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Calling on EB's collective strength
74 replies to this topic
Posted 28 August 2014 - 09:26 AM
Praying and thinking of you. You're a brave woman and mother.
Posted 28 August 2014 - 09:36 AM
My prayers for strength, health and best wishes for you Alali
Posted 28 August 2014 - 09:51 AM
Oh Alali my thoughts are with you, your fiance and your DS xx
Posted 28 August 2014 - 09:55 AM
I'm wishing superwoman strength on you OP. Good luck in the battle ahead.
Posted 28 August 2014 - 10:06 AM
Alali, thinking of you and your family. Best wishes for a short and successful treatment.
Posted 28 August 2014 - 10:12 AM
I'm currently undergoing treatment for breast cancer diagnosed in March this year. The early days awaiting for a clear diagnosis and treatment plan are terrifying. I hope you soon have those answers as it truly will help with your fears. Like Hattie (Julie) I'm more than happy to chat more privately via PM if you would like.
Posted 28 August 2014 - 01:44 PM
Thinking of you - sending positive thoughts and wishing you strength for the journeyahead!!!
You can do it!!
Posted 28 August 2014 - 08:14 PM
Alali - how are you doing tonight? Are you still in hospital?
Posted 28 August 2014 - 08:39 PM
Thinking of u. We all know you will use those super powers that mums have....sending u positive thoughts
Posted 28 August 2014 - 08:48 PM
Thinking of you OP and keeping everything crossed for a positive outcome.
Posted 28 August 2014 - 08:52 PM
Sending you strength and best wishes for a positive outcome Alali.
Posted 28 August 2014 - 08:53 PM
Thanks again everyone and thanks to those who've PM'd as well.
They were able to take an adequate sample for biopsy from a vertebrae this morning! 'Might' get an indication by tomorrow afternoon of findings.
To answer PP Q, the initial presentation suggested multiple myeloma however I think they've ruled that out and are now thinking spine/sternum lesions are metastisis (sp?). There is something showing on breast scan but they can't determine what it is either.
Im def in hospital for a while, still a full spinal patient as the lesions are pretty crushing apparently. I did stand today, for the first time, with a spinal brace Hopefully tho will know more tomorrow and next week.
Thanks again, it helps not to feel so alone writing to you all x
Posted 28 August 2014 - 08:59 PM
Thinking of you and your family. Thank you for the update.
Posted 28 August 2014 - 09:00 PM
Sorry you are in such a tough place. I'm not much use on the cancer front, but I do have EO, so let me know if you have any questions on that front. I have heaps of recipes and ideas - maybe for your DH?
Posted 28 August 2014 - 09:11 PM
Thinking of you op and sending you love and strength xx
Posted 28 August 2014 - 09:25 PM
Thinking of you. I hope you are getting good pain relief!
Sending lots of positive thoughts your way.
Posted 28 August 2014 - 09:48 PM
Another who is thinking of you and your family Alali, wishing you strength as you face a diagnosis and treatment.
Posted 28 August 2014 - 09:49 PM
I'm thinking of you and sending you much strength and healing.
Posted 29 August 2014 - 03:11 PM
Just letting u know that I'm thinking of you. I know you are anxiously waiting for those results.
Fingers, toes and everything crossed for you today.
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