Jump to content

Roll Call


  • Please log in to reply
30 replies to this topic

#26 GlitterRiver

Posted 22 September 2012 - 04:24 PM

DH was diagnosed (after surgery on 27/8/07) with ACC (adrenocortical carcinoma) - very rare cancer of the adrenal gland.  First surgery in 2007 removed 12-13 cm tumour.  Second surgery on 7/9/2010 removed secondary tumour, plus spleen and tail of pancreas which tumour had impinged on.  Third surgery on 29/2/12 - tumour found to now be inoperable as too close to aorta and too dangerous to attempt safe removal.  Radiation treatments appear to be working.  Secondaries on liver - main tumour and secondaries now smaller.  Cancer sucks!

#27 more than just Mum

Posted 20 August 2015 - 08:33 PM

My 10.5 year old daughter was diagnosed with a left temporal brain tumour in May 2015 after 10 days of partial complex seizures.
Within 4 weeks she had a biopsy and they think it is a ganglioglioma, however the diagnosis can't be confirmed.
It is only a stage 1 or 2 tumour however the word benign doesn't apply to brain tumours as a stage 1 can still be terminal.
She is on watch and wait but will prob need chemo or radiation at some point. Just not yet.
It is only operable as a means of last resort as brain damage would be a likely result.

#28 Miss_Missy_Moo

Posted 14 September 2015 - 12:32 PM

Jaxon is 11 and was diagnosed in Febuary 2014 after one of his eyes turned in and complained of double vision.
He has Diffuse Instrinsic Pontine Glioma (DIPG)
A brain tumor located in the Pons.
He had a biopsy and 3 months of chemo but it did nothing.
He had 6 1/2 weeks of palliative Radiation in June 2015.
DIPG is in operable and incurable, Terminal on diagnoses.
We were told with Radiation we would have 3-9 months.
We are 15 months post radiation.
He has lost the use of his left side and now is needed the wheel chair almost full time, he has limited speech and will soon have trouble eating, his brain is 100% normal just it affects all his body.

#29 whatnamenow

Posted 22 October 2015 - 07:29 PM

unfortunatly they are pretty sure my almost 3yo DD now belongs in this post.  

12 weeks ago during her ASD assessment the psych turned to hubby and me and said whats that lump on her neck?  at that point it wasnt very big and only noticable when she turned her head a certain way.  we asked the paeds a week later who said probably nothing to worry about but if it hasnt gone in 2 weeks see GP to start investigating.  he later said in his report to GP he would be most concerned if it wasnt gone.

GP did ultrasound it was getting bigger at this point on the borderline size of concern 9x10mm and described as slightly atypical.  Still no urgency...  

Another ultrasound 4 weeks later and its grown again around 15mm  now....  GP referred to LCCH in brisbane.  Saw them this tuesday.  initially from the referral ultrasound they werent to concerned.  agreeing a FNA sometime in a few weeks.  they then decided to do an ultrasound at that hospital because she"s stopped eating, is sleeping more and loosing weight.

Aparently it was aweful what they saw.  She's having a full node removal on tuesday and bloods under GA to confirm a lymphoma, and then if they are right our journey begins.

i'm a bit of a mess, we live hours away from the hospital so this will turn our lives upside down.  :(

#30 2004member

Posted 22 October 2015 - 08:48 PM

PP I just stumbled across this thread in the new threads list. I live in Brisbane and if you end up having to come down this way a lot I would be happy to help in any way I can. Please make sure you hit me up.

#31 whatnamenow

Posted 22 October 2015 - 10:44 PM

thanks 2004member.  they flew us home yesterday to get sorted and flying back into brisbane monday. she's on tuesday mornings list.  go from there i guess.


1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 
 
Advertisement
 

Top 5 Viewed Articles

 
Advertisement
 
 
 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.