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Platelets taking longer to stick - what the heck does this even mean?

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#1 yummymummycakes

Posted 04 September 2019 - 10:45 AM

DD 12 was taken to ED last week due to some major bruising that we were

A: unsure how it occurred
B: wasnt sure if there was  a potential fracture etc

DD 12 is severely ASD, ADHD, ID & non verbal with an extremely high pain threshold.

They decided to do some blood tests after informing DHS and one of them has come back that her platelets are taking longer to stick - they have emailed a specialist to decide if they need to do more tests.

Does anyone here have any idea about what they are talking about as they wouldnt explain much to me and now I am sh*tting myself as they want her back in tomorrow.

They keep asking about nose bleeds, gum bleeds, bleeding from bowels (I dont have any idea as she is toilet trained and wont let me near her when she is on the toilet)

#2 BusbyWilkes

Posted 04 September 2019 - 11:14 AM

I assume they are talking about the ime it takes for her blood to clot. There are several (probably more!) types of slow clotting blood disorders.

This would explain the bruising (the blood is slow to clot so bruise is out of proportion to the injury) and why they are asking about blood noses, bleeding gums etc.

They are mandatory reporters, so letting DHS know is just protocol for unexplained injuries. As she is vulnerable due to her disability, this is especially important. It doesn't mean you have done anything wrong.

A haematologist is a blood specialist. If they refer her to one, it's usually to find out what specific issue she has. Once they know that, appropriate precautions can be taken. This is particularly important to have documented in case she requires surgery (they give medicine via a drip to help with the clotting before the surgery).

It sounds scary, especially when your DD can't let you know how she is feeling.

#3 yummymummycakes

Posted 04 September 2019 - 12:36 PM

View PostBusbyWilkes, on 04 September 2019 - 11:14 AM, said:

They are mandatory reporters, so letting DHS know is just protocol for unexplained injuries. As she is vulnerable due to her disability, this is especially important. It doesn't mean you have done anything wrong.

I dont have an issue with that and infact they brought that up before even looking at medical issues. I told the ED Dr he can call them - but dont ignore a medical possibility as I know I havent done anything wrong and I have complete faith in her teachers etc.

In fact I have spoken with her school today and DHS have already been in contact with them. The school informed me today that her behaviour at school has been a struggle but unfortunately this wasnt conveyed to me until today and it appears to be due to pain with an issue that she seems to have that I put in another post in another section

Hopefully with everyone working together we can come up with a plan to help this young lady

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