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IVF Multiple Cycles and the Long Haul BG #16


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#1 Forum Moderator

Posted 23 March 2013 - 07:43 PM

New thread time ladies. Here's the link to your old thread.

Cheers,
~Mintie~

#2 MRae

Posted 06 April 2013 - 07:27 AM

Hi lovely ladies, can I join you?  I have been stalking for a while and I'm currently gearing up for my 5th FET in about 2 wks.

I'm 37 DH 40 no children YET. We have been TTC for 4 years since our marriage in 2009.  3x IUI's, then moved to IVF (ICSI).  First freshy transferred resulted in pregnancy which I lost at 6wks.  The other 4  FETs have resulted in BFN.  FS found that my immune system attacks my DH's sperm but other than that we have been told all is good.  Currently receiving acupuncture and taking Chinese herbs just for something different.

I often feel like no one in the World really understands the horrible rollercoaster of long hauling it with IVF. So its so nice to find you girls here!  Here's hoping 2013 will be our year

Rae.  biggrin.gif

#3 HRH Countrymel

Posted 06 April 2013 - 07:36 AM

Welcome MRae!

You'll be pleased to learn that the success rate for newbies to the long haul buddy group is exceptionally good!



#4 Sera08

Posted 08 April 2013 - 03:49 PM

hi...

I have done 2 ivf Cycles (overseas)...got pregnant but miscarried at 7 and 9 weeks, did FET before but unsuccesful as well.

Anyway i have made an appointment at Fertility North in May, am wondering if anyone has heard of Dr Santanu Baruah? And any reviews on him? I tried searching about him on google but no reviews on past patient about him therefore am kinda worried.


Thks original.gif

#5 Sera08

Posted 09 April 2013 - 01:47 AM

hi...am gonna see my fertility specialist nxt may...and hopefuly be able to start on my ivf.
I have done IVF before, 2 ivf cycles....pregnant but miscarried at 9 and 6 weeks, one FET unsuccessful as well. Previous IVF cycles was done overseas in singapore.
This will be my first IVF done here in perth.
I just needed some info and the procedures on the ivf here. I read some and to my understanding the medications used here i different than the ones i used before. I understand synarel is used (nasal spray)...wondering how effective it is...and also for the trigger shot, is it administered by the nurse at a clinic..or u have to administer it yourself? cos i in my previous cycles, the rigger shot was done by the nurse, as it had to be jab into the muscle on the thigh, but i read somehwre there over here in wa, u have to do the trigger by yourself??????
Please enlighten me, and pardon me for my ignorance

I do hope to be given some info, you can pm. Thank yoi.

#6 MRae

Posted 12 April 2013 - 09:25 AM

Hi Sera, yes Synarel is the nasal spray I used.  I think there is another on the market and possibly an injection but I chose Synarel because I felt like you do enough injecting throughout the cycle so I was happy to sniff the synarel every day in the lead up to injections.  It was fine for me - I think some people have some side effects.  The only one I remember was hot flushes.   I also inject a small amount of Puregon in the lead up to ovulation with helps my body to cycle properly.  Some people also use GonalF for this injection.  This ones easy and you just put it into your belly fat.  The needles are very thin like acupuncture needles - I can do these myself now.  The trigger is a little more difficult and yes you do it yourself but I guess you might be able to ask the nurse to do it if the trigger time is during clinic hours.  I prepare them and then get my husband to inject these ones. I used Pregnyl for the first few cycles.  You need to mix a powder and a solution and draw it up into the needle, but the last time I used Ovirdrel which is pre mixed trigger shot.

Hope this helps.

#7 AmberSpark

Posted 16 April 2013 - 04:05 PM

Hi Ladies,
Thought I might join your group, just had my 3rd IVF Cycle fail and have had 4 transfers all up with the last one being a double. Unfortunately none have taken and I have never had a BFP. Have an appointment with my FS to do more testing. They think I have bad eggs and DH has horrid sperm, so I am slowly losing faith.
Thank you for listening and will be back soon.



#8 MRae

Posted 18 April 2013 - 03:35 PM

Hi Amber, sorry to hear that your last transfer didn't work - you really are putting in the hard yards. Hang in there, I know its hard! I've put 5 in without success although all mine were from one pick up, but I can somewhat feel your pain.  I was meant to go again this month but for some strange reason I had an unusually short 23 day cycle so I'm going to wait for next month.  

Did your doctors do any tests previously?  Maybe its time for a new specialist opinion, they might find something the others didn't.  I've been to three clinics.  The two major ones in Sydney and now I'm with a smaller clinic.  She picked up a few things that the big ones didn't - not that its helped but I was impressed that she looked for things that others didn't seem to consider first time round. She checked things like vitamin D (DH & I were both low), egg quality, immune issues (I have some) all via blood tests.  I cant remember what else she checked but it was heaps of stuff.  I felt like the other clinics just wanted me to go for it and see what happens, and as it turned out I have an immune condition which quite possibly could have seen me come out with no fertilised eggs at all if I used the conventional IVF procedure.  She made me use ICSI and we fertilised 10 eggs.

You can get a copy of your notes and just have an appointment and see what they say? Then go back to your original clinic if they don't find anything.

#9 AmberSpark

Posted 23 April 2013 - 12:58 PM

Hi,

Yes I am seeing my FS in a couple of weeks and asking for some more tests but in the meantime I have booked an appointment with another FS and can't get in until Mid June but am thinking if I am not happy with my normal FS will move over to the other one.

All my cycles have been ICSI, still bad fertilization rates.

#10 Dadora

Posted 29 April 2013 - 12:18 PM

Hi Ladies,

I hope you don't mind if I join you, too.

Like you MRae, we've put in 5 embies over 2 stim cycles with no success. Not even a sniff of a pregnancy sad.gif We have one frostie left.

I have a FS appt on the 16 May ( i hate having to wait this long...) to discuss a new plan of action AND I also have a phone appt on the same day with a reproductive immunologist called Dr Gamal Matthias. I'm really looking forward to what he says because I have mild endometriosis and autoimmune conditions.

I'm wondering, like you Amber, whether we should consider a new FS considering our lack of success with the current one. Our current one is lovely but quite conservative.

MRae - I'd love the hear what sort of immune tests you had done. I might see if my GP could get some blood work done in preparation for my upcoming appts.

Hello to everyone else here. I hope we all have some pleasant news soon original.gif

#11 AmberSpark

Posted 29 April 2013 - 03:24 PM

Oh MRAE - I would love that as well. Thinking of going armed with plenty of materials for my next appointment. Have an appointment with a Chinese herbalist tomorrow. See what they have to say.

Dadora - I am like you and never had a BFP.

#12 MRae

Posted 10 May 2013 - 10:35 AM

Hi Amber and Dadora - nice to meet you both.    biggrin.gif

Sorry ive been missing, been trying not to think about this too much but AF arrived today so here we go into my next FET cycle.  Its been six months since my last double FET.

Regarding the immune testing: my Fertility Specialist did a bunch of tests from my bloods.  Like checking to see if I have killer cells and various immune tests. Sorry I don't know exactly what she did.  All I do know is that I didn't have any natural killer cell issues, but that my immune system was attacking my husbands sperm tails.  The FS hasn't changed my IVF protocol to include steroids like Pregnisone and Clexane which can help for people with immune issues as she believes the bad side effects (like depression, weight gain etc) out way the good but im not so sure about that so I'm tempted to go somewhere else next fresh cycle.  I do take baby asprin (as requested by FS) from the day after ovulation as that helps with minor immune issues apparently and helps with implantation.

I've also been seeing a Traditional Chinese Therapist who specialises in infertility for acupuncture and herbs for the past 6 months to try to heal myself from the inside.  We will have to wait and see if this helps.  She makes me sit with my feet in a bucket of warm water at night, I cant drink or eat cold foods oh and I do yoga every week and have been doing so for the past 6 months.

How did your specialist appointments go?

Edited by MRae, 10 May 2013 - 10:36 AM.


#13 AmberSpark

Posted 16 May 2013 - 10:23 AM

H MRAE, I went to a chinese herbalist as well and she told me the same things, I have to keep my feet warm at all times and no cold drinks, LOL.

I have my appointment on the 3rd June and I am going to ask for all those tests. I just want to put my mind at ease, can't hurt I don't think.

Good luck with the FET. I am looking at July/August for mine, hopefully have my tax back and can pay for it again. I am so angry that the government took away the baby bonus and upped the medicare Safety net, why don't you just make it more expensive for us.

#14 MRae

Posted 18 May 2013 - 07:14 AM

oh I hadn't heard about the increase to the Medicare safety net.  I'm not surprised though!

I didn't do a FET cycle this month.  My Dad is in hospital, and its been rather stressful so I didn't think I could emotionally cope with IVF this month.  Maybe next month if things go well.

Good luck with your appointments - let me know how you go.

#15 Sariele

Posted 18 May 2013 - 10:33 PM

Hi ladies, can I please join you in here? I'm going to be starting my 5th stim cycle in June, and I'm totally over it!

My history (for those who are interested):
ICSI 1 - 6 eggs, 6 mature, 1 fert - BFN
ICSI 2 - 10 eggs, 6 mature, only 1 sperm alive, 1 fert - BFN
(both cycles were using DH's dreadful sperm that had been frozen for 6 years, plus my transfers were done on Day 1 so I don't even know how long the embies survived)
Moved interstate, so changed clinics...
ICSI 3 - 8 eggs, 5 mature, 2 fert with donor sperm, both slow after Day 3, 1 transferred, 1 frozen - BFN (although I had extremely faint lines on 10 and 11 DPO which weren't trigger, so maybe an early chem)
FS suspects my eggs "didn't get along with the donor sperm", so he tells us to choose a different donor for our next cycle..
ICSI 4 - 7 eggs, 6 mature, 2 fert with a new donor, one arrested Day 3, the other slow after Day 3 - BFN
FS confirms my fears that as well as my DH having complete azoo, it looks like I have unexplained bad egg quality. sad.gif I tell him I'm over it; that I will throw everything we can at one more cycle, then I will be looking for an egg donor. He prescribes DHEA and TestoGel, and tells me next cycle we will triple my dose of Gonal-F to 600 (!!), and I will also use Saizen. In the meantime:
FET 1 - Day 6 expanded blasty transferred - BFNs until 7dp5dt when I stop testing... no AF, so I test again 10dp5dt, and I get a line so incredibly faint I can't even tell if it's there half the time. HCG @ 12dp5dt = 6, and at 15dp5dt = 3. sad.gif So my first "chemical", although it barely even feels like a proper chemical since the levels were so stupidly low.

Anyway, FET aside I've taken 3 months off stim cycles to take the DHEA and TestoGel, and I'm getting back into stimming probably the first week of June. Crossing my fingers for better fert rates and/or better embies, otherwise it's all over for my eggs and I have the horrid task of trying to recruit a donor, or find some donor embies. *sigh*

I've also been doing weekly Acu, and taking 450mg CoQ10, Conceive Well Gold (been on that for ages), Fish Oil (same), Vit E, and recently added Royal Jelly caps, Vit D, and Magnesium.

Sorry for the novel! I'm trying to find as many people as I can who are having particularly tough IVF journeys, as no one else understands, even if they think they do. Amber it sounds like you may be having similar struggles to me, I'm sorry you're going through this. It's infuriating, isn't it? Especially when you keep seeing IVF work for other people all the time.

Anyway, I hope to get to know you ladies, and I hope that none of us are in here for long. wink.gif

#16 leebec

Posted 19 May 2013 - 11:08 PM

Hi ladies - it has been so long since I posted.

waves.gif To Sariele. Good to see you over here at well.

Mrae I just left your new FS to go to one of your old ones as she refuses to believe in or treat natural killer cells which I have. I am now at one of the bigger clinics with the FS who specializes in them. He is a bit pigheaded eyc but I have found my way around that.

I went to him (he is my 3rd clinic 4th FS - first 2 FS were at 1st clinic & they were freakin useless) anyway I went to him after I lost my twins from my 7 th transfer after forcing the FS to let me try prednisone & clexane. When it worked she said she still wasn't convinced. Anyway when I had the natural killer bloods done they were extremely high.

I had a failed transfer with higher doses on a fresh cycle in March so then the big guns came out!!!!

Dadora I saw Dr Matthias for the first time ten days ago do Thursday of the week before and had my first infusion of intralipids yesterday. I am at 2dpo of a FET cycle - my 10th IVF cycle so he suggested with out me even asking that I do an infusion to throw everything at it. If this doesn't work we agreed I take a 3 month break & do all his testing & loose then 10 kilos I have put on with 7 months straight prednisone. Anyway he had my results the FS did in Jan & because of those numbers he agreed to treat me straight away. He also said my twins I lost in Jan was a salvageable pregnancy with the right treatment.

He is brilliant & really lovely & the nurses at Hurstville Private (funnily enought opposite my last clinic) were really lovely and were saying how many girls go in each weekend. They had 4 in today so were busting to get me out.

#17 Dadora

Posted 20 May 2013 - 09:16 AM

Wow, this has taken off a bit recently.

Hello to Sariele and leebec. I hope you have a bit more luck very soon in your journey.

Sariele - It seems like you've tried a lot of things. May I ask what the Testogel does for us ladies? My husband is on that because of a genetic condition that gives him low T (and no sperm  sad.gif  )

leebec - I'm glad you think Matthias is good. I spoke to him this Thursday past and he wants to get me tested for NKCells because all of my ANA, APA, ATA etc, was normal. He said it was quite likely for me to have immune problems considering my history of autoimmune issues.

AFM - I'm waiting to get the blood test order after speaking to Dr M. I agree that he seems quite nice, though he did mention that if I need intralipids I'll have to go to Sydney (I'm in Canberra).  wacko.gif
I also spoke to my FS on Thursday. He reckons that we've just had bad luck (he's not big onboard with the whole immune stuff) and that we've just had 5 genetically abnormal embryos. So, he's proposed we do CGH with a fresh stim cycle and forget about our frostie for the moment. Only problem is that it adds 6-7g to the cost of the stim cycle, none of which is covered by Medicare.
Has anyone else had experience with CGH? Was it worth it do you think?

Hi to Amber and MRae, too. I hope you are going ok original.gif

#18 AmberSpark

Posted 20 May 2013 - 10:25 AM

HI Ladies,

Hi Leebec, I was wondering the other day what happened to you. I used to be called (Mish*75) and was in the Endurance Team etc.

Sariele - yes they think I have poor egg quality. I am trying to lose weight and am going to talk to my FS on the 3/6. If I am not happy with them, I have an appointment on the 14/6 with another FS. Dr Hope @ Monash. I am going to ask them about DHEA and I have been on CoQ10 for a little while now. Its a cruel cycle but what do you do, I am not ready to give up yet.

Dadora - oh wow that is a lot of money, sorry I can't offer any information on it.

MRAE - sorry to hear your dad is not well but I agree not too, I did cycles when my mum was going through Cancer, and they were not good ones and I crumbled at the end of them.

AFM: So finally decided not to continue to put our lives on hold, as we have been doing for 3 years now and we were out at the weekend and bought my DH a car, not a new one but a decent one, the one he was driving was a death trap and didn't want him to drive it anymore. We kept saying after the next cycle...etc etc and realised we just can't stop things, we are falling behind the eight ball.
Still waiting for my appointment on the 3/6 which isn't far now and I have my list of questions.

Have a great week everyone.






#19 Sariele

Posted 20 May 2013 - 08:10 PM

QUOTE (leebec @ 19/05/2013, 11:08 PM) <{POST_SNAPBACK}>
waves.gif To Sariele. Good to see you over here at well.


Hi hun, it's good to see you, but obviously not under these circumstances! Hope this is lucky #10 for you.

QUOTE (Dadora @ 20/05/2013, 09:16 AM) <{POST_SNAPBACK}>
Hello to Sariele and leebec. I hope you have a bit more luck very soon in your journey.

Sariele - It seems like you've tried a lot of things. May I ask what the Testogel does for us ladies? My husband is on that because of a genetic condition that gives him low T (and no sperm  sad.gif  )


Hi, and thanks. original.gif FS didn't really specify what the TestoGel actually does, but I think he said it's meant to work with the DHEA to help "prep my ovaries" for the next stim. I hope it's doing something, as well as the DHEA, because it is a PITA to put on after my shower every night, having to wait for it to dry before I can put my PJ top on, lol. My DH also has low testosterone, but he's not on treatment for it. No one has ever said why, or that is contributed to the cause of his eventual Azoo, so we've never bothered with treatment.


QUOTE (AmberSpark @ 20/05/2013, 10:25 AM) <{POST_SNAPBACK}>
Sariele - yes they think I have poor egg quality. I am trying to lose weight and am going to talk to my FS on the 3/6. If I am not happy with them, I have an appointment on the 14/6 with another FS. Dr Hope @ Monash. I am going to ask them about DHEA and I have been on CoQ10 for a little while now. Its a cruel cycle but what do you do, I am not ready to give up yet.

No, me neither. But at the same time I feel like I'm already ready to move onto donor eggs... I just want to have a cycle where I have more than 2 eggs fertilise, and an emby that's actually a blasty on Day 5 and not a Morula! rolleyes.gif And if that means using donor eggs, then bring it on. wink.gif


Thanks for the welcome everyone. I hope that we all get to escape from here soon. xx

#20 Dadora

Posted 23 May 2013 - 02:45 PM

Hi Sariele,

I hope you don't mind me asking, but where can you get donor eggs from? Do you have to ask family/friends or is there some sort of "bank" that you can buy them from like sperm?

Just thinking this route may be on the cards for us but my sister and the DH sister are both older than us sad.gif so we'd probably have trouble finding our own source.

#21 Sariele

Posted 23 May 2013 - 05:31 PM

QUOTE (Dadora @ 23/05/2013, 02:45 PM) <{POST_SNAPBACK}>
Hi Sariele,

I hope you don't mind me asking, but where can you get donor eggs from? Do you have to ask family/friends or is there some sort of "bank" that you can buy them from like sperm?

Just thinking this route may be on the cards for us but my sister and the DH sister are both older than us sad.gif so we'd probably have trouble finding our own source.

There are several pathways. First of all you can put you name down on a waiting list at a clinic that runs an egg donation program, but these lists are usually very long; I've heard people say that on average they tend to be a 2+ year wait.

Secondly you can ask a sister/cousin/friend to donate.. I'm planning on asking my cousin, but I don't expect her to say yes.

Thirdly there are some online forums where you can advertise and hope that some lovely donor will be interested in helping you out (this is what I will probably try)

Fourthly (is that a word?) you can travel overseas... there are very well-known egg donation programs run in South Africa, Hawaii, Greece, Czech Rebublic, just to name a few. These apparently have terrific success rates, however it's very expensive, as you are not only forking out a five-figure amount for the cycle (and of course you won't get a Medicare rebate either), you also have to pay for flights and accommodation! But it is still quite a popular choice.

One clinic in the US has started "selling" donor eggs to people in Australia, but it is totally ridiculous, because not only do frozen eggs not yeild good results, but they are apparently charging a whopping $19,000 for just seven eggs! ohmy.gif

#22 Dadora

Posted 23 May 2013 - 06:05 PM

Wow, thanks Sariele! You are a wealth of information original.gif It's good to know that there are a few options. My FS hasn't mentioned poor egg quality to me yet, per se, but he has discussed how egg genetics affect embryo genetics. So, I think if we don't have success in the next cycle or 2 then we might be moving to donor eggos.

Good luck with your cousin, if you go that route. You never know wink.gif

#23 MRae

Posted 24 May 2013 - 02:48 PM

Hi, hows everyone traveling?

I was excited to see loads of posts since I was here last.

Leebec - I'm currently at Fertility First but might see Dr Matthias if we have no luck with our remaining  embryos.  Im sorry to hear that you have gone through so much. Ive tested positive for ANA antibodies but all the rest were ok. I need to google intralipids as I've never heard of them.

Dadora that's a great idea to do phone consults.  I'm sorry I cant help with CGH either.

Sariele & AmberSpark I hope your traveling well and you progress to successful cycles very soon.

Edited by MRae, 25 May 2013 - 08:02 AM.


#24 AmberSpark

Posted 27 May 2013 - 12:29 PM

Hi Ladies, one week until my next appointment to review my last cycle. Scary stuff.

#25 Sparky10

Posted 27 May 2013 - 02:59 PM

Hi Ladies

I hope you don't mind if I join you? I've been hanging out in the TTC#1 after miscarriage post for awhile but I think it's about time I joined an AC forum instead.

About me - I've been trying to conceive since March 2010. We fell pregnant naturally in April 2011 but unfortunately it ended in MC around 7 weeks. Since then I've had no success at all. We started IVF last year and so far I have done 4 stim cycles (with CGH testing). Unfortunately I only get a small number of eggs (we've only been able to test 6 embryos from the 4 stims) and unfortunately as i have a balanced translocation the odds are stacked even more against me! So far all the embryos tested have had chromosome issues so I've had nothing healthy to transfer. As if that wasn't enough to deal with I've also recently discovered that I have elevated NK cells.

I'm due to start my next (and possibly final) attempt at IVF in July. I'm currently on a 3 month break while taking DHEA in an attempt to improve my egg quality. Is anyone else taking this and if so have you found it lengthened your cycles? AF was due today and I am usually as regular as clockwork (and have spotting a couple of days before) but so far this month I have no signs it's coming. I tested this afternoon in the vague hope that a miracle had occurred but of course it was BFN.

Sorry for the essay but I look forward to chatting to you all.  




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