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Ready Set Go Girls #247
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Posted 05 October 2014 - 05:41 PM
Well I'm back. Had an appointment with my clinic yesterday and we're going to do another round of IVF this month but with a completely different regime.
Just when I thought I knew what to expect they change it up on me.
All new drugs and a new doctor.
Annie - Congratulations! So happy for you
Shay - I had a HORRIBLE embryo transfer last cycle and it sounds a lot like your mock transfer. I was in so much pain and crying. The doctor clipped my cervix and what should have taken 5 minutes took over 20, it was the most painful thing I've ever been through. My doctor tried to do a mock transfer on me yesterday and couldn't so they're going to knock me out for this transfer.
Q: My scan yesterday day 21 showed I haven't ovulated yet. I'm always right on time. Will AF show up late or what happens if it doesn't show at all? Has this happened to anyone else? The doctor just said we can start my next cycle with AF starting as long as my levels are baseline. Does that sound right?
Off to read the rest of the last thread
Posted 05 October 2014 - 07:26 PM
Hi Bels Good to hear you have a new plan! My FS is totally changing my drugs if this frozen transfer doesn't work. I like the fact that he's trying something different though and not just doing the same old thing.
If you've not ovulated yet then I'm afraid you'll be waiting a while for AF but I don't think it won't come at all. The waiting around really sucks but yeah like the levels to be baseline before they start a new cycle. Good luck!
Annie - I can understand why you're anxious but I don't think it would be worth having an earlier scan. I'm not sure you'd be able to detect a heartbeat much earlier than 7 weeks. Maybe if you were going to the clinic for it cos those guys are experts but if you're just going to your local place then as much as I know you want to, it's probably not worth it. My BT is 12 days after transfer which is shorter than the usual 16 but it seems longer than that because it technically spans across 3 weeks.
I bought a pack of 3 hpt's today. I don't plan to use them though unless something makes me think it's worked or failed.
Rain - have you started packing?
Hope everyone is doing well. Our kitchen is finally done so I've spent all day finding new homes for everything. So exciting
Posted 06 October 2014 - 08:05 AM
Hi everyone, I am new to this thread. I hope it's ok if I join in!
I am currently doing my first IVF cycle for unexplained secondary infertility. Our son took over a year to conceive and was a surprise natural conception after we had been given a referral to IVF.
We have been trying for a second for two and a half years now, and as we progressed down the GP > tests > fertility specialist > IVF path I think I was secretly hoping the same thing might happen again, especially as the cause of our infertility hasn't been pinpointed ... but that didn't happen and now I have a sharps container in my fridge. Still getting used to all the terms and acronyms. I'm on 150 units of Puregon and Orgalutran for the suppressant.
I had a blood test and a scan this morning, I haven't got the results from the blood test back but the scan showed I had 24 follicles on my right ovary and 14 on my left. I don't know how big they are but it's only day 6 and I am panicking about OHSS - how common is it really? I'm trying to take it easy and drink heaps of water (I'm in the bathroom every half hour it feels like!) but I'm freaking out! Can anyone who has had any similar experiences reassure me?
Posted 06 October 2014 - 10:00 AM
Hi Sestra - welcome Hopefully you're not here for too long.
Have they mentioned anything to you about possibly having OHSS? My clinic says the rate of OHSS occurrence is around 1 in 20. I wasn't worried about it but in my first cycle my estrogen went through the roof and I ended up with 72 follicles. It's the estrogen levels that they are concerned about so when they've got your blood test results if that's high they'll start worrying about it. There have been other ladies on here with 30+ follicles but their estrogen was still ok so it wasn't a problem, just uncomfortable.
The first cycle is always a bit of a trial and error process unfortunately because they have no idea how you will react to the medication. The best thing you can do is keep your fluids up and make sure you let your clinic know if you start to feel unwell.
Posted 06 October 2014 - 12:13 PM
Thanks so much Jo. I've since heard back from the clinic and apparently the blood test showed my estrogen levels are normal, so although there's a lot of follicles they are not concerned for now.
I mentioned that I was paranoid about OHSS, as I have a few of the risk factors my Dr had mentioned. The nurse said my results didn't indicate anything abnormal so to just keep fluids up and let them know if I feel unwell. They've kept my medication at the same level so I'm feeling much more relaxed now. I have another scan on Wednesday so it's just wait and see until then I guess!
Hope everyone else in this group is doing well :-)
Posted 06 October 2014 - 01:23 PM
Hi Ladies i haven't posted in here for a couple of years. We are just about to do a fet. We have a lb 15m and have been trying since just after he was born. Feeling pretty nervous again about it all.
Posted 07 October 2014 - 11:06 AM
All the very best jjc1! I remember you from way back.....
Posted 07 October 2014 - 02:05 PM
I'm a bit sleepy so I'm skipping personals for now. Egg collection was at 7:30 this morning. I've joined the 40+ follicles club sadly - no chance of transfer on Friday. There is apparently a bucketload of free fluid already in my abdomen - which explains the weight gain.
They started me on a drug for Parkinson's disease which is meant to curtail OHSS - I guess we will wait and see. It's called Cabergoline - Jo did you have this? According to the clinical director of my clinic (a much nicer doctor than my own - can I swap?) they haven't had a single OHSS admission since I they began using it - it's all been able to be managed as outpatients - so it seems like it should work.
From the two cartons of eggs , the embryologist says that 15 look really good - so it's just a case of waiting and seeing. Because day 5 is Sunday they are going to freeze on day 3. They don't think I will be able to do a FET till December now - doing daily weighs, waist circumference and bloods.
I think DH is much more disappointed than I am. They were very good with the let me down easy - I've been mentally prepared for it since Friday.
I am feeling like a bit of a wuss - I needed a fair chunk of fentanyl post retrieval to be okay - whereas the other ladies were up an dressed with a couple of panadol.
Anyway. Home now so heat pillows. Chocolate and water water water time for me.
I'll pop back in for personals later tonight - just going to zombie out for a while.
Posted 07 October 2014 - 03:06 PM
Hi Shay - As much as it sucks, I'm not surprised they have put off your transfer. And it's no surprise you're in a lot of pain because now that they've drained all those follicles, they are all going to fill back up with fluid again so you will be uncomfortable for a while
I don't remember what drugs I had but I was in hospital and they gave me all sorts of things and blood thinners because the egg collection left me with internal bleeding. The first few days were a bit of a blur lol. Then I had to do all the daily measuring etc. Prepare yourself for a couple of weeks of feeling 'yuck'. Heat bags and lots of water will be your friends for a few days
On the upside it sounds like you've got lots of eggs which is great! Out of my 72 follicles all I got was 8 and only ended up with 3 good ones so you've done well. Why will they not do a transfer next month though. Waiting til December sucks. My clinic won't book on any cycles after the 2nd of December so hopefully yours doesn't have that rule. Rest up and take care of yourself xx
Posted 07 October 2014 - 05:44 PM
Just a quick hello from me.
I'm not sure where everyone is up to, sorry!
Shay, I hope your pain is manageable, and that you end up with some great embryos! It's a shame you have to wait, but that's part of the game. I never got a fresh transfer either.
Hi Sestra and jjc1.
Bels - good to hear that you have a new plan, I hope this is the right one for you!
Jo - hooray for the new kitchen. Are you finding it easy to get around?
AFM - saw my FS today and we are going to do a scratch next week, then the final FET in the next cycle.
Posted 08 October 2014 - 10:36 AM
Shay- hi and WOW that's a lot of follicles! No wonder you were bloated! I had 32 follies and was in a lot of
Pain by the end. They triggered me with Luprin to reduce risk of OHSS so I was one of the lucky ones. I know it must be disappointing that you can't do a fresh transfer! But your health comes first. Rest up and drink lots of fluids!! I really hope that the 15 embies keep growing well and you have lots of frosties.
Jo- I am anxiously waiting for your results! This has to be your month!!
Ever- great to see you back. Does it feel better to have a plan? Best of luck for the FET!!!
Annie- how are you? Have you had any further blood tests?
AFM- had my post op appt with my FS. I decided I can't wait for December to transfer so it's happening next month! I'll be on a medicated FET but just taking estrogen and then progesterone. I'm nervous but excited. Does anyone know the stats around embryos not surviving the thawing process. This is my fear at the moment.
Hi to everyone else.
Posted 08 October 2014 - 11:38 AM
Hi Ever - The new kitchen is awesome! I'm loving it at the moment. I think because I've only just put things back I'm having no trouble remembering where stuff is Good luck with the scratch. Hopefully it does the trick and your last little frostie is the winner
Happy - I know it's still early - 7dp4dt - but I just don't have a good feeling about this one I hope I'm wrong. BT is on Monday which is forever away...
Glad you're doing your FET next month. Waiting til December seems like such a long time. As for thawing rates, I've had 3 FET's now and each time there's been no problem with them surviving the thaw. My clinic says that with techniques these days it's rare for them to NOT survive thaw out so hopefully yours are fine I am always nervous about that too though x
Hi jjc1 - hope this cycle is the one for you x
Annie - BT tomorrow isn't it? I have everything crossed for you xx
AFM - going nuts this 2ww. I am over analysing every little thing. I keep getting little niggly pains which I had last time and it was a BFN so I'm not feeling very confident
Posted 08 October 2014 - 06:52 PM
Bels- I'm sorry you had such a bad transfer - are they knocking you out to do transmyometrial or just regular? I was actually a complete wreck after my trial - and I get bloody quarterly punch biopsies so it's not like I'm unaccustomed to pain up there. I bled for a few days afterwards - but then AF that month wasn't so bad so there was at least a positive from the negative.
Jo - are you going to POAS or just be brave and wait it out till blood test?
I honestly think we should just receive 2 blood forms - go wherever you want, 24-48 hours apart - and then they call us with the results - so they can say "HCG is low but still doubling like it should - advise cautious optimism." Because I know if/when we get to that point, I don't know if one beta by itself is going to give me much belief and a week apart seems too long to wait.
Sestra - Welcome! We had identical drugs - 150 of puregon isn't "much" apparently - but enough to send me over the edge. Do you have any other signs of PCOS? OHSS is going to kick in post egg retrieval / trigger shot if it wants to show itself. You using ovidrel? If your next scan is still high it might be worth asking about alternative trigger meds so the HCG doesn't send things spiralling.
Jjc1 - welcome back to the club nobody really wants to be a part of! Hoping good things happen for you fast!
Ever - forgive my ignorance of the lingo - but what's a "scratch?"
Happy - I'm now googling freeze / thaw rates myself too - I will be following your FET closely! Are you feeling all recovered now?
AFM - I did a number two !!!!!!!!!!!!!!!!!!!! Forgive the TMI but it has been the mission since last night and somewhat of an ordeal. I'm glad I'm normally regular - I can't imagine having to put up with THAT on a weekly basis.
Embryologist called this morning - we're down to 10 that fertilised overnight. I know it's a great result, but with the huge numbers, I guess I had envisaged a 12 month supply! Hoping that we get 4 that make it to freeze. Because day 5 would be Sunday, they will do a day 3 freeze - but if any don't look like they would make it through the freeze at that point she will let them grow to day 6 and freeze them then.
I have an appointment on the 25th (the day I was meant to have HCG bloods) for a "Clinician Review" - and I am going to raise getting FET in November - it just seems to be my clinic's protocol to have an entire month off after a failure.
Tummy is feeling significantly better today - right side is still needing some wheat bag love 24/7 but I can at least walk which is good. Still gaining weight - not so good - I'm pretty big to begin with - was 89 before the cycle - now I'm bloody 98 and this daily weigh business is just mortifying. If I crack 100.................
Ive been having a weird sort of chest pain when I'm lying down - it's only on inspiration and it's sort of sharp and tingling but more around my shoulders than diaphragm. I'm not sure if it's just anxiety - the veins in my neck seem to pulsate and feel like they are bulging when it happens. It's not unbearable - so I'm just waiting and seeing at this point. I know if I tell them chest pain, the next 8 hours will be spent in ED- then admitted for at least 24 hours for observations - and it's probably all just nothing - no Emby transferred so I shouldn't progress to full blown severe OHSS.
Posted 08 October 2014 - 09:35 PM
Shay- I'm certainly no expert but I would call your doctor tonight and let him know. Jo, I think I remember you saying that you had severe OHSS without an embryo transfer, so it can happen. Better to be overly cautious. Take care!!!
On a side note, I totally hear you about the poo! I couldn't go for three days after my op and it was so painful I was in tears!!
Posted 08 October 2014 - 10:58 PM
Shay - Happy's right. You should call your doctor as soon as you can and him them know what's going on.
I never had a transfer either but I still ended up in hospital, barely able to breathe on my own. Because I had so many follicles to drain my ovaries bled from the needle going in and out so many times. I ended up with internal bleeding and had which compounded with all the pressure in my abdominal cavity from the extra fluid and squashed my lungs and diaphragm. I totally get how frustrating it is to sit in an ER waiting room for hours and get kept just so they can monitor you but seriously, if your breathing starts getting difficult or your chest pains get worse please go see someone. I can honestly say I've never felt worse in my life than when I had OHSS and I wouldn't wish it on anyone so please take care of yourself xx
Good job on the #2 - I reckon we've all been there
Posted 09 October 2014 - 07:40 AM
Hi everyone! This thread moves so quickly, I hope I haven't forgotten anybody ...
Ever - good luck with the scratch!
Happy - how exciting that you can go ahead with an FET next month, just think you could be pregnant by Christmas!
Jcc, I'm also in the secondary infertility club, it sucks so much - especially because you can't just remove yourself from all things baby- and child-related when it gets too much. Hope your FET goes smoothly.
Annie is your blood test today? Hope it is a good result for you.
Jo how are you feeling? Still niggles? Will keep my fingers crossed for a good result for your blood test.
Shaynavyre, thanks for the advice re: OHSS. I am less paranoid about it now than I was a few days ago - I still have a sh*tload of follicles, 31 on right side and 21 on left side at yesterday's scan, but apart from some bloating (I look like I'm 4 months pregnant already!) I feel really fine, have had no pain or tummy upset or any of the other things they tell you to look for. Although there are a lot of follicles quite a lot of them are small, and my hormone levels are normal. I'm triggering tonight with Ovidrel so will keep a close eye on things, but for now I'm cautiously optimistic. Egg collection should happen on Saturday so at least I will have the weekend to take it easy & recover, and I can take Monday off work if I don't feel up to going.
How long have people generally taken off work after a pickup (assuming it all goes normally and no OHSS)?
Posted 09 October 2014 - 07:47 PM
Hi ladies thanks for the welcome.
Ever good luck with the scratch
shay how are you feeling now a bit better i hope. I had mild ohss my last stim cycle and we had a freeze all but the next month i got a bfp.
sestra good luck for sat hope you get lots of mature eggies but not too many that you get ohs. I took just a couple of days off work.
jo goodluck and fx for blood test.
happy when do u start bloods for your fet.
Hi and sorry to everyone i missed.
Posted 10 October 2014 - 06:40 AM
I took your advice Ladies - and chest X-Ray is clear. They want to repeat bloods on Saturday morning because my liver is growing unhappy. But I managed to pull the let me go home card, mainly because the ED doc remembered me from when she was an intern and I was a brand new grad nurse!
The chest pain is still there but it's only bad on deep breaths - no laughing or crying for me.
Posted 10 October 2014 - 10:21 AM
Looks like AF is here. I'm only 9dp4dt but today is 14 days since I ovulated so the timing would be right for AF
2 cycles in a row where I haven't even made it to the BT.
I don't know what to do now. We can't really afford to do another cycle this year but I'm going to be 39 in December and I'm terrified that if we wait until next year I'll run out of eggs. This year we've done 4 cycles (one for PGD testing) and I've had 1 mc and 2 BFN's and even with that ridiculously long down reg cycle where they put back a perfect embryo it still didn't work. It's been a year of nothing but heartache and debt.
I'm sorry to sound so bitter and I know there are people who have gone through much more than I have but I'm struggling to find a positive to anything at the moment.
Annie - Good luck with your BT. I hope you have better luck than me
Rain - Good luck with the move to Ireland. I hope the change brings you success
Ever, Happy and everyone else - Good luck with your cycles. I mean this in the nicest possible way when I say I hope none of you are here if/when I come back next year.
Posted 10 October 2014 - 10:49 AM
Oh Jo - I'm sorry! I know you were not getting your hopes up - but it still doesn't really make it any easier.
How are you safety net wise? That might mean the difference between another shot this year as opposed to full price in January?
Can you call your clinic's counsellor? Have a big cry and brain dump on the phone to him/her - she also might be able to pull some strings on the finance side.
The despair of spending so much money and having nothing to show for it is pretty immense - not that the money compares to the disappointment of no baby - but it merely compounds it.
Sending you enormous e-hugs.
Posted 10 October 2014 - 12:23 PM
Jo- NOOOOOOO!!! Oh love I am so sorry. Can you POAS anyway just to check?? Or are you sure? Ive been hanging out all week for some progress. I wouldn't rule out another cycle whilst you are still on the safety net- or there is always the clinic closer to where you live- they are much cheaper. I only went with our clinic because I thought they were better and I wanted success ASAP (based on no real scientific fact because I realise how deceiving the published website success stats are for these clinics!) but sometimes I think about the money we could have saved going elsewhere.
God it just isn't fair is it
Sestra- I take the day of pick up off and the day after (the day after I take off to travel home plus I figure there still may be anaesthetic in my system)- I have been pain free after both pick ups though so recovery has been fast.
Shay- have been following your ordeal- I hope you are on the mend- im glad you went and got a chest xray- I was panicking it was a PE or something but they would have picked that up if you had other signs.
Ive had a bit of a tough week- hence the lack of messages- my head is just all over the place. My HCG is still going up- and technically it is doubling within 72 hours now but only just- possibly taking slightly longer, I cracked the 1000 mark on Wednesday. I started spotting brown on Tuesday though and sorry TMI warning- soooo much old crinone was coming out- it was just hideous. I made a late night GP appointment because I thought I had an infection from the old crinone being retained too long or I was starting to miscarry. The GP wanted to scan me to exclude an ecoptic but meanwhile we didn't know my HCG so I had to get this scan done and theres nothing on the scan (well I had a verrrry junior sonographer and I am yet to actually find out the report of the scan because the GP I went to doesn't work for the rest of the week- fail.) I got my HCG done the day after with the result coming back at 1000 yesterday- so still too low to see anything on scan anyway and super low for my supposed number of weeks. No more spotting but not fantastic numbers so im waiting to finally speak to my doctor from the clinic today (as nice as the nurses are, this has been going on for weeks now and I would like to speak to my doctor to find out where to from here.) Well I think she is going to call. No news yet. I suspect we will stop luteal support and let nature take it one way or the other.
This whole thing is a total mindf*ck sometimes for all of us! (excuse my French, but seriously!) Sometimes we need to step back and realise how brave we are at dealing with it all.
Posted 10 October 2014 - 02:49 PM
Shay - thanks xxxx I know I didn't have much confidence for this one but I still stupidly built my hopes up and now it's just as devastating
We've well and truly reached the safety net, it's coming up with the money upfront that we can't do. We pay the whole amount and then about 5 days later we get the medicare payment. Even if we only paid the out of pocket bit first that's still a bit more than we have right now. I'll ask them about payment options when I call them but at this stage I think it'll be next year. I don't want the extra financial stress on top of everything else.
Glad to hear your chest xray was clear. I was also worried about a PE x
Annie - I'm sorry, you've had more drama than me this cycle but thanks - you're awesome as always the way you worry about everyone else xx I hope things resolve for you one way or another soon xx
I don't think I'd change clinics even though ours isn't the cheapest. Whenever ivf has come up in appointments with other dr's and even the tax man, the first clinic they mention is ours and they say they have the best technique, best facilities, best reputation etc etc. So it's either true or really, really good marketing. But I'm not unhappy with them and I love our Dr, I just wish I could be the one getting the good news for once.
Posted 10 October 2014 - 07:01 PM
Just wanted to say how sorry I am Jo So hard to keep going through the disappointment.
Annie I'm really sorry things are so stressful for you too. I hope things pick up.
Warning - woe is me coming up:
I've been AWOL as there was a death in the family. I got to sit through the funeral (same place where I had the service for both of my parents) whilst miscarrying and having my cousin going on about how they are about to start a family…That was super fun. Lucky my crazy aunt was there and she slipped me half a valium. Thank you crazy aunt.
Anyway - I'll probably bow out of this thread now until we start our new cycle, which won't be until after christmas most likely. Also found out that international health insurance does not cover ivf. ****ers. So I wish everyone well and lots of success and hopefully I won't recognise any names here when I get back.
Posted 11 October 2014 - 10:25 AM
Jo- I'm so sorry. I can't believe it hasn't worked for you. I don't know what else to say. It's just ****ed up. I wish I could give you a big hug and bring you some of those choc fruit balls.
In regards to the next cycle- can your clinic do a payment plan? Ours offered us one and we could pay in installments. My doctor also bulked billed us in the end (he made an error so it was the fair thing to do) but I know they have the ability to do that. This process drains you in so many ways- emotionally, mentally and then on top of it financially.
Shay- thank god your chest X-ray was ok. Hope you're feeling better!
Annie- I'm sorry this cycle has been a rollercoaster for you. Did you get to speak to your doctor. What a huge decision to make to stop the progesterone. Sending a hug your way also.
Rain- I cannot even begin to fathom what it must have been like for you at the funeral. That is like a punch in the heart from every angle. You are such a strong person to have gone through all of this. Given that insurance doesn't pay IVF will you still be moving overseas or will you do another cycle here?
There is so much sadness this week. This journey is heartbreaking. I honestly think we are such a bunch of strong woman, even on days where we don't feel strong, we bloody are. We are dealing with pain and grief but still get up, get dressed, go to work, see friends, go to doctors appointments, clean the house, make dinner etc. That to me is the definition of resilience. We bounce back after we get knocked down. So to everyone- let's keep bouncing- together.
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