La di dah (Jordanna) and her husband Ben have a little boy, Sebastian. Sebastian is ill. I'm going to cut and paste from Jordanna's FB page.
Sebastian Harvey has been diagnosed with a rare condition called Niemann-Pick Type A.
It is not a condition that has ever had a baby survive. We will do everything in our power for his care.
We know there are so many people who will be shocked and devastated. We ourselves, Ben and I, did not know he was medically fragile until mid-January and everything we thought we had has all gone away in weeks.
We had a pretty healthy and happy baby for a year.
He is mostly still pretty happy.
We will do everything to pour love on him. I know there is a lot of love out there for him.
He has only ever known the world as love and softness and with your help we will keep doing that for as long as we can
One of Jordanna and Ben's friends have set up a Go fund me account. Any help you could give them would be so much appreciated.
Edited by *Ker*, 22 February 2020 - 01:14 PM.