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554 replies to this topic
Posted 01 July 2007 - 01:10 PM
Child's diagnosis: DS 5.5 brand new (although long suspected) Dx ADD -waiting for medication test and written report
Posted 02 July 2007 - 11:25 AM
Child's diagnosis: 2 children with Acrodermatitis Enteropathica (Zinc Deficiency)
Posted 08 July 2007 - 04:50 PM
Child's diagnosis: Elyssa with Congenitally Corrected Transposition of the Great Arteries
Posted 09 July 2007 - 11:04 PM
Your name: Kelly
Your child's diagnosis, or special needs:Bardet-Biedl syndrome. He has polydactyly of both hands and both feet (14 fingers/12 toes) and syndactyly on feet only. He is developmentally delayed, has macrocephaly and some other minor physical abnormalities and will eventually lose his sight from retinal pigmentation. And he's gorgeous
The state you live in (or country): Tassie
Edited by =Kelby=, 12 August 2007 - 10:52 PM.
Posted 23 July 2007 - 05:06 PM
CHILD'S DIAGNOSIS: Jade is 5 months and has Cystic fibrosis.
Posted 25 July 2007 - 06:36 PM
I'm new here, think this is a great way to have contact with the outside world!
My daughter April, who turned 1 last week, has Pulmonary Stenosis and Epsteins Anomaly of the Heart. She has had one lot of surgery and is due a few more in the coming years. She also has developmental delay.
Posted 27 July 2007 - 01:58 AM
Hey there girls..
Your name: Jo..
Your child's diagnosis, or special needs: Jake 3rd child has Twisted Femurs and language delay/disability
The state you live in (or country):Country WA
Posted 30 July 2007 - 09:58 AM
NAME - Renee
CHILDS DIAGNOSIS - cleft lip & palate
STATE - NSW
Posted 04 August 2007 - 10:46 PM
MY CHILD HAS fetal valporate syndrome. A direct result of my anti epileptic medication.
Alex had simeon creases on his hands up until about 6 months of age, he has thin tapering fingers, low set ears, broad set nose, short neck, wide set eyes wide set nipples, poor muscle tone although he is walking but was slower to do so than my two other children, has a developmental delayand delayed speech
I am desperate to talk to other parents with a child who has this syndrome, I feel alone.
Posted 07 August 2007 - 10:17 AM
My name: Sarah
Child's Diagnosis: Violet has Hydrocephalus, Microphthalmia and PHPV, Vascular Malformations, Right Hemiplegia and Dystonia.
Location: Sydney, NSW
Posted 10 August 2007 - 12:02 AM
Dzejla was born with symtoms of poland syndrome which were later ruled out. Her left arm is shorter and fingers are intact with one another and under developed, the normal fingers were her thumb and baby finger which have had surgery to fix she is 12 months old i would love to find other moms with the same thing thanks!!
Posted 13 August 2007 - 11:40 AM
Child's diagnosis: Apollo suffers from severe eczema....just like his father
Edited by sef, 13 August 2007 - 11:40 AM.
Posted 13 August 2007 - 07:34 PM
Child's diagnosis: Luke has a mild form of Noonans Syndrome
Posted 15 August 2007 - 07:02 PM
Child's diagnosis: Jett has Reflux.
State: QLD (Brisbane)
Posted 17 August 2007 - 10:45 PM
My son (10 1/2yrs) has PDDNOS (Pervasive Developmental Disorder Not Otherwise Specified)
Cheers I look forward to reading everybody's posts.
Posted 24 August 2007 - 08:56 AM
DD1 - severe allergies
DD2 - small Venular malformation
Posted 27 August 2007 - 03:22 PM
Child diagnosis..Dion has been diagnosed with LEIGHS DISEASE..a rare brain disease. Low muscle tone, cant walk, speech delay, fully fed by gastromy tube (button)
Love him to pieces
Edited by stargazer, 22 June 2008 - 10:20 PM.
Posted 28 August 2007 - 08:44 AM
Child's diagnosis: Optic Nerve Hypoplasia & Asthma
Posted 01 September 2007 - 12:45 AM
Your name: Lynn
Your child's diagnosis, or special needs:
Nicole: Autism Spectrum Disorder, ADHD
Kimberly: ADHD, Mild Cerebal Palsy, Chronic Lung Disease
The state you live in: SA
Posted 03 September 2007 - 10:23 AM
DS has Type1 juvenille diabetes
Live in South Australia
Posted 03 September 2007 - 02:03 PM
Child's diagnosis: Autism, Developmental Delay, Landau Kleffner Sydrome (in remission)
Posted 03 September 2007 - 04:05 PM
Child's diagnosis: Little Pixie (DD) has mild PVL (Periventricular leukomalacea)which will probably lead to a diagnosis of Cerebral Palsy and in particular Spastic Diplegia
Lazy eye-(premmie issues)surgery coming up soon to fix!
Edited by pixieblue, 10 November 2007 - 12:22 AM.
Posted 05 September 2007 - 09:42 AM
- ongoing eye disorder - eyelash ducts blocks, develops chalazion cysts
- expressive language and delay and disorder
- being assessed currently for Autistic Spectrum Disorder
- hearing being assessed in Nov
- Full dev. being assessed at the child dev. unit at WCH in Nov
Edited by Korrine, 05 September 2007 - 09:42 AM.
Posted 12 September 2007 - 08:17 PM
Diagnosis:Primary Congenital hypothyroidism
Location: Sydney NSW
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