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Crohn's and Colitis in Pregnancy ~ #2

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#26 happyworkingmum

Posted 02 June 2011 - 10:23 PM

Hey guys,

Stumbled on this forum via our other forum in the Parents and Disabilities section.

I see there are a few that are pregnant and i just want to let you know that I've suffered UC for 8 years now. Was diagnosed through my 1st pregnancy.

I have had 4 beautiful babies; all healthy; all well over 8 and 9lb with no issues. During my pregnancies I've been on and off Prednisone & Salofalk granules. I have laboured naturally without any issues. I did lots of research and rang many places to get advice on the medication and was told by all that the medications were fine.

I'd just like to make one comment; I have never been on Imuran; however doc asked me to try it about 6 weeks ago. I had an allergic reaction to it. I am so grateful I did not go on this whilst pg. Reactions are rare (and to be honest I have never had a reaction to anything).. but oh my..... it was horrible. Almost ended up at the ER. I can't imagine being on this drug whilst pg.

I have breastfed my babies whilst on different levels of pred and Granules. Again I got so much advice from midwives, docs etc and they fed well and all was ok original.gif

Feel free to PM me if you have any questions. I am happy to give some advice. I am a part of an American Colitis forum that has 1000's of members so you may be interested in joining that.

take care

#27 hopeful81

Posted 14 June 2011 - 07:10 PM

Just saw this thread as I usually visit the other Health Conditions Crohns/UC thread.

I was diagnosed with UC in 2002 and have since had two beautiful kids (2008 and Jan 2011). In both pregnancies I've been on a 100mg dose of Imuran and also Mesasal. I was nervous about doing this but had full support from OB and GI. Both pregnancies were uneventful and both kids were checked at birth re blood counts etc and all was well. I only breastfeed for 6 days for both as I couldn't find enough research to ease my conscience regarding the Imuran. I would have liked to breastfeied longer but overall am happy with how it panned out as I felt the kids least got some benefit from breastfeeding even though it was short term.

Just wanted to wish everyone the best and hope you all have wonderful pregnancies and healthy bubs.

#28 Roselet

Posted 06 October 2011 - 10:09 AM

I know this isn't the most active thread, but just in case anyone every looks here... I'm 13 weeks with my first baby, very excited, somewhat terrified. I've had Crohn's for about 10 years. I haven't had to have any resections / surgery (yet, touch wood) but it took about 8 years to find anything that actually managed to get me into remission, and then it didn't last too long. I'm on Humira now, which is just an absolute godsend. I still have some symptoms, and still have really low iron so I must still be bleeding a bit (I used to have really high iron prior to the crohns) but generally I'm pretty well. My specialist is on the verge of making me go to my GP every fortnight for my injections - I'm a little needle phobic so giving myself needles is RELALY hard, and I was not doing them when they were meant to be done - procrastinating by days or even weeks. DH and I have worked out a new system though - he buys me a fancy icecream and I'm only allowed to have it after my injection. My conscious brain knows the meds make me feel better, but now my unconscious brain is also learning there is a payoff.
I haven't had any fistulas - is it likely the obs will want me to have a caeser? I REALLY don't want to have one, I hate hate hate the idea of it, and I'm quite scared I'll be forced into it to "be on the safe side".

#29 SheepQueen

Posted 27 March 2014 - 11:17 AM

Hey All,

I'm pretty new to EB. Am currently 23 wks pregnant after 2nd go at IVF.

Was diagnosed with Crohn's disease about 6 yrs ago & had a major flare at beginning of last year. Managed to avoid a resection but did have complications in hospital which = me nearly dying 3 times in one weekend (2 nights of ultra low heart rate + blood clot in lung).

So anyway, I'm really excited about the whole pregnancy but had a moment yesterday that freaked me out. I went to my hospital to hand in my admission forms & was told I needed an appointment to do that & come back in a week. When I got back to the car I just burst into tears. At first I thought it was just the frustration of not being able to hand in the forms but then I realised I'm petrified of going back to hospital this time in case things go wrong again (or worse).

Anybody else had this problem?

Any suggestions?

I have to have a Caesar due to the site of the flare so hospital is really the only option. I just need some ideas of how to cope with the fear.

Any help is appreciated

#30 picklepie

Posted 21 April 2014 - 11:43 AM

I came across on your other post. I don't have a lot of help for you except to say hang in there. My experience has been a little different. I have crohns and was diagnosed just before my first pregnancy. I was told to consider Caesar because of my bottom but decided to take the small risk and have had 3 vaginal deliveries. In my second pregnancy I was very sick and had not put on any weight at 6 months. I should have been in hospital but I somehow managed to turn the corner. For the third pregnancy I was started on imuran. All I can say is we got through it and I have 3 healthy children who make it all worth it. Best wishes

#31 whistlebone

Posted 05 June 2015 - 02:05 PM

Hi All,

Gosh i hope so much that someone is out there!!

I wrote on this very thread a few years ago when i was pregnant with my gorgeous son who is now 3.5yrs. I had a reasonably easy pregnancy with him. The only hiccup was having threatened preterm labor at 25 weeks. However, at 37 weeks i started getting a burning pain along side of my ileostomy (had surgery in 2006) and was finally induced at 39wks. He was vaginally delivered the following day.

Fast forward 5 months and by this time i can barely walk im in so much pain! The burning pain has not gone away and ive lost 10kgs. Im so gaunt i look like im about to die. The pictures are not pretty.... Turns out that burning pain i was having was 2x 5cm abscesses full of fecal matter and infection along side of my stoma and my Crohns had returned in 15cm of my bowel.

After the hospital being completely useless and almost killing me multiple times i went to another hospital in another state and was cleaned out and then was required to have another lot of surgery to remove my diseased bowel. I was not ready for any of this. I had a 6mth old and i was terrified of dying. To say this was the worst time in my life is an understatement....

Luckily all turned out fine! Im here today and almost 2 years to the day of my surgery im pregnant again with a baby girl!! Im 17wks along and have had no sickness or even Crohns issues. I wish i could say there were no issues at all! however i cant :'(

My darling beautiful boy, in his excitement jumped on my tummy over the weekend and has torn away some of my stoma from its position and now i am having significant prolapses. My stoma will go back in, however if i am not wearing my support belt it will fall out. On some days my stoma is hanging out almost 15cm.

I had my Obstetrician appointment with the high risk team at King Eddies here in Perth yesterday and my Ob has recommend that I have urgent surgery to fix the prolapse. I have an appointment on Monday(today is Friday) with the Surgeon to see what the go is.

The problem is my previous history with my son, the likelihood that it will only get bigger as our baby girl does. Then there is the risk of preterm labor and the lack of room to rectify my stoma.

So... after my rant, has ANYONE at all had surgery during their pregnancy? Has anyone had a prolapse? I could really use some support. To be frank, my husband is completely f**king useless when it comes to this kind of thing and always says the stupidest things!

thank you girls!

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