I was diagnosed recently, currently my level, while still higher than normal, as within acceptable levels, so for now I only need to go in every 6 months for testing.
They suggested I get the children's father to test to see if he carries either of the genes, but said otherwise get them tested when they are adults.
Testing when adults is what worries me, this is what I thought as well but DS who is only 13 is already testing high and damage could be started early. When DS was an infant they told me not to test DD until she is older as she will get her period and let blood that way so no need to worry, they told me males are more of a worry.
My mum is having issues with her liver so I told her to get a DNA blood test for hemochromatosis but her GP refused
I told mum to find another GP but she didn't care. I told her that it runs in families but she again didn't care. grrrrrr If DH is a carrier I think there must be another carrier (me) so therefore it is possible it is in my mothers blood line. I must get a test to see what I have
DD doesn't have hemochromatosis.