Please read and sign once
, Mar 23 2007 07:18 PM
555 replies to this topic
Posted 23 March 2007 - 07:18 PM
Just wanting to see if we could get some accurate numbers of how many people come into this part of EB.
So even if you just lurk and don't post, could you please reply to this thread once
and answer the following:
Your name: (optional you don't have to give that info if you don't want to).
Your child's diagnosis, or special needs:
The state you live in (or country):
I will go first.
Child's diagnosis: Ryley has Wolf-Hirschhorn Syndrome
Edited by starofamp, 23 March 2007 - 07:18 PM.
Posted 23 March 2007 - 07:32 PM
Child's diagnosis:CODY- Down syndrome, AVSD, Duodenal Atresia, congenital nystagmus, otitis media.
Edited by Cath13, 23 March 2007 - 09:39 PM.
Posted 23 March 2007 - 07:35 PM
Child's Diagnosis: Landau-Kleffner Syndrome
Posted 23 March 2007 - 07:35 PM
Child's diagnosis: Asperger Syndrome
Posted 23 March 2007 - 07:46 PM
CHILDS DIAGNOSIS:: T'keyah, Dandy Walker syndrome- Agnesis of the corpus callosum- Cerrelbellar vermis Hypoplasia- Hydrochephelus- developement delay- low muscle tone- stridor
CHILDS DIAGNOSIS:: Kye, Lipoma of the corpus callosum- Agnesis of the corpus callosum- Cerrelbellar Vermis Hypoplaisa- Dandy walker varient
STATE :: NSW
Edited by hadenoughat6, 24 March 2007 - 07:35 PM.
Posted 23 March 2007 - 07:50 PM
Diagnosis: Adam has Total Colonic Hirschsprungs Disease
Posted 23 March 2007 - 08:07 PM
Charlotte has DDH (Hip Dysplasia)
She also suffers from possible Absence Seizures
Charlotte was diagnosed at 19 months old with Severe Verbal & Oral DyspraxiaSTATE:
ETA: New Diagnosis!
Edited by annie77, 17 October 2007 - 01:19 PM.
Posted 23 March 2007 - 08:31 PM
Good idea Name:
Down Syndrome (Matthew)State/Territory:
Edited by *Dory*, 23 March 2007 - 08:33 PM.
Posted 23 March 2007 - 09:03 PM
Child Diagnosis: Leslie: Pervassive Development Disorder not otherwise specified, Oppositional Defience Disorder, Conduct Disorder.
Child Diagnosis: Gordon: Stickler Syndrome
Good Luck, Thank You & Cheers Rubiann.
Posted 23 March 2007 - 09:09 PM
Child's diagnosis: Ryan had Silent Reflux/GORD - Thankfully he has just outgrown it.
Edited by wendy1970, 23 March 2007 - 09:11 PM.
Posted 23 March 2007 - 09:12 PM
my daughter cailtan, 10 months old has:
Severe tracheobronchomalacia, Asthma, Gord, Aspirates on fluid, Blind in one eye(persistant hyperplastic primary viteous), Does not chew and chokes when swallowing.
We live in SOUTH AUSTRALIA.
Posted 23 March 2007 - 09:30 PM
Child's Diagnosis Anja: Sacrococcygeal Teratoma, low tone in hands, hyperhydrosis in hands and feet.
Child's Diagnosis Kaeden: PDD-NOS, Sensory intergration Disorder, GORD, Bilateral Renal Reflux - Enlarged renal pelivs ®, plagiosephaly caused by torticolis.
Child's Diagnosis Lena: Speech delay, social and behaviour delays, some sensory intergration issues.
Edited by ~MakkaPakka~, 11 March 2012 - 09:42 AM.
Posted 23 March 2007 - 09:46 PM
Child's diagnosis: C has Autism with Intellectual Diss.
B and D have Speech Delays
Posted 23 March 2007 - 10:09 PM
: LysChild's Diagnosis
: Natalie has DDH (Hip Dysplasia)State
Edited by Lys, 23 March 2007 - 10:09 PM.
Posted 23 March 2007 - 10:37 PM
Special Needs Kids:
14 year old boy with queried Asperger's
6 year old with severe allergies
5 year old with autism, Coeliac Disease, immune deficiency, and a few other issues
Posted 23 March 2007 - 10:49 PM
Child's Diagnosis: Rory has 22q11 Deletion(Velo Cardio Facial Syndrome), CHD, immune deficiency, hypotonia, talipes, development delay.
Posted 23 March 2007 - 11:17 PM
CHILDS DX: ASD H/F ADHD Sensory Intergration Disorder
Protein & Iron Deficiant..Asthmatic.
Posted 23 March 2007 - 11:27 PM
Epilepsy x 2, Autism, Hypotonia, Hemangioma ( back and liver), Coeliacs, Gross Motor Delay Development, Anxiety
I have PTSD and OCD and PND(3 times)
Edited by Mumofive, 23 March 2007 - 11:26 PM.
Posted 24 March 2007 - 12:32 AM
Child's diagnosis: Brice (11) PDD-NOS
Child's diagnosis: Mason (14weeks) Septo-Optic Dysplasia
Posted 24 March 2007 - 01:05 AM
Child's Diagnosis: DS with speech and gross motor developmental
delay. Possible global delay.
Posted 24 March 2007 - 02:23 AM
CHILD: MEGAN (DD1) EMILY (DD2)
CHILDS DIAGNOSIS: MEGAN GDD (SPEECH DELAY MOSTLY) & EMILY'S A "NORMAL" ANGEL!!!
Posted 24 March 2007 - 06:20 AM
Child: Liam (3 years old) - Pervassive Development Disorder - NOS
Posted 24 March 2007 - 10:17 AM
CHILD .charlotte... Diagnosed with VHL . It is expected that by the time Charlotte is 10yo she will have cancer tumours all over her body. Severe developmental delay. Esophagitis. Seizures. Dysmorphic features. Milestones at 12-15 months only, only sitting and commando crawling..not walking.
NEW UPDATED: Central sleep apnoea requiring oxygen whilst sleeping. Laryngeal cleft Type 1.Unactive thyroid gland.5 lots of meds twice daily
Edited by ~*~mumzlilcookie~*~, 25 November 2009 - 06:18 PM.
Posted 24 March 2007 - 10:19 AM
Child Diagnosis: Down Syndrome (Hannah)
Posted 24 March 2007 - 11:05 AM
Child: DD#2 - Cystic Fibrosis, Tracheomalacia and asthma.
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A great sensory activity for little hands, as well as being inexpensive for parents.
You can use any seeds and fruit you have on hand and can make it up in a big batch to easily add variety to the lunch box.
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