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Have to stay within 30min of hospital..UPDATED..


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#26 SkeptiHandsOnMum

Posted 06 May 2019 - 08:03 PM

View Postsuline, on 06 May 2019 - 06:50 PM, said:

Yes we are in WA and were told to stay metro. A lot of smaller country hospitals do not have 24/7 paediatric anaesthetic/ ent cover, and a post tonsillectomy’ bleed can be catastrophic.
Absolutely. You would only need to see it once to understand the need to be close. The most recent one that I saw was 12 days post op and was life threatening - the child was in theatre within 30 minutes of the bleed starting.

View Postkiwimum2b, on 06 May 2019 - 07:22 PM, said:

Her father is a St. John’s paramedic!
Then he probably should support the staying close.

View PostSweet.Pea, on 06 May 2019 - 07:26 PM, said:

I think I would risk it.
Risking it because he is a paramedic is a misguided option. A paramedic has NO capacity to stop a catastrophic ENT bleed.

#27 kiwimum2b

Posted 06 May 2019 - 08:07 PM

View PostChaotic Pogo, on 06 May 2019 - 08:00 PM, said:



So if you have surgery at this hospital, you have to move to Perth for 2 weeks?  Something doesn’t sound right, or do they not do paed?

Yes we have to move to Perth for 2 weeks.
Yes the other 3 hospitals do peads, they just don’t have a ent specialist on call 24/7 which is what they are saying is the issue.
I could go to my nearest hospital and get anything done there. They even do this particular operation out of them. The sticking point is they no longer have the ent specialist on call for the hospitals south of Perth..only IN Perth, so yes they do expect you to move to the city for 2 weeks. They said I could try Ronald McDonald house but they won’t take the other children. Then told me I should rent a house in the city.

#28 MarciaB

Posted 06 May 2019 - 08:12 PM

This sounds a bit defeatist, but is there any chance you could ask your specialist to just do grommets and adenoids ( my dd had this and no stipulation about staying close to hospital as obviously not the same risk) and defer the tonsillectomy until a later date?

Sorry it is so hard. I have never heard of this before, how on earth do most people manage?

#29 EsmeLennox

Posted 06 May 2019 - 08:14 PM

Surely 30 minutes from Rockingham should be ok? Don’t they treat peadiatrics there? They have a 24/7 ED.

#30 kiwimum2b

Posted 06 May 2019 - 08:14 PM

View PostMarciaB, on 06 May 2019 - 08:12 PM, said:

This sounds a bit defeatist, but is there any chance you could ask your specialist to just do grommets and adenoids ( my dd had this and no stipulation about staying close to hospital as obviously not the same risk) and defer the tonsillectomy until a later date?

Sorry it is so hard. I have never heard of this before, how on earth do most people manage?

I just had this thought myself!!!!! Great minds :)
Thank you for your post though as I think it may be a great compromise.

#31 Jenflea

Posted 06 May 2019 - 08:15 PM

Is there a Ronald McDonald's house you can all stay in?
Someone who can stay in your home with the other kids?

Can her dad take the time off work(or one week and you take the other)? so only 2 need to stay in a serviced apartment or something.

Accommodating 2 is easier than 7!

#32 kiwimum2b

Posted 06 May 2019 - 08:15 PM

View PostEsmeLennox, on 06 May 2019 - 08:14 PM, said:

Surely 30 minutes from Rockingham should be ok? Don’t they treat peadiatrics there? They have a 24/7 ED.

I could stay 5 min from Rockingham and that was shut down too. Again, the ent specialist ON CALL is the sticking point.

#33 EsmeLennox

Posted 06 May 2019 - 08:16 PM

I live less than 20km from PCH...in peak traffic I wouldn’t be getting there in under 30 minutes. Nor would many places in the metro area.

View Postkiwimum2b, on 06 May 2019 - 08:15 PM, said:



I could stay 5 min from Rockingham and that was shut down too. Again, the ent specialist ON CALL is the sticking point.

That’s absurd.

#34 DM. 2012

Posted 06 May 2019 - 08:25 PM

There is short term accomodation near a lot of hospitals. Would the hospital’s website or main reception line be able to advise you of where they are? You might be able to find some similar short term accomodation in the suburbs. These might be cheaper than somewhere in the city.

#35 MooGuru

Posted 06 May 2019 - 08:27 PM

So what happens to the kids that have the op at the other hospitals do they need to move to the city post op too?

#36 Chaotic Pogo

Posted 06 May 2019 - 08:35 PM

View PostMooGuru, on 06 May 2019 - 08:27 PM, said:

So what happens to the kids that have the op at the other hospitals do they need to move to the city post op too?

Yes, that’s what I was trying to say too.  Do they really make kids that have the op at the nearer hospital then move to Perth?  I’m not disputing that it’s really serious if there is an issue, but what about those other kids?

#37 kiwimum2b

Posted 06 May 2019 - 08:36 PM

View PostMooGuru, on 06 May 2019 - 08:27 PM, said:

So what happens to the kids that have the op at the other hospitals do they need to move to the city post op too?

Yes.
There was an option of having the surgery in Rockingham, but it is not a viable option for post op apparently. Like I said, baffling.

I am going to speak to everyone tomorrow and see if taking the tonsillectomy off the list and just get adenoids and grommets done. If the issue is post tonsillectomy bleed, then perhaps taking that away will ease the restrictions.


#38 Paddlepop

Posted 06 May 2019 - 08:54 PM

OP: Please don't risk it. You need to be near a hospital that can handle a post-op bleed. It's scary when it happens. My DH had his tonsils removed a few years ago and had a post-op bleed at about 10 days. I had to call an ambulance at 3am. He had had the operation done privately so I asked the ambulance if DH could be taken to that private hospital because post-op emergency surgery was covered in the operation costs. They got approval to take him there, and there was already an ENT surgeon and anaesthetist on the way to the hospital to fix another tonsil post-op bleed for another patient. DH was in worse shape than the other patient and was taken into theatre within minutes of arriving at hospital. A few hours later and he was home again.

DH said it was scary to feel the blood running down his throat so quickly, and he was starting to vomit up blood in the ambulance. That's when they pulled the ambulance over and put a cannula in place so they could deal with an emergency situation more easily. I can't imagine how scary it would be for a child, or as the parent of a child. I was scared enough, even though I knew that he was in good hands with the ambulance and hospital. I stayed at home with our toddler DD and was busy making sure she was calm and able to sleep. It was a relief to have him come home within hours and looking so much healthier.

I agree that it was bad form of the hospital to not tell you sooner. They should have told you straight away.

#39 mayahlb

Posted 06 May 2019 - 09:01 PM

View PostMooGuru, on 06 May 2019 - 08:27 PM, said:

So what happens to the kids that have the op at the other hospitals do they need to move to the city post op too?

If if you live where I do, the surgeons are required to hang around for another 2 weeks after the last tonsillectomy (they usually do tonsils the first week only and then grommets/adenoids only the following two weeks). We were not told the 30 mins rules, as we likely wouldn’t have passed as we live out of town.

It doesn’t sound like it has been thought out very well. I mean how many families can they make stay in the CBD and even in peak travel would they actually get their within 30mins?

#40 MooGuru

Posted 06 May 2019 - 09:10 PM

What a crazy system?! I wonder how much money they've saved not paying the ENTs overtime for being on call and how much that has cost families instead.

#41 SkeptiHandsOnMum

Posted 06 May 2019 - 09:17 PM

There is a legal element also. If a person was to return home with their child, out of proximity to a hospital where paediatric ENT surgery was not possible within 30 minutes (remembering this requires a range of specialist paediatric staff and equipment, not just the ENT), and the child died from a bleed, what do you think that the uproar and legal action would focus on? I can tell you that it would be "they let me return home to a place where my child could not be saved".

#42 EsmeLennox

Posted 06 May 2019 - 09:23 PM

Rockingham Hospital is a large hospital with a paediatric facility. I find it exceedingly unlikely that it could not handle post-operative care or complications for a tonsillectomy. They do ear, nose and throat surgical procedures. ENT on call 24/7 or not, I don’t believe what they are saying is remotely reasonable and I’d be very interested to know what patients who have their tonsils removed actually at Rockingham get told. Or any regional hospital where they complete such surgeries.

There’s something wrong with what you’re being told,I reckon.

Edited by EsmeLennox, 06 May 2019 - 09:31 PM.


#43 AdelTwins

Posted 06 May 2019 - 09:24 PM

Have you looked at caravan parks near the hospital? They often have 2 bedroom cabins that would be much cheaper than an apartment.

#44 EsmeLennox

Posted 06 May 2019 - 09:30 PM

There aren’t really any caravan parks near PCH.



#45 kiwimum2b

Posted 06 May 2019 - 09:40 PM

View PostEsmeLennox, on 06 May 2019 - 09:23 PM, said:

Rockingham Hospital is a large hospital with a paediatric facility. I find it exceedingly unlikely that it could not handle post-operative care or complications for a tonsillectomy. They do ear, nose and throat surgical procedures. ENT on call 24/7 or not, I don’t believe what they are saying is remotely reasonable and I’d be very interested to know what patients who have their tonsils removed actually at Rockingham get told. Or any regional hospital where they complete such surgeries.

There’s something wrong with what you’re being told,I reckon.

All of this!!!!!!
This is why I’m questioning it. My aunt lives 5min away from the hospital, and I know they do ENT at Rockingham as that was one of the options we had for a referral (the reason I didn’t go was their waitlist was even worse, and I couldn’t get the 1st specialist appointment until 4mths after referral)

I am defiantly going to question it again tomorrow, but was vehemently told that it was not an acceptable option.
I’m also going to ask if not taking her tonsils will allow us to return home and maybe do them later (her major issues are with the grommets and adenoids anyway)

But yes, I believe Rockingham is more than capable. They even told me that yes they do the operations there, but the fact there’s no ent specialist on call 24/7 was the reason it wasn’t an acceptable option.

#46 Soontobegran

Posted 06 May 2019 - 09:40 PM

View PostEsmeLennox, on 06 May 2019 - 09:23 PM, said:

Rockingham Hospital is a large hospital with a paediatric facility. I find it exceedingly unlikely that it could not handle post-operative care or complications for a tonsillectomy. They do ear, nose and throat surgical procedures. ENT on call 24/7 or not, I don’t believe what they are saying is remotely reasonable and I’d be very interested to know what patients who have their tonsils removed actually at Rockingham get told. Or any regional hospital where they complete such surgeries.

There’s something wrong with what you’re being told,I reckon.

I agree with this.
There are many regional hospitals who routinely do paediatric tonsillectomies that do not require their patients to travel to the closest CBD post op as they have the ENT either in house or on call, they have a 24 hour ED, they have  24 hour theatre access and a blood bank.
I would be asking the question again OP.

It certainly does not happen in Melbourne that all tonsillectomy patients have them done in a CBD hospital nor do they pack up and live there for 2 weeks.

I do 100% support the fact that you must have emergency access post op though.

If they do ENT there they must have someone on call for emergency situations.  It is not up for discussion, it is a requirement. There may not be actually in house 24/7 but there will be someone who can be called in well within the 30 minutes they are quoting you.

Edited by Soontobegran, 06 May 2019 - 09:43 PM.


#47 Bearynice

Posted 06 May 2019 - 09:41 PM

If that is the rule surely they have some accomodation nearby to support families
I understand the need for being to be close to the hospital, but I’m thinking they should have some more info to assist you

#48 just roses

Posted 06 May 2019 - 09:44 PM

OP, I'd speak to the hospital social worker and find out if there are any supports in place for people who need assistance. As a PP said, Ronald McDonald House might be an option. When my mum was doing radiation in the city (from a regional town) she was eligible for subsidised accommodation. There was a motel right near the hospital that offered basic rooms cheaply for people in just this sort of situation. They also offered low cost meals and communal facilities like a kitchen to keep costs down for people.

As inconvenient as this policy is, I think it exists for a good reason. I know a couple people who have had post-op bleeds from this operation. It's relatively common and can be catastrophic. One friend feared she would die and probably with good reason. She was rushed to hospital in an ambulance, straight into theatre and had to have a blood transfusion as she'd lost so much blood.

Can your partner not stay with the kids while you stay with your daughter in the city? Even look into the cost of Airbnbs. A room only deal could be pretty cheap.

#49 kiwimum2b

Posted 06 May 2019 - 09:48 PM

View PostBearynice, on 06 May 2019 - 09:41 PM, said:

If that is the rule surely they have some accomodation nearby to support families
I understand the need for being to be close to the hospital, but I’m thinking they should have some more info to assist you

As a pp said, if you live 100km+ away, yes there is help for accommodation.
I was told to look at Ronald McDonald house but obviously can’t take the other kids.

I think if I had warning I could come up with options, partner request time off, maybe sort things for the other kids, but seeing as we were called from being on the cancellation list, it’s fast tracked things - which is amazing for her and 6months quicker than we were told it would be, so a decision needs to be found tomorrow or they will cancel it all.

#50 Pink Flamingo

Posted 06 May 2019 - 09:50 PM

I had ENT surgery privately 10 years ago. I was told not to leave the metro area for 3 weeks. There was no requirement to go back to the hospital I had the surgery at, just to be able to get to a hospital if I had a bleed. I would consider questioning the decision again.
After a friends child recently had a post op bleed from a tonsillectomy I would never risk being too far away from help.




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