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Mass found on DH's lung by coincidence
52 replies to this topic
Posted 10 December 2013 - 05:07 PM
Thanks guys, I am rapidly coming to the realisation that DH and I have different ways of handling it. I am factual, I am looking forward to the appointment because it gives me knowledge, which means I can then move onwards, towards treatment of what ever, I have something to focus on rather than dithering around anxiously. Whereas he is a "Meh, I think the appointment is going to be underwhelming, Mëh " blasé !
Each to their own!
Posted 10 December 2013 - 05:15 PM
Hope you get clarification tomorrow and a clear plan for how to deal with things
Posted 10 December 2013 - 05:27 PM
Thinking of you and your family - having gone through something similar recently, I can relate to how must feel at the moment. The not knowing is the worst part but hopefully you will have answers tomorrow.
Is it just yourself and your husband attending the appointment? For us, we had a couple of extra family members in the room for support, plus to pick up bits and pieces of information that we missed. Sometimes, it's all overwhelming trying to absorb information so for us, we were glad to have a couple of extra sets of ears to listen to what was being said.
Goo luck tomorrow.
Posted 10 December 2013 - 05:31 PM
Thinking of you and your husband at this very uncertain time.
Posted 10 December 2013 - 05:31 PM
If it makes you feel any better OP my grandmother was diagnosed with lung cancer in 2010, she did chemo and (i assume) radiation aswel, she made a full recovery. she is in her 70s and has other health issues aswel so isn't 'fit and healthy' she made it through.
Also my nan was diagnosed with a rare type of throat cancer (not caused from smoking) earlier in the year, things didn't look good, it has been a tough 10 months but she has gotten through it, and her last scan showed no more signs of the cancer.
she thinks what got her through it, was her positive outlook and attitude.
theres always hope even in the worst situations.
i hope it turns out to be nothing to worry about OP, the best of luck for you and your DH
Posted 10 December 2013 - 06:47 PM
Thinking of you.
Write down all of you questions between now and the appointment. And then ask the specialist for their email address and if it is okay to email other questions you may think of (most will say yes) - because the minute you walk out the door, you will think of a whole bunch more.
Good luck tomorrow.
Posted 14 December 2013 - 02:12 PM
OK, so here is the run down of the last couple of days.
On Wednesday morning I started driving down for DH's afternoon appt. I was about an hour into the drive when DH rang. The Lung specialist had rung him and said that he was cancelling that afternoons appt as he was positive DH would need surgery, and that the thoracic surgeon was in his office tomorrow (Thursday) so rather than doubling up on appt's we will just go straight to see the surgeon. We still at this stage don't know anything about what the lump is. Dr says to DH to ring him at 6pm and we can have a phone conference to discuss results etc. This left me hours to kill before the 6pm call so I managed to get some shopping in before meeting DH
Come 6pm we ring the Dr, who says he can't speak now but will ring us in the next couple of hours......
WE ring him at 9pm, when he tells us that yes, the prelim biopsy results show cancer and that in all likelihood operation to remove it would be a necessity, and that he thinks this mass is the primary.
OK, not unexpected. We both went to be feeling a bit
get up at 5am to get to the surgeons, who is double booked all day, wait in a waiting room forever with the surgeon arriving an hour late.
Surgeon has no results there, spends half the appt trying to chase up results from pathology labs etc. The biopsy tests have not even been fully finished, what results he could get back showed inflammatory cells NOT cancer, to which we sighed relief a bit. Dr says, well, considering your age, health, no symptoms, and non smoker, I would suggest something benign - infection or inflammation of some sort perhaps but the PET scan suggests otherwise - go and grab a coffee and come back in half an hour and I will have all the results back for you then., An hour and a half later we get back in....... no results back....... so basically he couldn't tell us anything at all.
He put DH's name down on the list to discuss on Friday at their "cancer group" meeting - a dozen drs of all walks of life who discuss cases, diagnose and decide treatments & course of actions etc.
So we came away knowing nothing further....
DH got a phone call yesterday after the group had finished meeting.
Apparantely one of the samples from the biopsy showed inflammatory cells, and another DEFINITELY showed cancers cells. So in actual fact, both drs were right. They have no diagnosis yet, I think it seems to stump them a bit. They aren't actually even sure that the mass in the lung is the primary at the stage. DH is booked in to see the surgeon again on Tuesday (on a day where he is apparantely quadruple booked!) and is booked in to have surgery on Thursday in Sydney to remove one lymph gland and biopsy another (I think??)
So I am glad we have the next step of investigation sorted, but I can't help but think that we will face more serious surgery down the track.
Anyway, I will be back in later with anything else that I have forgotten, kids are hanging out to get to the pool
Posted 14 December 2013 - 05:42 PM
Gosh what a lot of uncertainty! And I am shocked at how booked up the surgeon is. Sad to think there's so many people needing surgery due to cancer. Thinking of you guys and hoping you can have some pleasant distractions between now and Tuesday.
Posted 14 December 2013 - 06:05 PM
Thinking of you both at this tumultuous time. The waiting for results, and the desire to get back control that is taken away in situations like this, can be overwhelming.
I remember when my sister was ill and they were trying to work out what was wrong with her, we had specialists saying one day it wasn't cancer, and the next day, they think it is. This felt like it went on for weeks, but it was probably only a week or so. It was horrible - from the high's to the low's. Eventually she did get a cancer diagnosis (Hodgkin's lymphoma) but has now been in remission for 3 years.
I do hope you get to the bottom of it very soon, so you can at least begin planning the weeks and month ahead (or not, as the case may be). I really feel for you during this difficult, stressful time.
Keep talking. It sounds like it can really help you sort out your thoughts. Thinking of you, it's a really rough time waiting for results.
Posted 14 December 2013 - 08:09 PM
How frustrating that the results aren't clear! I hope you get some answers soon.
My cancer was also found by accident. I count myself lucky everyday that it was found because it was treatable and removed.
Good luck with it all
Posted 16 December 2013 - 12:45 AM
Crap I am thinking of you and your Hubby - what a stressful time. Let us know what happens next xoxo
Posted 17 December 2013 - 06:19 PM
Thinking of you you. Hope things went well today with the surgeon.
Posted 18 December 2013 - 08:00 AM
Wishing your hubby all the best, and that whatever nasty he has is treated completely.
Posted 18 December 2013 - 08:16 AM
Thinking of you and your husband during this awful uncertain time. Wishing your husband the very best and that you have good news soon.
Posted 18 December 2013 - 08:16 AM
Thinking of you and hoping you have some clear direction and plan soon.
Posted 27 December 2013 - 04:40 PM
Hope things have moved forward OP and you have some clear information about what you are dealing with now.
Posted 27 December 2013 - 04:59 PM
Just read your journey to date. Thinking of you and your DH, hope you have a clearer picture of what you are up against. Take care.
Posted 31 December 2013 - 03:35 AM
Just read what you have been going through. Praying and sending positive thoughts your way. I hope you get better results from the biopsy.
Posted 04 January 2014 - 09:38 PM
just read this and am hoping all is going as well as can be at this time..
waiting for an update..
Posted 05 January 2014 - 05:58 PM
op, i read your post and want to pray all the best for your hubby. Thank goodness they found it.
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