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PCOS diagnosis...now what?

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#1 jessg89

Posted 04 October 2019 - 12:17 PM

So I’ve had long cycles (32-39 days so not too horrible) since coming off the pill and haven’t been ovulating. This prompted me to go to doctor who referred me for blood tests, ultrasound and transvaginal ultrasound.

The ultrasound found 20 follicles on each ovary and so I have now been given a diagnosis of PCOS and a referral for a gynaecologist.

What can I expect when I go to the gynaecologist? Will they prescribe me clomid straight out or will they need to do their own tests?


Edited by jessg89, 04 October 2019 - 12:18 PM.

#2 Jingleflea

Posted 04 October 2019 - 12:34 PM

It's possible they'll do their own tests, mine did.

You might be put onto Metformin which helps with insulin resistance.
Clomid should ONLY be used along with internal US and blood tests to make sure you don't over stimulate your ovaries and to make sure the dose is correct.

Anyone who writes a script for Clomid without any monitoring should be questioned. It's got some not great side effects and overstimulating your ovaries can be really dangerous.

Sounds scary, but it becomes second nature after a while!

Your partner will probably need to do a sperm analysis too. No point you taking fertility drugs if he has motility or amount issues.

I didn't respond to Clomid enough so I then tried IUI's(3 from memory) and then onto IVF.

Good luck! It's a lot to get your head around but it gets easier.

#3 Nat2910

Posted 10 October 2019 - 09:49 PM

I had lean pcos with a FSH level in excess of 150. If you get referred to a fertility specialist, they tend to do lots of blood tests to begin with.
I ended up having a HyCoSy, where they flood your uterus with water to see if there are any blockages. It was a good idea to have this done before medication as I needed surgery to remove a polyp and fibroid. Both can cause the embryo not to implant.
After more cycle tracking, it was confirmed I was not ovulating and I was placed on Letrozole to trigger ovulation on a very low dose.  Letrozole tends to be more effective for pcos.
I used opks to confirm ovulation which worked pretty well and we ended up falling on the second medicated cycle. I am now 20weeks pregnant.
Overall i was TTC for 15 months. Between my first FS appt and conception it took about 9 months - there’s a lot of waiting and bloods at certain times of the cycle. I was anovulatory for half of it and also had surgery.
I would recommend making sure all bloods, scans and tests are all thorough before starting on ovulation induction.
Good luck with everything!

#4 Magnolia2

Posted 10 October 2019 - 10:11 PM

OP, you might not have given all the details in the post above, but I thought I’d just chip in and say (just in case your GP has said otherwise) that having polycystic ovaries on ultrasound is not the same thing as having a diagnosis PCOS. The reason I know: I was in the former category about a decade ago, but didn’t meet enough of the diagnostic criteria for the second. (As a result I was told metformin wouldn’t be of use to me when I was struggling with TTC some years later - although Clomid was prescribed to lengthen my luteal phase). Apparently having polycystic ovaries is not uncommon, and not uncommon even for isolated periods of time for some women (?).  Apologies if you already know about this though.

I hope you get some answers from your FS - they might do further blood tests and tracking to confirm anovulation, which might point towards further markers on the diagnostic criteria.

Edited by Magnolia2, 10 October 2019 - 10:14 PM.

#5 Fossy

Posted 10 October 2019 - 10:14 PM

Reproductive endocrinologist is your best bet, they can do all the testing you need and they understand the underlying causes of the condition. They’ll do correct monitoring of your cycles and won’t prescribe medication such as clomid unless under proper supervision.  They can also look at other aspects such as weight, hormones, and diet.  I strongly recommend finding a good one.

Good luck, remember, PCOS/PCO is very common and there’s lots of help available, just find the right professionals to support you.

#6 Froyohoho

Posted 11 October 2019 - 07:14 PM

Yep, as above you need to see an RE/FS. Gynos aren't the best for fertility issues.

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