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Crohn's and Colitis in Pregnancy ~ #2


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#1 LilyM

Posted 28 May 2008 - 07:57 PM

Hi Ladies

New thread time

Link to previous thread

Enjoy your thread & goodluck with your pregnancies

Lilymurray. EB Moderator. Specialised Pregnancy Buddy Groups

#2 carriesshoes

Posted 11 September 2008 - 11:23 AM

I'm writing this in the hope that some sufferers will come out the of woodwork...

I'm pretty sure I have colitis and was literally about to have a colonoscopy to confirm things when I found out I was preggers.  After 3.5 years of trying I wasn't prepared to risk anything and so my gastroenterologist has said we'll need to wait until 6weeks after the baby is born before we can do the proceedure to make sure that's what I have.

TMI - I pass blood with every bowel movement and also when I pass wind on the toilet.  I'm concerned that seeing as I'm only 3.5 months along that it's a long way to go with passing blood everyday, but there's apparently nothing I can do.  I've spoken with my OB who isn't worried provided I'm taking my multi vitamins.  She said that as most women get haemorroids they pass blood while giving birth, and it would take a lot to shock them.

Anyone else have colitis and how do you manage it?  Is there a trick with your diet that helps?

Any info would be much aprpeciated. TIA!

#3 DragonflyGal

Posted 25 January 2009 - 08:01 PM

Are you still around carriesshoes?

I have Crohn's, and am currently 31 weeks pregnant. Not sure if I can answer your questions!

#4 Angelblue71

Posted 25 January 2009 - 10:25 PM

I just thought I'd pop in here and say Hi and that I am also happy to answer any questions/discuss.

I also have Crohn's and I am currently 33 weeks pg with twins.

#5 DragonflyGal

Posted 29 January 2009 - 01:39 PM

Hi Angelblue71 - congrats on the impending arrival of the twins!  Do you know what sex they are?

I've got Crohn's too, diagnosed in 2000.  I've found it has been quite good with being pregnant, I wasn't on meds prior to getting pregnant but had some pain etc, which was mostly under control until recently - I was diagnosed with Gestational Diabetes a few weeks ago, and I'm finding the food I have to eat for that is sending my Crohn's into a bit of a flare.  It's manageable at the moment thankfully, just a bit of pain and a few extra toilet visits.

How's your Crohn's been since being pregnant?

#6 Angelblue71

Posted 29 January 2009 - 11:25 PM

Hi DragonflyGal

I was diagnosed in 2001 and had a bowel resection in 2002 and have only had minor flare ups (of a couple of days in hospital) since having the surgery.Prior to the surgery they were unsure (and so was I) if I was going to survive since it went undiagnosed for a long time. Long story but every Dr I saw told me I had an eating disorder and that they couldn't help me till I admitted I had a problem. aannoyed.gif

I have been drug free (except for flare ups) since about 2003 but like you still have the pain occassionally and the runs regularly.

In regards to crohn's and pg, I have been pretty lucky in both my pgs (I also have a DS aged 17 months) with regards to my crohn's. I find that in first trimester I get terrible morning sickness as well as crohns issues but then as soon as I hit 2nd trimester it's like my crohn's just switches off completely (it is heavenly).

Unfortunately when I had DS, I found that when I breastfed him (must have been triggered by hormones) I would also have mini attacks of pain and the runs. It was awful as I would have no choice at times but to feed the poor thing on the toilet if I was by myself and couldn't hand him off to anyone and he was screaming because he was hungry. I am so hoping that it doesn't happen this time as I won't be able to do it with 2 but at least DH is taking time off this time so he will be here to help.

I am having 2 girls (no,not identical)and as things are not going so well with one of them (her placental flow is not too good and she's much smaller than the other) it looks like I might be having them sooner than expected. I have another scan on Thurs next week and see the Ob on Friday where he will decide whether to pull them out.

Due to the bowel surgery, I can not attempt a natural birth as I had an absyss(sorry not sure how to spell it and prob TMI)the size of a cricket ball rmeoved from my rectum which means that because of the scar tissue, the Ob said that there is a 95% chance that I would tear and have to have a permanent colostomy. And as the chances of that are pretty high with the crohns itself, who needs to increase the chances of that? Luckily compared to the other surgery, the caesar was nothing and they couldn't believe how quickly I recovered but then again, it's all relative isn't it?

Do you know the sex of yours and is this your first bub?

#7 DragonflyGal

Posted 30 January 2009 - 06:39 AM

Wow Angelblue71, it sounds like you've had a bit to deal with, but that you are quite positive and upbeat about it which is good to hear.

I found out in 2000 that I had it, when my appendix basically fell apart - I'd been in pain and having symptoms for about a year or so on and off before that. When they went in to take out the appendix they realised it was Crohn's.  I had a resection in 2001, and since then I've been up and down at times.  I tend to try to avoid meds where I can, and now work 4 days a week to try to keep the stress levels down.

I've been fairly happy with my Crohn's since being pregnant - it's nice to feel almost like you don't have it!

That's no good about your abcess, it's good to hear that they aren't going to risk natural birth for you, the last thing I would want is to increase the chances of a bag!

I'm sorry to hear that one of the girls isn't doing as well as she could be, I'm glad that we have such good monitoring these days.

I was wondering how a caesarian compares to a resection - I wasn't sure if the recovery would be as bad as the resection..  I have a chance of a caeser due to the GD and possibly Crohn's, but at this stage they are planning a natural delivery - glad to hear that if I have to have one it isn't as bad as the resection!!

This is our first bub, so we decided not to find out what we're having - I am surprised by not wanting to know, I'm usually terrible with suprises!  I have been tempted to find out, but we're going to wait til bub arrives.

That's a shame about the breastfeeding with your son, sorry you had to go through that!  I wonder how that will go for me, so many things to think about aren't there!

#8 Angelblue71

Posted 30 January 2009 - 08:56 AM

Hi Dragonflygal

You're right, I am very positive about the whole crohn's thing, I guess these days I look at it as a bit of a blessing because it's made me look at life differently (at what's important) and I also live a much healthier life than I used to.

How exciting that this is your first. My best advice to you (that I have learnt from last time) is to make sure that you have someone around in the first 8 weeks who can give you a break from time to time so that you can rest. As we both know, crohns attacks when you are run down(or stressed) and I think I was worse when DS was born because I didn't ever get a break or sleep. DH and I were talking about it last night and we have decided that even if I can BF, we will do some bottle feeding of EBM or formula each day so that I can have a sleep of at least a few hours at a time to help me recover and hopefully prevent me from getting sick.Luckily this time DH won't be working so it will be easier for me to get a break.

As for the c-section compared to the resection-no comparison what-so-ever so don't worry if you have to go down that path. I was terrified leading up to it last time for the same reasons as you. I had also had a bad experience with my resection where I had a seisure straight after the surgery due to an overdose (my little machine that administers the pain relief was broken)so then they were worried it would happen again so they wouldn't give me anything more than panadeine as pain relief. cry1.gif

So when it came to the caesar, I was in a bit of a panic about going through all that again and the Ob told me that it was like comparing a paper cut to a deep wound that needs stitches but I was still unsure till it happened, now I am not worried at all. The caesar was still painful initially but the pain was no comparison. I would have been up walking about that day but they wouldn't let me. I got up first thing the next morning and had a shower (that hurt a bit) but then within a few days I felt great. The nurses and Ob did say that they had never seen someone recover so well from a caesar but when you've had a bowel resection and no pain killers, this really was nothing in comparison.

There are so many things to think about but I have learnt since becoming a parent that sometimes things that you thought you would do or were important go out the window and you end up doing whatever works. I gave myself a really hard time about the whole BF thing as I thought it was really important for my son, funnily enough when I finally put him onto formula, he became a different child because my breastmilk was making him unwell as it turned out he was lactose intollerant so he had the runs constantly until he was 3 months old. Suddenly he was a lot more chilled out and stopped screaming 24/7. So this time if the whole BF thing isn't working I am not going to beat myself up over it. I've learnt to be flexible and just do what works for you both at the time.

That's so exciting that you're going to get a surprise when bub is born.

What state are you in?

#9 DragonflyGal

Posted 30 January 2009 - 03:49 PM

Hi again original.gif

That's the funny thing, I'm always really positive about my Crohn's and cope really well - but when I found out about the GD I didn't cope at all! I think because this time it affects bub, and also I had the awful "why me" thoughts too...

Hubby is taking 3 weeks off when bub is born, but I'm lucky too cause my in laws and my Dad are all retired, and live within 5 minutes of me - so I'm sure they will help out if I need them to.

You poor thing missing out on the morphine! That was the only good part to the resection! wink.gif

I feel a lot better about the thought of perhaps having to have a caesar now, hearing that it's a breeze compared to the resection.  I guess they aren't doing as much surgery so it makes sense!

I'm in Canberra, where abouts are you?

#10 Angelblue71

Posted 07 February 2009 - 11:53 PM

It's funny that you say that about not coping when hearing with the GD because I have been the same this pg whenever I have received some negative news about the twins.

As for the morphine, I'm actually allergic to it so pethadine is my drug of choice dev (6).gif

That's great that hubby is taking 3 weeks off. And my advice would be to accept all the help that is offered. Mind you I say this but I am hopeless at doing it. I will try to take my own advice this time round (I may not have a choice).

I'm lucky, my DH has stopped work yesterday so now he'll be off for a few months at least.

We had a false alarm the other day and I thought I was in labour but luckily it all stopped so now the Ob wants the bubs to cook for as long as possible so fingers crossed they'll now stay in till the caesar date on the 23rd.

I am in Brisbane. I will try to write more later but am so tired that I'm not sure if I'm even making sense. Hope you are going well and coping with the heat down there.

#11 SimoneACT

Posted 09 June 2009 - 10:25 PM

Hi

I am just wondering if anyone is still reading this thread.

My husband has Chrohns and Pan Ulcerative Colitis and is currently having a severe flare. He had 3 weeks in hospital in Feb with another flare and all seemed to be going well with medication until about 4 weeks ago.

I am 22 weeks pg with bub no.2 and finding it very stressful coping.

We are also doing house renos that have turned into bigger than we anticipated due to tenants from hell doing huge amounts of damage. I am trying to project manage the renos, work part-time and look after a 2 1/2 year old and sick husband.

Just wondering if anyone else is around who understands Crohns and Ulcerative Colitis?

#12 LilyM

Posted 25 February 2010 - 02:45 PM

bumping biggrin.gif

#13 Spiv

Posted 26 February 2010 - 05:09 PM

Hi SimoneACT,

I have Crohn's i was diagnosed when i was 19, 13 years ago. I have had seven bowel resections and been on medication most of this time. (prednisolone and immuran) I am currently in remission and 36 weeks pregnant with the 3rd child.

It is full on when you are sick, but i do feel sorry for the people around us. I know what i need to do to get better but it is a major stress on my husband who has to pick up the slack. I find this one of the harder things to deal with.

I really feel for you.

Hope that things settle down quickly for him and you!

lIV

#14 bozley

Posted 04 March 2010 - 09:44 AM

QUOTE (SimoneACT @ 09/06/2009, 11:25 PM) <{POST_SNAPBACK}>
Hi

I am just wondering if anyone is still reading this thread.

My husband has Chrohns and Pan Ulcerative Colitis and is currently having a severe flare. He had 3 weeks in hospital in Feb with another flare and all seemed to be going well with medication until about 4 weeks ago.

I am 22 weeks pg with bub no.2 and finding it very stressful coping.

We are also doing house renos that have turned into bigger than we anticipated due to tenants from hell doing huge amounts of damage. I am trying to project manage the renos, work part-time and look after a 2 1/2 year old and sick husband.

Just wondering if anyone else is around who understands Crohns and Ulcerative Colitis?



Hi,
Thats aweful about your husband, you posted this a while go but I hope now he is doing well.

Maybe it is time you look at a different gastro guy. I was diagnosed with Crohns 2 and a half years ago. I am on meds but no immuno-suppressants.

I was diagnosed severe and at the time didn't work for 6 weeks, I couldn't walk because of the ulceration. I have not had surgery or been admitted to hospital and really don't plan on it...

I am on Anti-Map therapy which does not agree with current medical practice. It says that Crohns is not an auto-immune disease but a bacterial disease of a bacteria (called MAP) that you have a genetic predisposition too. Its only about 12 years old and therefore not widely known about in the medical community.

If I am anything to go by it turned my life around and I have been healthier than ever.

There are articles on www.cdd.com.au regarding this treatment and a few articles if you google.

All the best.


#15 babygirl2009

Posted 29 April 2010 - 09:50 PM

i too have uc found this out after my baby girl was born 15 months ago and it has been hell thinking about having surgery as i want anther baby but im still sick and my doctor cant control this huge flare from 15 months ago nothing works i just feel sick all the time and it makes it hard to look after my toddler also my husband is over it he loves mr but i can tell nothing the same since i got sick

#16 bozley

Posted 30 April 2010 - 01:31 PM

QUOTE (babygirl2009 @ 29/04/2010, 09:50 PM) <{POST_SNAPBACK}>
i too have uc found this out after my baby girl was born 15 months ago and it has been hell thinking about having surgery as i want anther baby but im still sick and my doctor cant control this huge flare from 15 months ago nothing works i just feel sick all the time and it makes it hard to look after my toddler also my husband is over it he loves mr but i can tell nothing the same since i got sick



Really sorry to hear that you are not well and that it is effecting your family life. It sounds like it might be time to get a second opinion as maybe someone else could help a little more in getting everything back on track.

Being sick does effect your relationship I had the same experience, it wasn't until a long time after I was better that things went back to normal. I think what is the hardest is that feeling of desperation that nothing is working. I really think you should see someone else. Where are you?

#17 babygirl2009

Posted 30 April 2010 - 10:08 PM

bozley,

i live in sydney i dont even no where to start in getting a 2nd opion im seeing a surgen in may i want to go back to normal

#18 regansp

Posted 13 May 2010 - 10:24 AM

Hi! I'm hoping that someone may read this, it seems a long time since this thread was posted to!

I am 31, have had Crohn's D for 15 years. I have an 18 month-old healthy baby girl and am currently 18 weeks pregnant with number 2.
My illness has been very well managed in the last ten years and during both of my pregnancies (especially my first) I had no flare-ups or related problems.
In 2004, I had a fistula repaired from my rectum to my perinium and have had no problems or recurrences.
In my first pregnancy, my OB recommended a c-section as he was concerned that a natural birth would pose a high risk of getting more fistulas which apparently would be harder to repair after having a baby, and the risk of developing infection (which is high with Crohn's) in the wound would be lower than the fistula risk. I should have held firm in my wish to have a natural birth as I ended up getting an infection in the wound!!
So this time around, I DO NOT want to go through that horrible sickness, pain and inability to do things or look after my baby properly. Not just that, but my husband is due to have a hernia repaired not long before the baby is due and I need to be able to care for him, as well as my daughter who will be nearly two then.
My midwife made an appt for me to see the surgeon who did my fistula repair and I will be having tests to determine the strength of my sphincter muscles (that oughtta be a blast!). He said that if my muscles are weak and I tear during childbirth, there's a chance I could be left incontinent. If that is the case I will have a c-section but I will be very sad as I want nothing more than to be able to give birth and hold my slimy nude baby to my chest straight away instead of having to wait for over an hour before I could even look at my baby properly, like the first time.
Now to conclude my long story! I just want to know if any other mums out there have had fistulas and did you have childbirth or c-section, what did you go through, et cetera!

#19 Spiv

Posted 20 May 2010 - 04:21 PM

hi Regansp

I have not jumped on here for  a while. i posted before i have had crohns for about 12 years and had 7 operations.

10 weeks ago i just had our 3rd baby, I had to have a planned c section because of preclampsia and with my second they could not get her out.

Anyway my ob and i were quite concerned about that wound and the healing aspect of it. The operation itself went fantastic, and recovery was fantastic (so much better after all my other operations i think cause you are not sick!)

Anyway the day before i left hospital i was having a shower and felt that the wound was sore, and could smell the puss! I was devistated cause i was taking such good care of it. Anyway had a big cry then called the nurse who got the doctor! Lucky for me i caught it early enough went on strong anti biotics and i washed and dried it 3 times a day! within 4 weeks it was healed completely! biggrin.gif

However since having her, the crohns has flared up quite bad so back on all my medicine! hopefully i can kick it in the butt really quickly.


Good luck for the rest of your pregnancy and birth!

#20 babygirl2009

Posted 25 May 2010 - 09:15 PM

not sure if anyone really reads this but

we are wanting to try for a 2nd baby did any of u stay on your meds while preg im on colizide have been for 3 months and im feeling great o signs that the uc is still flareing my doctor said its safe but how safe is it im worried that if i stop taking it than ill flare ad our baby plans will go out the window

#21 Renam

Posted 10 June 2010 - 09:28 PM

Hi all,

I too have Crohn's Disease, and am 19 weeks pregnant with my 2nd bub. I have remained relatively well since I was diagnosed 20 years ago, have had no surgey and take Mesasal. I have stayed on this whilst pregnant as I was told the risk of the Crohns flaring up was worse than risk of problems from the meds.

DS was born by cs but only after trying natural birth. My obs is again planning on a natural delivery but will keep a close eye on things in case of flare up or perceived risk. I see a medical obs also, to ensure the crohns appears to be under control.

I know very little about the other meds you areon and cannto offer advice. Surely you can find out a lot more info from the product guide or from trying to get hold of medical research papers on these topics... my medical obs was the one who found and showed me several papers suggesting the mesasal was little risk to pregnancy despite "theoretical risk" being listed on the packaging.

hoping you all have some luck finding more info, getting well and healthy pregnanacies.

Renee



#22 ~A2~

Posted 22 February 2011 - 09:47 PM

just bumping this group back to the top of the forum.



#23 kate04

Posted 03 March 2011 - 01:53 PM

hello,

I was just curious on who had Crohn's Disease before having a baby and did you have any complications with your pregnancy or any tips? I was told when trying to conceive and while pregnant you are not aloud to be on certain medications e.g. Azathioprine also known as imuran.
Just interested as I do have Crohn's Disease and when I am interested in conceiving what do I need to know.
Share your stories and experiences I am interested.

#24 whistlebone

Posted 13 May 2011 - 01:48 AM


Hey ladies!

its so amazing that i managed to stumble onto this forum! im so happy i did! ive loved reading all of your stories and felt so happy to feel "connected" to others going or who have gone through the same thing and i am currently going through.

I have Crohns. Diagnosed 1998, surgery 2006 to remove 6kgs of bowel and in remission (thank god) since then! After so long of being massively sick, its been a huge relief!

And.... Im finally pregnant! yay! freaky thing is our bub is due the day after my 5yr anna of my surgery! weird hey!!

Now 19wks and getting along well. no flare ups, so sorry for all you mummies suffering! I feel very lucky! i did suffer hugely with morning, or should i say all day sickness for first 16wks though!

Does anyone else have a ileostomy and had one during their pg? Im looking to chat to anyone going through this too!

thanks ladies and Congrates on all your babies! original.gif

#25 Babykite

Posted 22 May 2011 - 09:40 PM

OMG i feel like i know most of your stories.

I myself have UC diagnosed in 2001. I also have arthritis in the sacrum illium. So i think is a very ironic diesease combination. cos when you are racing to the toilet but have to hobble on a walking stick it makes for fun times.

Its a very lonely disease i have found. i don't know anyone else with these problems.

Now i am 10weeks pregnant and  very scared with the combinations of medications im on and how they may effect the baby. Ive been put on a High risk category so will be extra monitored throughout the pregnancy. The midwife has reffered me to a lactation specialist so i can discuss the medications and if they come out in Breast milk. Ill also be seeing a physio to help me strengthen my sphincta muscles.

Its all a very daunting prospect. Exciting and scary

I would love to hear of anyone elses story.
Bianca.




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