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SCC skin cancer stage IV experiences - updated it is back

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#26 Mrs Zee

Posted 20 February 2019 - 08:40 AM

I'm really sorry VVA. I'm hoping for the best possible outcome. Xx

#27 Karlee99

Posted 20 February 2019 - 11:55 AM

View PostVeritas Vinum Arte, on 20 February 2019 - 08:30 AM, said:

**** cancer!


I'm so sorry your Dad is going through this and you too xxx

#28 Veritas Vinum Arte

Posted 20 February 2019 - 12:46 PM

ETA this is where being an introvert without close friends sux.

Edited by Veritas Vinum Arte, 20 February 2019 - 08:19 PM.

#29 Twinmum+2

Posted 20 February 2019 - 01:31 PM

I'm so sorry this has happened to your Dad.  

I think at this stage if that were me I would be thinking very carefully about palliative options rather than curative ones.  And if your Dad is ok with and has the resources available for a trip to Switzerland then he should be allowed to do that too.  

I hope your family can support each other in this really crappy time xxx

#30 CrankyM

Posted 20 February 2019 - 01:41 PM

I’m so sorry VVA. Cancer ****en sucks. More then sucks actually. And yes if that’s what it is looking like has he had a chance to look at the Pallative options? He’s around the same age as my FIL for has a similar cancer and has stated if it comes back that’s it, it pallative for him :(

#31 froglett

Posted 20 February 2019 - 02:03 PM

Oh bugger. Cancer can just **** right off. I'm so sorry OP.

#32 Chicken Pie

Posted 22 February 2019 - 02:25 PM

I’m really sorry OP that’s heartbreaking

#33 Veritas Vinum Arte

Posted 23 August 2019 - 06:39 PM

SCC Cancer is in the temporal bone and possibly the brain.

Mass now 2cm. Dad has refused surgery (as cut and remove bone and reinsert a 3D printed bone and possibly remove some of the brain - very risky surgery. His last one was 15hrs and he nearly died, this would be worse). Luckily they have said he can do Chemo again (he responded well to this and did not get sick and his hair actually regrew while doing chemo - hair had fallen out from radiotherapy).

So yes quality of life.

#34 BECZ

Posted 23 August 2019 - 06:44 PM

Oh sh*t! So sorry to hear that VVA!

#35 Veritas Vinum Arte

Posted 23 August 2019 - 06:49 PM

Yeah. Luckily the current news isn’t unexpected as this was suggested in February (very badly) by a surgeon when mum wasn’t there, and Dad went for a second opinion and at that stage MRI wasn’t showing much. Second opinion said to re-assess 3m later, and this is result... it is now visible 2cm bit.

So fingers crossed Chemo does its wonders again and he gets into an immunotherapy trial.

#36 Lucrezia Bauble

Posted 23 August 2019 - 06:50 PM

i so sorry VVA - **** cancer  

#37 just roses

Posted 23 August 2019 - 07:15 PM

I'm really sorry, VVA. What awful news. I really hope your dad responds well to the chemo and that it keeps the cancer in check for a long, long time.

#38 BECZ

Posted 23 August 2019 - 07:21 PM

View PostVeritas Vinum Arte, on 23 August 2019 - 06:49 PM, said:

So fingers crossed Chemo does its wonders again and he gets into an immunotherapy trial.

Fingers crossed.

#39 Soontobegran

Posted 23 August 2019 - 07:54 PM

Wishing him so much luck.

#40 FuzzyChocolateToes

Posted 24 August 2019 - 12:31 AM

Sorry to hear this. Hope the chemo goes well for him.

#41 Chicken Pie

Posted 03 September 2019 - 02:52 PM

Sorry to year VVA, fingers crossed treatment goes well

#42 Veritas Vinum Arte

Posted 01 April 2020 - 01:13 PM

Further update:

Chemotherapy did not work, even upping to double and triple chemotherapy it was still growing in his jaw and into brain.

He has been allowed to join an immunotherapy trial on a compassionate basis so fingers crossed for him, but scared as that involves going to major hospital for blood tests and infusion.... not really ideal with a stuffed immune system at present; but we are at damned is we do, damned if we don’t as at present either cancer in brain will kill him or corona will.

Bummed that although we have been self isolating at home*we had hoped to see him at Easter, but now with new govt changes that won’t be happening either. I just hope we will get to see him again one day.

*self isolating so we could see him without fear of transferring covid - we had been in isolation long before govt crackdown.

Edited by Veritas Vinum Arte, 01 April 2020 - 01:16 PM.

#43 Mrs Zee

Posted 01 April 2020 - 04:51 PM

Such awful timing that will be adding so much stress to you all at an already stressful time. I hope the trial is successful. I'm thinking of you.

#44 MooGuru

Posted 01 April 2020 - 07:31 PM

I can't imagine how much worse this must be to deal with at this time. **** cancer.

#45 Veritas Vinum Arte

Posted 01 April 2020 - 08:17 PM

I have been trying to look on the bright side that we have had nearly 20 more years with him than we had originally expected (due to CLL), but am bummed about Easter.

#46 Caitlin Happymeal

Posted 02 April 2020 - 07:25 AM

I'm so sorry. It's a really challenging time in the oncology world. I hate having to tell my patients to stay away from everyone and that they can't bring their support person to their treatment.

If he's going for an Immunotherapy infusion, could you and other family members do a Messenger video call to "be with" him? It's totally not the same and I'm not for a second suggesting it even comes close to filling the gap of not being able to be with him, but might help him get through infusion day if he can chat with his family?

I'm sorry about Easter. It's one big cluster f this year, isn't it. I think anyone in your position would be bummed. 2020 needs to go in the bin. Can we have a do-over?

#47 Soontobegran

Posted 02 April 2020 - 07:40 AM

That is awful news, as if this time is not stressful enough. Sending every good luck to your entire family.

#48 mumto4boys

Posted 06 April 2020 - 12:17 AM

I'm sorry to hear that you dad is still going through so much VVA.

I know that some of the drug trials are having great success though so I will keep everything crossed that your dad is soon one of these people.

Sending you some love for your whole family.

By the way, if you haven't already done so, connect with The Melanoma Man on facebook.

#49 SM3s Fight Song

Posted 06 April 2020 - 06:07 AM

I'm so sorry Veritas Vinum Arte.  It's so unfair that you're all going through this and you can't even see him.  This year is so ****ed. I hope the trial helps.

#50 Veritas Vinum Arte

Posted 08 April 2020 - 02:49 PM

First infusion no early side effects (was a 2hrs information session on what to look out for in the first 24hrs), so fingers crossed he continues with no side effects and it works.

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