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Iron Infusion in 12 year old


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#1 Morethanmum

Posted 05 December 2019 - 07:20 PM

Just wondering if anyone else's child has had an iron infusion?  If so did they have any side effects? My DD12 years was at haematologist today after 6 months of oral iron supplements led to NO increase in her ferritin.  Her body has not absorbed it at all.  

She has a couple of autoimmune diseases such as hashimotos, has had a clear biopsy for celiac, and no other obvious reason for not absorbing the tablets.

Anyway, she is booked for an infusion next Thursday- would have done today but she has a cold and they want to make sure they can differentiate between virus or side effects!

She is a bit nervous.

Thanks!

#2 rosie28

Posted 05 December 2019 - 08:00 PM

I had several in my teen years (not quite as young as 12 I don’t think) and responded really well. I’ve had them as an adult too and the only side effect I’ve ever had is feeling a bit achy, for a maximum of a week. It holds my levels in the normal range for over a year with no need for further supplements.

On the practical front there is a cannula and the infusion can take 20-40 minutes, it feels a little bit cold going in but doesn’t hurt. Emla cream will help if she’s nervous about the cannula.

#3 BusbyWilkes

Posted 06 December 2019 - 12:03 AM

14 is the minimum age recommended. Obviously a specialist (particularly a haematologist!) could recommend younger, weighing up the pros and cons in each specific case.

My child was on twice daily oral iron for 9 months and iron actually went down! Had an infusion - had slight
cold-like symptoms the following day (a possible side effect) but nothing major. Waiting to get lost infusion blood results. Fingers crossed.

#4 bees-knees

Posted 06 December 2019 - 09:14 AM

I don't know if this is useful at all, because it relates to me, not a child, but I had one yesterday for the first time. The process itself was easy - needles don't really bother me, and I enjoyed the peace and quiet of being able to just sit and read my book with no one hassling me while the infusion ran!

I felt fine afterwards, and feel equally fine today. Hope it goes well for your young lady.

#5 jmjsa

Posted 08 December 2019 - 07:14 PM

My 12 year old daughter has had 3 so far.   Due to her age  she had to have it done in hospital as a day patient.  It takeS a few hours.  She has cream on before the canula is put in and isn’t bothered by needles.  No side effects as such, just a pity that it doesn’t raise her levels for long at all.

#6 SM3s Fight Song

Posted 08 December 2019 - 07:55 PM

No autoimmune or coeliac, but my bowel has absorption issues, constipation and slow gut motility.  I don't absorb iron in supplements well.  Iron liquid like maltofer tend to be better absorbed but I've had to have semi regular infusions over the last few years.  Mine tend to last well, 18 months or so if combined with the pill.  I don't know at 12 if that would be a factor for your DD, but heavy per meant what little iron I absorbed wasn't enough to counteract the loss.  DD 6.5 recently had a cannula and drop in for half a day, she didn't like it but coped with it.  My first iron infusion wasn't that different from having a cannula in, no reaction.  I just sat and read on my phone.  The chair was uncomfortable and it was boring.  A device or book on ereader phone is good as you have to be careful not to love the cannula too much.  Hope it goes smoothly.

Edited by SM3s Fight Song, 08 December 2019 - 07:56 PM.





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