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Resources, Information and links for extra support groups
9 replies to this topic
Posted 31 May 2008 - 04:44 PM
Here are links for resources and extra support groups.
Bookshops for Special needs
Another book shop
Autism book shop
Special needs equipment
Novitatech (assistive technology �€“ symbols, books, switches, computer, AAC; mobility and seating) http://www.novitatech.org.au/default.asp?p=244
Independent living centre - http://www.ilc.asn.au/home.php
Gtk rehab - http://www.e-bility.com/gtkrehab/catalogue.php
they sell the soft crash caps for kids
Wheelchair lifts/ramps and tie-downs for vans etc
Early Intervention Sydney
Childrens Services NSW
Family Services NSW
Child Link NSW
Services in the Northern Sydney and Central Coast regions of NSW
Association of children with a disability
SA - http://www.novita.org.au/default.asp?p=1
NSW - http://www.thespasticcentre.org.au/index.htm
WA - http://www.cpawa.com.au/
CP Register - http://secure.cpregister-aus.com.au/
Movement Disorders (dystonia, ataxia etc)
Autism Associations Australia Wide
Wendy is an adult with Autism, she is also an Adult Educator and a Social worker.
Contact Details are:
The DORE Achievement Centre
8 Malvern Ave Chatswood NSW 2067
(This is their main centre & they can advise you of a centre close to you.)
Flash Cards and PECS
Speech Therapy NSW
School of Communication Sciences and Disorders. Communication Disorders Treatment & Research Clinic
Auslan (Australian Sign Language)
Cleft lip and palate
Metabolic Dietary Disorders Australia
www.fodsupport.org (Worldwide support group - MCADD, SCADD, LCADD, VLCADD, GA1, GA2 etc)
Cyclic vomiting syndrome
Dysphagia (swallowing difficulties)
education to overcome eating problems �€“ US site but good for ideas http://www.new-vis.com/index.htm
Gastrostomy (tube feeding)
Dumping syndrome �€“ common in tube-fed kids
Reflux Infant Support Assoc. They can be found at their email address of firstname.lastname@example.org or PO Box 1598 Fortitude Valley Qld on ph 07 3229 1090.
www.disa.com.au (Distressed Infants Support Association)
Other reflux favourites include:
RISA Inc (Reflux Infants Support Association Inc.)
Address: PO Box 1598 Fortitude Valley Qld 4006.
Ph: 07 3229 1090
D.I.S.A. ( Distressed Infants Support Association)
Address: PO Box 2093
Ph: (03) 9513 9640
F.I.R.S.A. (Families of Infants Reflux Support Association)
Address: PO Box 807
Who also support families living in the Northern Territory of Australia
PAGER - (Pediatric / Adolescent Gastroesophageal Reflux Association)
Address: PO Box 486
Buckeystown, MD 21717-0486
Email : email@example.com.
American site - but heaps of info
For Klippel-trenaunay Syndrome
The Australian Spina Bifida and Hydrocephalus Association
Sites for hip dysplasia
Learning Links is an Australian charity and non-profit organisation assisting children who have difficulty learning.
MyDr �€“ Australian site with factsheets on just about everything from constipation, reflux, diabetes. Information on different tests and investigations (although from an adult perspective, not a child �€“ some things are done a bit differently for kids) also information on medications
Kids Hospital Westmead, Sydney
Posted 10 February 2009 - 11:07 AM
I am a volunteer for the Touched By Olivia Foundation. We are raising funds to build all-abilities playgrounds around Australia. Our first, at Timbrell Park, Five Dock NSW, should be open later this year.
The dream is that all children, regardless of their ability, can play together. These playgrounds will also provide a welcome social outlet and community link for many families.
Keep an eye on our website for more details:
Posted 05 October 2009 - 10:26 PM
"MyTime groups provide facilitated peer support for mums, dads, grandparents and anyone caring for children with a disability, developmental delay or chronic medical condition. Socialise and share ideas and information with others who understand the rewards and intensity of caring for a child with special needs."
Posted 21 October 2009 - 09:19 PM
Developmental Delay - an information guide for parents
For anyone wanting further information on what a "development delay" is, this is the best pamphlet that I have read - Easy to understand in non-technical language...
Posted 25 April 2010 - 07:56 AM
This is a fantasic article about food capability progression and various sensitivity/mechanical issue impacts, was a real help to me to work out Austins 'food therapy' to take him from white mush to a healthy meal with colour & texture
Posted 19 April 2013 - 10:55 AM
The Australian Patients Association Ltd
03 8849 8461 helpline for any aspect of healthcare system nationally.
The Australian Patients Association is an independent not-for-profit organisation dedicated to championing and protecting the rights and interests of patients, and improving overall patient care and health outcomes
* Improve patient outcomes and enhance the welfare of patients, carers and their families by working co-operatively with all sectors of the healthcare industry.
* advocate for the rights and interests of patients in developing a higher quality, more affordable and readily accessible healthcare system for all Australians
Posted 02 October 2014 - 12:51 PM
Dyslexia Sydney Support Group
A non profit parent run support group for dyslexics, parents, teachers, tutors and others wishing to share and learn information about dyslexia. Lots of information, advice and free guides. All welcome.
Contact Belinda firstname.lastname@example.org
Pinterest boards dyslexia information and resources, spelling, maths, reading/phonics, assistive technology, anxiety, guides.
Open Facebook page for community dyslexia awareness
Closed Facebook group for discussion and support
Dyslexia guides available
Posted 21 October 2014 - 06:15 PM
www.facebook.com/arohaangels for free second hand disability equipment for those with not funding, limited funding, or waiting on funding.
www.justjuniorsdisability.com for a range of paediatric special needs equipment
www.facebook.com/groups/SKOZbuysell a place to buy, sell, swap or give away special needs gear.
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