I have been suffering from what my GP thought was IBS and stress. To cut a long story straight lots of silly test taken over a year and I just learned to live with the pain until it got so bad that I demanded a colonoscopy.
Woke from colonoscopy to be told found a tumor will need an operation to remove part of my bowel. Fast forward two days no mention of the C word. Have a CatScan and I asked the lady why I was there and she was the first person to tell me it was "To see if the cancer had spread". She wished my good luck on my cancer journey. Then everything was rushed through told the next day that I had moderate bowel cancer.
My world came crashing down. I have one child conceived from IVF who is high functioning Autistic he is my world. And topic of many EB conversations over the years.
Had my 2/3 rd of Colon removed on the 13th October. Told a couple of days later I was :Now cancer free" from my surgeon even though the lymph nodes hadnt come back. 2 days later I am being sat down to be told that there was cancer in 9 of the 30 nodes they took out. No problem just do mop up chemo.
I was out of hospital one day and had to go back due to infection. They did a catscan and found enlarged nodes on the back abdomen. I was told it is probably due to the surgery not to worry.
After 1st Chemo I ended up back in hospital due to chest pains. They did another Cat scan and the nodes hadn't gone down but also found enlaged nodes in my neck. Probably due to having my chemo port put in. Had a PET SCAN was then told I needed to have biopsy of my nodes in neck. On the 23/12 I was told I am no longer Stage 3C and that I am now incurable Stage 4.
My world has fallen apart..... All my dreams and my son. sh*t I can;t look at him without crying. I lost my good friend to this sh*t cancer nearly 3 years ago she was only 36 with two young children. And here I sit. I would sit on the toilet I knew I had all the signs I could hear her voice telling me to get a second opinon.
I know I have an excellent Oncologist. I know I want to beat this cancer or I wont let it beat me. I would love to hear any good Stage 4 stories. I feel positive that modern medicine will keep me around for a while. I feel great I actually feel better (when not doing chemo) better with no pain like the last 12 mths.
Thank you for reading my story. Sorry if its all over the place. There has been so much more that happened in between lol.
Edited by mum2brodie, 11 January 2016 - 10:25 PM.