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SN wins thread

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#76 Bethlehem Babe

Posted 08 December 2019 - 09:23 PM

Youngest’s teacher spoke to me generally and said he was going well, but then told me about how at assembly he started a thing where they do big thumbs up silently for their friends in the class who gets an award and now the whole class does it for all their members and him when he got his.

I saw it in action the other day, doing it for his brother, and I’m so proud that this is his positive influence to his school community.

#77 123Tree

Posted 08 December 2019 - 09:36 PM

View Postbubskitkat, on 08 December 2019 - 06:28 PM, said:

NDIS plan was approved for DS with his therapy & community access times ie respite for me


#78 bubskitkat

Posted 10 December 2019 - 08:12 PM

Today I was told that ds will be going into a mainstream school but in a satellite classroom with kids with additional needs.

It’s taken him 6 years to get this far. He’s now 10. This is huge as it shows that the therapy is working.

It’s taken a large village of helpers to reach this! I appreciate what each and everyone of them has done to help him.

#79 Hypnic Jerk

Posted 11 December 2019 - 07:52 PM

Kids did their first Parkrun at the weekend.  DS did 5km in 26min 40s.  Slightly above the 50% mark for his age.

#80 Prancer is coming

Posted 11 December 2019 - 10:19 PM

Hypnic Jerk said:

1576057934[/url]' post='18526535']
Kids did their first Parkrun at the weekend.  DS did 5km in 26min 40s.  Slightly above the 50% mark for his age.

That is fantastic!  We love park run here - free, no commitment and quite addictive to try and beat your last time.  My son’s pb is only a second or two faster than your boy.  He is 7.  I figure i may as well use his hyperactivity for good!

Edited by Prancer is coming, 11 December 2019 - 10:19 PM.

#81 PhillipaCrawford

Posted 12 December 2019 - 05:49 AM

As a teacher I held our preschool Christmas concert last night.

My little one with Autism - SDS next year- walked out with all the others in front of well over 100 people (we had him holding big sis's hand at that stage) , ran excitedly to mum for a hello cuddle and then rejoined all his class and proceeded to join in with everything. Big smiles, lots of laughing and excited comments.

He was amazing and I was so happy that mum had been brave enough to be prepared to give it a try and that we had been able to find a way to make him feel confident enough to participate.

#82 Charli73

Posted 14 December 2019 - 08:03 AM

Got our school report today and happy to say it was lovely to read. No more of those comments like “doesn’t respect others learning”...

DS also brought home a book which the kids made at school, where they said what they liked about each other and drew a picture. It was so lovely reading how others saw my child and was heartwarming to read.
What a lovely idea!

NDIS review scheduled for Jan..

Edited by Charli73, 14 December 2019 - 08:08 AM.

#83 OceanTwentyFour

Posted 14 December 2019 - 10:28 AM

We moved DS15 to an Education Support school at the beginning of the year. We weren’t sure it was the right decision but after his aquired brain injury his school didn’t know what to do with him, he had no independence there and they would only let him attend part time for electives.
DS went straight back into full time school at the start of the year at his new school and was awarded a merit certificate at the end of year assembly. So proud of him!
It was definitely the right move, he has come a long way this year.

Edited by OceanTwentyFour, 14 December 2019 - 10:29 AM.

#84 bubskitkat

Posted 14 December 2019 - 11:44 AM

My DS was confirmed as going into a satellite room in mainstream next year.

His school report was excellent.

Next year he is going to do a Saturday fortnight activity funded by ndis

#85 blimkybill

Posted 14 December 2019 - 04:42 PM

 bubskitkat, on 14 December 2019 - 11:44 AM, said:

My DS was confirmed as going into a satellite room in mainstream next year.

His school report was excellent.

Next year he is going to do a Saturday fortnight activity funded by ndis
So glad things are on the up for you and your son, after you have been through so much.

#86 AsperHacker

Posted 14 December 2019 - 07:43 PM

Do adult wins count? I've just done 14 days straight of work in retail (don't ask, it was an accident, I'm going back to my day job after NY) and I have been entirely autistic with no masking. And I'm not rocking in a corner. 14 days to go minus Xmas day. Being openly and completely autistic in a public facing, pretty full on role, is as good as I thought it would be! (I haven't worked outside home in 15 years, last time I did I didn't even know I was autistic and had a mask of steel).

#87 123Tree

Posted 15 December 2019 - 09:12 PM

DS1 is in grade five has been nominated for Boy school captain. He made a speech in front of the student body (along with the other nominees) without freaking out.

#88 AsperHacker

Posted 23 December 2019 - 11:06 PM

Sorry to encroach on your thread again, but I had another massive win tonight. I lost my sh*t in a wonderfully autistic and non meldowny way.

I've now done 23 days straight, just finished a 13 hour day. And my mask has pretty much stayed down the entire time. But, every one of those days has been spent micromanaging an *actual* employee as opposed to a Christmas casual like me, who is extremely fecking useless.

Today it came to a head. I'm literally doing this for the love of Christmas retail, the enjoyment of being in a team and managing a store. I'm being paid peanuts but I'm between autistic friendly contracts.

I called out the bosses bullsh*t today. I was entirely myself, I stuck to my guns, I didn't meltdown, shutdown or get overwhelmed. I am so bloody proud of myself. I'm not working tomorrow and I might not have *a job* for the 4 days after Xmas I was expecting. But, I did good by me and my kid (who I roped in to doing some shifts - she was freaking amazing when sh*t hit the fan).
Autistic's CAN and WILL do well when we believe in ourselves, have support and embrace our autism.

#89 smiley~kylie

Posted 24 December 2019 - 07:22 AM

We received my sons NDIS package in May. I was VERY happy with it, huge amount of funding and we got everything he needs. He was funded for a support coordinator and a specialist support coordinator (he’s pretty complex) We found a great support coordinator straight away but could not find a specialist anywhere. He needs one to help with finding supported disability accomodation. In October NDIS called and said because of all the trouble they were going to do a plan review. I got the plan yesterday....it’s for a lot more than the original plan! I’m over the moon.

now if I could just have the same luck with my other sons plan.....

#90 Chaotic Pogo

Posted 24 December 2019 - 11:51 AM

AH, you are not encroaching.

Well done!

#91 yummymummycakes

Posted 28 December 2019 - 01:55 PM

seems appropriate to put this here:

We had the house decorated for Christmas! Tinsel, lights, baubles - you name it I had it,

NOT one meltdown this year! No tears or tantrums, no breaking ornaments.

Monique coped so well with it all - such a proud mum over here!

#92 Silverstreak

Posted 29 December 2019 - 06:39 PM

DS got a great report from school and his teacher and speech therapist talk about what a delight he is, so proud.

And he's been getting out of his comfort zone and trying new foods. Today he ate a whole bowl of my chicken and pumpkin curry! This is huge for us. DS is fussy with textures and likes food to either be soft or crunchy. Won't eat crunchy fruits and vegetables though, I have to cook / stew them.

Recipe for those interested:

Dice two brown onions, one large wedge Kent pumpkin, one red capsicum, four cloves of garlic and at least 800 grams of skin off chicken breast and place in slow cooker. Add one jar Rogan Josh simmer sauce and one small tin of coconut milk / light coconut milk. You can add a bit of extra water too, to get the last of the sauce out of the jar.

Cook in the slow cooker on high for at least four hours, or low for eight. Should make at least eight generous serves. Can serve with rice or cous cous. Very mild flavour, so add seasoning to taste.

#93 PocketIcikleflakes

Posted 29 December 2019 - 11:13 PM

Ds, has a great teacher for next year who is very open to listening to each child's needs. And a largely lovely group of kids.

Ds is getting very good at expressing his limits and setting boundaries before everything gets too much. And we're making progress with training others to listen. Often once he's obviously struggling he points out that he's only struggling because they didn't listen when he told them he was reaching his limit and now he's passed his limit so it's their fault (only directed at adults). Turns out being told off by the seven year old is way more effective than being told of by the parent.

#94 courtney-b

Posted 30 December 2019 - 03:51 AM

My almost 10 year old has always hated busy, loud places (restaurants, shopping centres, markets etc). He loves the idea and often wants to go, but always leaves so, so drained and needs a lot of recovery time or gets overwhelmed and wants to leave quite quickly. We got him a pair of cheap blue tooth ear buds for Christmas and an MP3 player. He can cover the ear buds with his long hair and pop the MP3 player in his pocket.

We went out for dinner as a family last night and he left so energetic and happy and obviously found the whole evening enjoyable. He said he could hear us and his favourite songs and none of the sounds that bother him. He was SO excited that today he asked to go out again! The world seems a little less overwhelming for him because of something so simple and I am so, so, so happy for him.

#95 null

Posted 15 January 2020 - 07:00 AM

Ds 12, who has emotional regulation difficulties, started yelling at the top of his voice "I AM SO ANGRY ... I AM GOING TO ....... BAKE A CAKE". I was floored when he actually said he was angry let alone then going and making a lovely cake. And he cleaned up!

#96 MsLaurie

Posted 15 January 2020 - 09:22 AM

Managing teenage angst through baking could make for a delicious few years to come!

#97 123Tree

Posted 16 January 2020 - 09:33 AM

View PostMsLaurie, on 15 January 2020 - 09:22 AM, said:

Managing teenage angst through baking could make for a delicious few years to come!

Waiting for a spin-off in a few years time “my teenager’s emotional regulation has caused me to gain 20kg”.

#98 Elsegundo

Posted 16 January 2020 - 12:58 PM

My kids were having a conversation via their teddies yesterday that included a few gems.

White bear (aka ds1, 8yo asd) asked Pongo (aka ds2, 5yo nt) "why do you always say hello to me?"
Pongo: because we're friends and I like you.
White bear: do we have to say it every time?
Pongo: yes. It's because I'm happy to play with you I say it
White bear: oh. (Thinking) hello Pongo.

Couldn't believe it. Hopefully it moves to school friends when we go back to school!

#99 MayaTheGrinch

Posted 16 January 2020 - 02:21 PM

My boys have managed being home by themselves for 4-5 hours while I am at work. They are much more relaxed and happy then having attended vacation care.

#100 Acidulous Osprey

Posted 22 January 2020 - 09:20 PM

Younger son has had 2 tiny doses of cannabis oil and has reported his gut pain is gone.  This is huge because his pain has been untreatable up until now.

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