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Ready Set Go Girls #250


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#26 waiteduntilnow

Posted 09 April 2015 - 04:52 PM

Thanks Shaynavyre I appreciate that!!!

#27 TCCC

Posted 09 April 2015 - 07:09 PM

Thanks guys. I had the shot and now my arm kills lol. You'd think I'd be used to needles and associated pain!

Good luck for tomorrow waited! Great to hear I have a buddy!

Shay, how are you going?

#28 EmbryoAgogo

Posted 10 April 2015 - 10:56 AM

Only - I can only whole heartedly echo what the others have said - this is the place to vent, to be honest, to say what you need to to process everything. I can't imagine what two ectopics have been like - I've just had one, and it was misdiagnosed for months, so I totally hear you on how long it takes them to listen and act on it. No wonder you're petrified of having another. Like others have said, trust your instincts but also know that the mind/body can be a mixed up thing.. I hope so much this has a happy ending for you. Big hugs from us all xxx

Waited - I hope EPU went smoothly this morning and you're recovering well xxx

trying - welcome :) and thanks for your kind words - it's always nice to know you're not alone huh?

TCCC - sorry I don't know re flu/transfer but I'd trust the nurses, best of luck for Monday! We'll be v close cycle buddies!

MrsJ/Shav - already replied to you on other boards but didn't want to leave you off :D

AFM - ET yesterday went well, and after them telling us our embryos weren't growing as fast as they would like, had a wonderful call from the embryologist this morning saying we had FOUR to test for PGD and potentially an untested one to freeze. So I'm giddy, it's felt like a long time since we had some good news about something (though I always feel it's a miracle to have a cycle at all when so many get cancelled), and I'm totally getting my hopes up!! But rather than trying to tell myself not to, I'm going to enjoy it - there's enough sad/crap times as part of this process, so I am going to make the most of this!

I'm going off the grid this weekend on my silent meditation retreat, so everyone have a lovely weekend battling the crazies - keep distracted and do nice things for yourselves y'all! xxx

#29 Shaynavyre

Posted 10 April 2015 - 11:26 AM

Waited - you're 100% right. And I love that you place PUPO in your sig. I'm such a negative nelly most of the time, but even expecting things to go poorly doesn't stop the pain if they do. I might get to be right - but it's just not really a payoff. I think it's much better to enjoy the happiness and burgeoning hope because if it has to leave, at least you haven't made yourself miserable an extra two weeks.

I was feeling pretty down after blanky blanky FReR yesterday - so thank you for your positivity. You've reminded me life is more fun that way.

#30 Shaynavyre

Posted 10 April 2015 - 11:34 AM

Ugh. After that post, I just opened the mail. And apparently I missed the first letter giving my the date and time of my of my next cancer check up from my gyn/onc, because I've just opened a super tersely worded one from the nurse co-ordinatior reminding me that I am overdue, and she has notified my GP!

Failure to attend.....

Lol. Ever heard of picking up a phone lady?

I'm finding the silver lining in this though, if I can time it all right, I'll get my kidney ultrasound scan at the 6 week mark if we are successful this time for an early sneak peak. And if we're not successful, I'll see if they will do an endo scratch at the same time they're doing the biopsy.

There's a chest X-ray in the mix too, so I can time that as a freebie OHSS fluid check.

(The manic and joking is my way of trying to dispel the crushing fear that arrives every time I see the stationery - shhhh it's working!)

Ah crap. No it's not.

#31 trying again

Posted 10 April 2015 - 11:40 AM

I have a question if that is ok...I am trying acupuncture cause I have heard good things about it with IVF.  My FS said that I was not to take any herbal medication but my acupuncture lady gave me some Chinese medicine...do you think this will be ok or should I go back to the FS and ask them as well?  My head is full and very confused.  I just want to make sure I do everything right.

#32 OnlyOneMore

Posted 10 April 2015 - 12:04 PM

Hi lovely ladies,

Firstly thank you so much for all the support - it helped immensely. I am feeling so much better (despite the fact that I still think I have an ectopic pregnancy). I think I was just in shock initially as I really hadn't anticipated the possibility of an ectopic during an ivf cycle. In hindsight, given my history, I should have realised that I was at a much higher risk than most.

Shaynavyre - I love your posts! You write so many things that resonate with me. Yes - f*** the Universe! I am fricken not done yet! I keep having this mental image of Gina Davis in that "last kiss goodnight" movie. Has anyone seen it? You know where she is dressed in her white nightie, tied to a torture wheel being dunked into freezing cold water? Well, she manages to get her hand free & explodes out of the water with her gun blazing, killing the guy who is torturing her... Anyway, for whatever reason, I keep picturing the imagine of her face as she does this - so determined. So angry. So strong. I want to be like that.

Anyhoo... Shaynavyre, thank you for also pointing out the opportunity this situation presents to get myself prepared for what might come. My DH and I have bizarrely found great comfort in being reminded that we are veterans when it comes to ectopics. We know the process of getting this diagnosed, experienced each of the treatment options before (expectant management, methotrexate and surgery) and know we are likely to avoid the stress of an emergency hospitalisation if we monitor the situation properly. We've even started to joke about it - I mean if this was a plot in a movie, you would think "as if!" We've survived three ectopics before - what's one more!

I have also put my current experience into perspective. Yes this is really sh*t - but it is still better than the alternative (giving up & watching all our friends/family breed around us). I'm going to have to grit my teeth and toughen up a bit. It has also occurred to me that I haven't really been trying to conceive this time for very long. It took us 2 years to get our DD (and many people try for longer than that!) Yes - we had thought that after all that effort, we'd found the "miracle receipe"... the right protocol, doctor and clinic that would make it easier the second time... But clearly things have changed over 2 years & we are back at the drawing board. I'm going to stop mixing our prior attempts to conceive with our current attempts... Which means that I am really only up to my third IVF cycle (which doesn't sound half as depressing as my 7th).

My beta yesterday was 33. Next test on Monday. Still getting occasional pains on the left side but no where near as bad as they were on Wednesday. Anyway, enough about me for now.

TCCC - I'm glad you got the Fluvax and certainly think it was the right decision. Wishing you all the best for your transfer on Monday.

Good luck also to Waitedtilnow - I'm dying to hear how your EPU today went. I hope it was a success and that the transfer on Monday goes well.

Also holding out to hear how Shaynavyrne and MrsJacko's HPTs go tomorrow. I will have my fingers crossed for you ladies!

Tryingreallyhard - welcome to our group. Good luck with your FET in May.

Embryoagogo - that is fantastic news!!!! Congratulations! I'm so thrilled for you. Definitely take some time off to relish in your sucess! Looking forward to hearing the outcome of the PGD testing in a few weeks.

Edited by OnlyOneMore, 10 April 2015 - 12:10 PM.


#33 OnlyOneMore

Posted 10 April 2015 - 12:18 PM

Oh god, in the time it took me to write my post, there were another five posts written. It's hard to keep up!

Trying - my understanding is that there really isn't any good safety (or efficacy) data around the use of Chinese medicines and most herbal products during pregnancy. I understand the desperation of trying anything that is purported to help but I think it needs to be balanced with the potential risk of doing harm. So my advice would be to check with your fertility specialist first. You are paying for their expertise after all.

Shaynavyne - I honestly can't imagine what you are going through with your cancer diagnosis. I don't really have much to say other than I hope the scans show nothing new & that I will be thinking of you. My understanding is that an endometrial scrape is unlikely to do harm if your doctor is experienced... Which I assume he probably is. All the best x

Edited by OnlyOneMore, 10 April 2015 - 12:26 PM.


#34 trying again

Posted 10 April 2015 - 12:58 PM

Thank you so much Only.  I have given my FS a call and they should call me back in the next 5 hours or so and I will ask them then.  I was not too sure and I did not want to do something that would hurt my chances this time around.  I don't think I did anything last time around either but it never hurt triple check. My DH and I slowly understanding what is happening now.

I think I am getting my head around all of the abbreviations now so my signature should nearly look right soon :) sorry if I have confused anyone.

#35 trying again

Posted 10 April 2015 - 02:57 PM

OK just to let you know.  My FS called back (in record time by the way) and said to stop taking what the acupuncturist gave me immediately...I still have 10 days before I start my nose spray and they said it should not interfere at all but do not take them as they do not know what is the Chinese medication at all.

Oh just to upset me a little bit more my acupuncturist was quite taken aback when I mentioned again last night that I was not to take any of the Chinese medication once I started my Fertility medication.  She was quite unhappy about it...I'm not good with unhappy people...I just want to make them happy but I want to make sure that this little embryo works so once again I am completely confused :(

Phew sorry for all the blurting.  My head is full. :(

#36 Jo.F

Posted 10 April 2015 - 05:37 PM

View PostEmbryoAgogo, on 10 April 2015 - 10:56 AM, said:


AFM - ET yesterday went well, and after them telling us our embryos weren't growing as fast as they would like, had a wonderful call from the embryologist this morning saying we had FOUR to test for PGD and potentially an untested one to freeze. So I'm giddy, it's felt like a long time since we had some good news about something (though I always feel it's a miracle to have a cycle at all when so many get cancelled), and I'm totally getting my hopes up!! But rather than trying to tell myself not to, I'm going to enjoy it - there's enough sad/crap times as part of this process, so I am going to make the most of this!


That's great news! i have everything crossed for you and I'll be stalking for updates :D

#37 Christmascarol

Posted 10 April 2015 - 07:33 PM

Tryingreallyhard it's so hard like everyone thinks there way is right.

#38 Shaynavyre

Posted 10 April 2015 - 09:04 PM

Jo - I was thinking of asking Mintie to make a brand new thread, wither in Specialised Pregnancy Support Groups or in here for all AC graduates - a place where we can all stay in touch where it doesn't feel weird or triggering to talk about pregnancies..... what do you think? As much as I'd like all of us to get BFP's at the same time, the reality is we're not all going to end up in the same DIG, so it could be a place to keep in touch? I don't know whether EB would go for it, and I am totally happy to have your wisdom and stalking in here! Was just thinking about a whole thread of hope and success.... it would be a nice place to pop in and think it can happen!

Trying - Stick with what your FS wants you to do for now, especially just before a stim cycle. If you do a natural fet, it might be okay, but you would need to know what was in them (and make sure there was no seaweed / kelp / iodine which can mess with your thyroid and therefore your cycle). The only person in all of this that needs to be happy is you! Get selfish woman! You're paying these people the big bucks, they can take their interprofessional rivalry and shove it.

Only - I'm really glad the pain has settled down. If it was your mind being nasty, I'm totally doing the I told you so dance (and you'll dance along with me, happy with a BFP!) Good luck for Monday, and good luck getting through the weekend thinking about Monday - Maybe rush of and join Embryo's silent retreat. Although that might make it all impossible.

TCCC & Waited - Best of luck for Monday!

AFM
I've calmed down now. Part of the freak-out was getting the errant child treatment, like I didn't show up on purpose. The other part was, that unlike most people with Cancer, I get to forget about it. There's no chemo/radio on the cards till after the hysterectomy. I have a big workup every 6 months, and then it's back to babymaking - and IVF is such a good distraction. It's like I have an internal dissociation about what the hysterectomy is for, because I can think/read about the surgery just fine. I know it's not going to kill me, the only question is whether we get a baby in before the cut.

And that's really where the fear is at - of the Professor saying "It's Time". Because I'm not ready to stop yet. Booked in for the 28th, which will be about EC time if we've not been successful this month. Which is great timing because an Embryo transfer (or feeling miserable because of OHSS) will be such a good results-wait distraction.

So - going to POAS tomorrow, and I will pretty much know then, as last month we were having faint positives by yesterday - and it will be 7dp3dt so FRER's should be accurate. Not feeling anything - no sickness, no nothing.

#39 Jo.F

Posted 10 April 2015 - 11:13 PM

View PostShaynavyre, on 10 April 2015 - 09:04 PM, said:

Jo - I was thinking of asking Mintie to make a brand new thread, wither in Specialised Pregnancy Support Groups or in here for all AC graduates - a place where we can all stay in touch where it doesn't feel weird or triggering to talk about pregnancies..... what do you think? As much as I'd like all of us to get BFP's at the same time, the reality is we're not all going to end up in the same DIG, so it could be a place to keep in touch? I don't know whether EB would go for it, and I am totally happy to have your wisdom and stalking in here! Was just thinking about a whole thread of hope and success.... it would be a nice place to pop in and think it can happen!


Shay - I think that's a great idea! I often read things in here that I want to comment on but I'm always wary that some people may get offended at me still being here since I'm not going through it anymore. I just want to be here for the other people still struggling. And it'd be great to see how the others that have had success are doing.

Good luck with your POAS tomorrow. 7dp3dt is still early so don't totally rule yourself out if it's negative :)

#40 Primadonna girl

Posted 11 April 2015 - 09:31 PM

Hi girls!

Well it's been awhile since I have written and I feel I need to take notes to write personals, so much is going on!

Only: I have been thinking of you and how unfair this all is, not only do we torture ourselves to get a bfp but then if we get it, we torture ourselves with our fears and doubts. It is horrible that you have had 3 ectopics but I am hoping that that pain was something else seeing as your FS said it was too early to feel ectopic. I really pray that you will get your very much loved miracle to reward you for your bravery.

Waited: hope you're doing well after EPU and you had good news from the clinic today!

Embryoagogo: so happy for you! It's always scary to wake up after EPU and see what you have but this time sounds promising for you!

Shay: you're a character! So much time obsessing over ivf and you have forgotten your very important check up! It's so hard dealing with multiple health problems and staying sane so I admire your humorous outlook and light hearted fun! Let us know how your poas went. I really hope you get a sticky bean before the big bad professor says time is up, it's tough having that added pressure.

Trying: we all try and research extra things we can do to increase our chance of success but we have to remember that our FS is the professional with experience that we are paying a fortune to and we have to trust them. I run all my supplements by my FS first because if a cycle is not successful I don't want him blaming a supplement I took. My FS is pretty alternative so he has said yes to Maca powder, acupuncture and royal jelly and he has me on melatonin and CoQ10. Like Shay said put yourself first, everyone else should be sensitive to our feelings, especially if we're paying them!

Mrsjacko: hope you got a positive on your poas today, if not keep on trying, we tend to test too early we're so eager!

Jo: advice from a veteran is always welcome! Please do share your thoughts, i'm sure the girls here will appreciate it as much as me!

AFM: no luck with my much wanted miracle natural bfp, so AF has come and brought with her a cold to make things fun! Argh! At least I will be starting a cycle after 2 months postponing it for health reasons, this stupid cold will not stop me this time! I'm so eager to get this cycle started, I feel like I have been preparing for way too long. So day 1 today for me and blood/ultrasound and stims start Monday. First time on Menopur so let's see how it goes...ohhhh let the rollercoaster ride begin!

#41 Shaynavyre

Posted 12 April 2015 - 04:36 PM

Just wanting to wish Waited and TCCC smooth transfers for tomorrow, and Primadonna a happy dildocam / first day of injections.

Nothing happening here, no AF, no positives.

#42 OnlyOneMore

Posted 12 April 2015 - 05:46 PM

Hi Shay- so sorry to hear that there haven't been any HPT positives yet but it is still early right? - 8dp3dt today? With my DD I didn't get a positive HPT until the day before my period was due (8dp5dt) and even then it was extremely faint & didn't show up till WAY after the recommended timeframe. So I think it is too soon to give up hope yet (although, as a pessimist, I acknowledge the hypocrisy of my advice). It seems I am a very optimistic person when it comes to OTHER people's cycles.

I hope you don't mind me asking you this question, but I was looking at your signature and was wondering whether you are (or have considered) taking Metformin? As I have mentioned before, I am no expert in PCOS (as I suffer from the opposite problem) however I have a few friends with PCOS who have taken Metformin throughout their first trimester & had successful outcomes. My understanding is that there is good evidence that Metformin can improve egg quality & reduce risk of miscarriage for women with PCOS. Anyway, I just thought that if you weren't already taking it, you might like to discuss it with your FS. I still have my fingers crossed for you & remain hopeful for your cycle.

As for me, I haven't had any pain today but will see what the beta test shows tomorrow & go from there. x

Edited by OnlyOneMore, 12 April 2015 - 05:50 PM.


#43 Shaynavyre

Posted 12 April 2015 - 06:42 PM

Oh Only! I completely forgot to wish you luck for the beta tomorrow! Let us know how it goes when you're up to it!

I'm actually seeing my GP with view to starting metformin on Tuesday. My GTT was borderline (insulin resistance) and I was reluctant to start it years back but I'm ready to go now

#44 TCCC

Posted 12 April 2015 - 08:51 PM

Shay you crack me up (dildocam lol). And thank you. Fingers crossed! As for you, perhaps no news is good news at 8days? Thinking of you.

Only, good luck with your beta!

Waited, will be thinking of you tomorrow! Fingers crossed it's our time!

#45 EmbryoAgogo

Posted 12 April 2015 - 08:51 PM

Ooh so much to catch up on!

Thank you as always for your cheer leading support Jo :D - and I second Shay's idea about an AC graduates board, the amount of time I google 'IVF success stories' just to hear the good news.. as well as selfishly hoping one day to graduate and still be able to hang out with you all. And there's extra things for us to think about too (like the progesterone supplements etc), and I'm also already thinking about what it'd be like to hang out with all the 'oh we weren't even really trying and we just fell pregnant right away and I'm so annoyed about putting on weight' pregnant ladies!! I'm working on my tolerance and judgements but I find all of that pretty hard to hear, and I'm sure I still would even if UTD!! I'm sure EB would support it if the posts are there. Yay do it do it.

Only - exactly, you have the skills to act on an ectopic way better than most health professionals! Ah, the skills you would least like to have in the world. I'm praying for a good beta for you tomorrow, we all are xxx

Shay - I can't imagine going through this with cancer hanging over you as well. An un-called for 'telling off' is also the last thing that you need, like you don't think it's important?! Don't forget what a brave and resilient woman you are - I know you think you're just doing what you have to do, but really take a moment to pat yourself on the back for being pretty damn awesome in the face of a lot of crap. Yay you - now stop peeing on sticks for a second and treat yourself to something delicious :D

Primadonna - Thank you and I second Shay's wishes for happy dildocamming :D and injecting for tomorrow. Bring on the drugs!

Trying - I know you've got your answer now, but you're not alone - i was happily taking my 'hormone regulating' herbs at the same time as injecting my 'hormone screwing' drugs, it only occurred to me on day 3 that they probably weren't a great combination. I didn't tell my FS (I knew what he'd say!!) and my results don't seem to have been affected, luckily. But boo to your acupuncturist making you feel bad - I have had so many different professionals, from naturopaths to chiropractors to endless doctors telling me THEY are the one true expert who knows how to fix me.. and yet here I am.. hope the time passes quickly for you before you start the nose spraying.

AFM, I'm happy and bouncy after my 2 days of silence, using every hippy trick in the book to keep this embie sticking in there. Though physically I'm feeling too well, I'd much prefer to feel run down, I still have the nagging feeling my body is rejecting embies. I've been having odd dreams about different 'foreign objects' in my body that I've been trying to get rid of (one night it was in my ear, the other night in my belly button)... but maybe I've gone full blown hippy and should stop obsessing :blink:

#46 Shaynavyre

Posted 12 April 2015 - 09:11 PM

View PostEmbryoAgogo, on 12 April 2015 - 08:51 PM, said:


Thank you as always for your cheer leading support Jo :D - and I second Shay's idea about an AC graduates board, the amount of time I google 'IVF success stories' just to hear the good news.. as well as selfishly hoping one day to graduate and still be able to hang out with you all. And there's extra things for us to think about too (like the progesterone supplements etc), and I'm also already thinking about what it'd be like to hang out with all the 'oh we weren't even really trying and we just fell pregnant right away and I'm so annoyed about putting on weight' pregnant ladies!! I'm working on my tolerance and judgements but I find all of that pretty hard to hear, and I'm sure I still would even if UTD!! I'm sure EB would support it if the posts are there. Yay do it do it.

On this - I have sent a PM to Mintie to ask. I did forget to mention how much I would probably want to punch the same group of women..... thanks for pointing that out! LOL

It's not that all pregnancies and babies aren't precious, but there is something a little different about little IVF embies turning into something else. I think there is more worry at the very least, and that's not something someone who 'sneezed and found themselves pregnant' is likely to understand.

#47 OnlyOneMore

Posted 12 April 2015 - 10:48 PM

Hey Shay, glad to hear that you are considering Metformin. Let us know what your GP decides.

Again I hope you don't mind me asking, but I have also been wondering about the MTHFR note in your signature. When you write "x2", does that mean you have two copies of one of the gene mutations (homozygous) or one copy of both the gene mutations (heterozygous)? What have you (or anyone else out there) been told about this finding? Are you taking anything for it?

I have been given conflicting advice from two different specialists about the significance of having the MTHFR mutations (I am heterozygous for both genes). A (extremely renowned) geneticist told me that it is usually a red herring and likely of be of little consequence unless you are homozygous for the C677T gene (in which case you can be of higher clotting risk, amongst other things). Conversely, a biochemist told me that even just having one copy of either gene could affect your folic acid metabolism & potentially place you at higher risk of clots/miscarriage etc. There is a "mthfrsupportaustralia" website that supports the latter theory.

I'm not really sure what to think. My FS decided to take a conservative approach & prescribe me clexane (a blood thinner) after my transfers on the basis that it can't hurt (apart from the injection which bloody kills!) My understanding is that there is also some literature that suggests clexane may assist with embryo implantation & maybe even reduce autoimmune responses.

Anyway, I was just interested in finding out what people think (or have been told) about the MTHFR issue.

#48 Shaynavyre

Posted 13 April 2015 - 08:35 AM

Hi Only, you're correct, I was referring to heterozygous mutations, in the shortest short hand possible! I actually don't know the name of the genes my mutations are on, but my understanding is I have one of each, on opposite sides, which is meant to be bad.

When it was first found, my hemocystine was ridiculously high, and I had weekly B12 injections for a few months to bring it down, and 10mg of folate a day. After three months, it was okay, so I'm just on 5mg of folate now. Haven't been on clexane, just 100mg asprin / day.

I was told it was likely the cause of our recurrent miscarriages prior to IVF.

I recently read an article about using folinic acid as opposed to folate itself as it's more bio-available, but I haven't investigated that further.


Such a  big day today for so many ladies!!! Eagerly awaiting all the updates!

#49 Primadonna girl

Posted 13 April 2015 - 10:04 AM

The least exciting update first, me! No dildocam unfortunately, it sounded so kinky and fun but I had a bellycam instead which found 7 follicles ready to roll! I'm happy with that, so just waiting for my blood results to start jabbing.

Hope the other ladies getting results and transfers today are doing well! Lots of luck to all!

#50 Primadonna girl

Posted 13 April 2015 - 10:15 AM

Shay: I have read that folate in it's natural form of tetrahydrofolate is the most easily absorbed as folic acid is a chemical that must be treated in the liver first. My prenatal is Thorne Research Basic Prenatal which contains the most bioavailable forms of each supplement making it quite a bit more expensive than other brands. Thorne also sells 5-MTHF so you might want to look into it.


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