Just wanting to see if we could get some accurate numbers of how many people come into this part of EB.
So even if you just lurk and don't post, could you please reply to this thread once and answer the following:
Your name: (optional you don't have to give that info if you don't want to).
Your child's diagnosis, or special needs:
The state you live in (or country):
I will go first.
Child's diagnosis: Ryley has Wolf-Hirschhorn Syndrome
Edited by starofamp, 23 March 2007 - 07:18 PM.