saw a different one today, and he was saying DS looks happy and healthy and seems fine and I need to calm down and then asked if I needed to review my mental health treatment. He was being very kind but it has left me a bit deflated. I will try to see my GP when she is back, or I am seeing the MCHN in another 3 weeks. I'm really doubting myself now. I'm sorry if I wasted people's time.


You've wasted no one's time, so please don't apologize.

How dare he make you feel as if the problem is all YOURS? Perhaps he'd like to hang out with this group so we can give him example after example of GPs who blew off our concerns -- only to later learn that, yes, our children had issues that deserved to be taken seriously.

There are some amazing, wonderful GPs out there who listen to their patients' concerns -- and then there are those who think that just because a child "looks happy" that there couldn't possibly be anything worth investigating.

Please see your regular GP when she returns.

By the way, you can get the ball rolling with booking the other appointments even before you actually see your regular GP. That way, you aren't forced to just sit on your hands until she returns.

#20 Feral_Pooks

Posted 24 January 2013 - 03:54 PM

Thanks BMJ I hadn't thought of doing that. I guess he just looked at my medical file, saw all my mental health stuff, saw that I frequent the clinic with issues around DS and his reflux and eczema, and thought I was one of "those" mothers... Maybe I am a bit. I'm definitely over sensitive and an over thinker. But even if I'm way off, who would it hurt for me to have DS looked at? Seems a bit odd.

#21 Mrs Dinosaurus

Posted 24 January 2013 - 04:10 PM

Pooks - please don't feel like you're one of "those" mothers, I feel like that too and everyone except a our nearly-retired and very chilled out GP has agreed with me!!

FWIW - I have been referred to a Developmental Paed in Kew, I know that's not too close to you but the reason i mention it is because when i called to make the appointment the secretary asked me a few questions and said "I can't get you into X until March but I think you should see someone sooner, are you OK seeing Y in Feb?"

Which was obviously great for 2 reasons, I don't have to wait so long AND she totally justified the fact I wasn't being neurotic (although the Brigance test also helped with that plus independent verification from the Nanny that he used to talk and now doesn't).

Anyway, PM me if you want their contact details - you will need a referal but you can make the appointment first, OOP is around $100 for first consultation.

DinoJ

#22 peppaandgeorge

Posted 24 January 2013 - 04:47 PM

You haven't wasted anyone's time.  Trust your own instincts on this - you know your child best.  My GP gave me the referral I needed, but if I think back, he did make a throw away comment that 'ASD was all the fashion at the moment'.

Hang in there in the meantime.

#23 Feral_Pooks

Posted 24 January 2013 - 05:52 PM

Thanks Ferdinand, she is usually pretty good about giving me what I want. Stupid holidays grrrr.

#24 item

Posted 24 January 2013 - 06:16 PM

Pooks, another just chiming in to encourage you to get in with a speechie (and encouraging you to go back to your regular GP!).

One of my BFFs has a son who, because of medical problems since birth, needed feeding tubes and ventilation and a bunch of other stuff that affected his speech progress as an infant.  The hospital just said he would be delayed till he was 6, would likely speak in a funny voice tone etc, and basically told her she had to live with it.

My dear friend is a tiger, found a great private speechie and started when he was 9 months (teaching sign language so he could communicate- which reduced his frustration immeasurably and relaxed him enough to start working on sounds).

15 months on, his speech is six months ahead and except for one minor articulation problem (can't remember which sound) everything is perfect. Don't accept "he looks ok" - go with your gut and follow it up. As with any intervention, the earlier the better. Speech is a great one to do early as you can have monthly appointments (relatively inexpensive) and do so much of he work at home, yourself, every day.

Best wishes and keep us posted.

Edited by item, 24 January 2013 - 06:18 PM.


#25 Emsie2

Posted 26 January 2013 - 01:06 PM

.

Edited by Emsie2, 27 January 2013 - 06:57 AM.





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