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Fertility preservation before chemo

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#1 ~Bob~

Posted 09 January 2020 - 03:35 PM

I would love some advice if anyone has experience in this field.

This is about an 18 y/o female, who has been diagnosed with Hodgkin’s lymphoma. She has been referred to a fertility specialist at RPA.

I’m assuming she’s in good hands, as RPA has a great reputation, is that correct?

My main questions are, what questions should she ask of the specialist and are there any things that you can share that would help her?

Thanks in advance.

#2 IamOzgirl

Posted 09 January 2020 - 04:12 PM

I think you might also get more advice in the AC section.

RPA have a bulk bill IVF clinic attached to it. So I would say you are in good hands. And the cheapest alternative. I have been also told that every clinic has to be attached to one of the major plans and follow their protocol (ie Monash and Genea) is the care will be the same

If she went private she would be looking at easily $10k out of pocket.

One question she should ask is how many rounds of drums can she do (if it were me I would do more th. One to get the best chance as frozen eggs aren’t as successful at defrost as frozen embryos)

And how much storage would cost. (Ie she might be looking at close to 10 years before she wants to use them) clinics start charging storage fees anywhere for 6mths and longer.

#3 ~Bob~

Posted 09 January 2020 - 05:54 PM

Thanks Iamozgirl, that’s helpful. She is a public patient, so at this stage, I think it’s under Medicare. It would be pretty cruel to charge her under the circumstances, wouldn’t it.

How much is storage usually? It’s possible she will store them for more than 10 years, isn’t it.

#4 IamOzgirl

Posted 09 January 2020 - 06:01 PM

Yes it’s under Medicare. Sorry if I confused. I’m just saying why she should stick with RPA as the have no gap. A private clinic would be 10k even with Medicare rebate (that she is entitled to given the circumstances)

Storage fees vary clinic to clinic. My first clinic include 2 years free. My current clinic only include 6mths. I think I am looking at $200 a year? Sorry I don’t have the figure at hand

#5 ~Bob~

Posted 09 January 2020 - 06:09 PM

Thank you. That’s helpful. $200 per annum is doable. I wasn’t sure if it was hundreds or thousands.

#6 ckmelb

Posted 10 January 2020 - 10:52 AM

I would get her to ask if she can do 2 egg collections in one month. It's called Luteal Phase Ovarian Stimulation (LPOS). It should help her collect max eggs without delaying her treatment for too long

They may also suggest collecting a sample of her ovarian tissue. In the future they are likely to be able to re-implant it to restart ovulation.

#7 ~Bob~

Posted 10 January 2020 - 07:16 PM

Ckmelb thank you so much, that’s very helpful.

#8 Wolf87

Posted 10 January 2020 - 08:05 PM

No real advice, but the fertility clinic at RPA partner with Genea, which is one of the best clinics from what I’ve heard. We just had a cycle with them before Xmas, and they were just as good as the clinic we went to previously (private), IVF Australia so she’ll be in good hands.

Even though it was public, we were still 2k out of pocket. Not sure if it’s different when doing it for the reasons the girl needs to do it. No idea for storage fees, unfortunately we’ve never had to worry about that! But the consultation is very thorough and will outline any costs.

If you have any other questions regarding the RPA clinic feel free to ask here or PM, as having just done it it is all very fresh in my head, and we will be going again sometime in the new year.
I should still have the info pack actually, I’ll have a look and see if it mentions storage costs.
Best of luck.

#9 purplekitty

Posted 10 January 2020 - 08:07 PM

I'm not sure that it is covered publicly.
Medicare may only pay for some parts of it although fertility clinics may have special rates for cancer patients.

I believe there may be money to oncology patients available from funds set up for explicitly this purpose.

The best place to get information would be RPA.

#10 Snorkmaiden

Posted 10 January 2020 - 08:30 PM

Hi ~Bob~,

I can't help with IVF information, but I was offered Zolodex injections while I was undergoing chemotherapy. The idea was to protect my ovaries and preserve fertility.

It might be worth investigating if this is an option for her as well as IVF.

Some information you might find useful: https://www.thewomen...fect-fertility/

Also, the Cancer Council has a booklet called Fertility and Cancer which might be helpful. PDF: https://www.cancer.o...et_May_2016.pdf

#11 Wolf87

Posted 10 January 2020 - 08:30 PM

According to my paperwork, the initial freezing is $377, and storage fees are $192 per 6 months. But take that with a grain of salt as, mentioned above, there might be a different payment set up for oncology patients.

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