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Cow's milk protein intolerance and formula

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#26 MooGuru

Posted 29 December 2019 - 09:56 AM

DS had neocate prescribed. I was BFing and he had bottle refusal so he didn't have a huge amount of it but from memory we saw progress quickly (like a few days) once I cut all dairy out but I don't know if it's just hazy memories that it was that quick.

Also our immunologist said BF babies tended to refuse the cpmi formulas because they tasted foul and had a different consistency when compared to breastmilk so FF had an advantage in transitioning to them. So a definite win for FF on that front from his perspective.

One tip I have is to learn about the different names that are used for milk protein - lots of people don't understand the difference between lactose and cows milk protein and might prescribe or offer products as safe for cpmi because it's lactose free (*cough* dietician/nutrition team at major children's hospital). I found knowing about that stuff boosted my confidence in feeling like I was capable of managing it.

Eta: we also had different reflux meds including losec and ranitidine.

Edited by MooGuru, 29 December 2019 - 10:01 AM.

#27 Disydo2018

Posted 30 December 2019 - 05:49 AM

Thanks moo guru, that’s very helpful.

I don’t want to jinx it but I think we might be seeing an improvement! His rash has cleared up and he seems to be straining less. Early days but hopefully...

#28 Mollyksy

Posted 30 December 2019 - 11:20 AM

Yaay, the skin clearing was our first sign too. You have done so well. As I said, DS was 5 months before we had any success. Go mumma bear!!

And some kids can grow out of it. DS at 4 could eat small serves of icecream, yoghurt and cheese. But not cows milk, that caused projectile vomiting. So at 6 he had rice milk in cereal etc and can pretty much eat most things now.

#29 Ellie bean

Posted 30 December 2019 - 11:31 AM

Both my kids only have a mild dairy intolerance now (dd moreso than ds). I consider us very very lucky considering she was hospitalised twice as a baby. You really are in the trenches now disydo and things should get easier- fingers crossed!

#30 Disydo2018

Posted 30 December 2019 - 12:37 PM

Thanks everyone!

#31 CrankyM

Posted 30 December 2019 - 03:30 PM

So glad to hear about he improving. Like I said previously my ds outgrew him issues. If anything dairy features a bit too much in his diet now (we go through a frankly ridiculous amount of milk weekly). I was convinced he wasn’t going to outgrow it as his symptoms were daily severe right up until about 4-6 months before he outgrew it.

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