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Support Group for High Risk Pregnancies ~ # 3


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#26 Wishing2011

Posted 09 April 2013 - 10:46 PM

I'm here, I have just been told I have placenta praevia. I haven't been told I'm high risk but reading up on it is pretty scary. K I hope everything goes well for you

#27 kandj

Posted 27 April 2013 - 02:15 PM

Hi! I was hoping to find a thread like this!  I have just found out I am pregnant -4 weeks...

I have very high-risk pregnancies as well. Well my second was classed as high-risk but my first we were none the wiser.

my son (first child) suffered lack of oxygen in utero and resulted in severe brain injury - lifelong major disabilities.

Second pregnancy they weren't sure what had happened with the first other then serious blood clots in the placenta so I was monitored very closely. Resulting in my daughter being born at 34 weeks - thankfully completely fine - couple weeks in SCU to put weight on but health/lungs etc fine.

so this time with the analysis of both placenta's they were able to determine that it was Villitis of Unknown Etiology. Essentially my body tried to reject the placenta's.

So this time, on top of the aspirin that I took for my second pregnancy there will be a chance I will be taking steroids and clexane as well. All dependant on PAPP A results.
And a very very closely monitored pregnancy!!




#28 aphraell

Posted 21 June 2013 - 01:00 PM

Anyone still around? Was looking for a group like this but seems a bit quiet? Would love to connect/supoport with other's experiencing a high risk pregnancy

My last  pregnancy was high risk as I had just had surgery for Asherman's Syndrome (scarring of the uterus, cervic and tubes due to D&C) and was managed by the high-risk clinic at RHW in Randwick. Pregnancy was uneventful except for DD arriving 7 weeks premmie.

This time, am high risk again due to the Ashermans but added factors of previous prem birth and have been diagnosed with 2 blood clotting disorders (Prothrombin and MTHFR) in the last few months.

Waiting to hear back form RHW next week to see if I am accepted into the high risk clinic again (am out of area so have to apply). If they dont accept me i may need to go to my in area hospital which is RPA - which I am really worried about. They caused the AS and last time I went their (had to go to their EPAS once last pregnancy I had a panic attack)

kandj - how are things going with you? Did you ever have tests doen for blood clotting disorders? What you have described is some of what I have been warned could happen...

Edited by aphraell, 21 June 2013 - 01:02 PM.


#29 kandj

Posted 05 August 2013 - 04:05 PM

A belated reply I know but have only just come back on here - I ended up having a miscarriage and have recently become pregnant again.
I had numerous tests done to see if I had any type of blood clotting disorder but all came back negative. Its just a bit of of unknown as to why my body does it and its pretty rare so there aren't a heap of studies on it to help.
I am hoping this one lasts and is hopefully uneventful (well my version of anyway...). Currently on aspirin and steroids at 6 weeks pregnant. Feeling like sh*te!!!
aphraell have you found out yet if you are able to go to the high risk clinic?? I would be pretty nervous if I wasn't somewhere high risk!!

#30 aphraell

Posted 11 August 2013 - 04:39 PM

Hi kandj - so sorry to hear about your loss. Congratulations in the new pregnancy - hopefully things go smoothly. Have you considered seeing a naturopath that specialises in fertility? Mine picked up there was something wrong after my first miscarriage and had me on a heap of supplements (which addressed blood clotting before I was diagnosed!) and I give her a a lot of credit for my successful 2nd pregnancy. PM me if you are interested in her name.

Yep,I got into RHW - yay! Sadly the OB I saw last time is on extended leave but have been assigned to another high risk OB and he even went and got 2nd/3rd opinions on my blood clotting issue.

How are things going with you?

#31 wally_23

Posted 29 September 2013 - 08:03 PM

Anyone still using this group? I have a few issues in pregnancy that land me in here. I was in here in my last pregnancy (2009-2010) under a different user name though.
Would love to chat to others who understand how challenging this can be

#32 aphraell

Posted 29 September 2013 - 08:50 PM

Hi wally_23,....I'm still on EB, hadn't checked back here for awhile as there didn't seem to be anyone about but just noticed your post.

How are things going with this pregnancy?

I've had a few minor issues detected in scans (13,15 and 19 weeks) and have been referred to the Maternal Fetal Medicine department for a follow up next week. The good news is that I will be seeing the OB there that managed my pregnancy last time and going to try and get him to take over my care entirely as not really feeling like I'm getting the same level of care this time round with the different team

#33 wally_23

Posted 30 September 2013 - 10:54 AM

Hey how you going? At the moment my issues are ok but we start the heavy monitoring (fortnight scans and bloodwork)as of next week. I am isoimmunised to anti-d antibodies, and have a cervical suture for an incompetent cervix. They're the biggest issues. A cpl other minor things.

I'm in a different area this time and they don't have an FMU so seeing and ob for now and he'll send me to Sydney when we hit problems. Expecting them as the rhesus disease gets worse each pregnancy, and this is #3 affected and can cause big issues for bub.

Hope the issues found at the scans aren't too serious, and the fmu ob takes you on.

#34 aphraell

Posted 22 October 2013 - 10:03 AM

How are you going wally_23?

After two scans through Fetal Medicine and some blood tests we finally got the all clear on the issues found in earlier scans (bub will just get an extra eye check at birth to triple check one thing)


And even better when my old OB for the Fetal Medicine  scans he asked if I wanted to be transferred to his care for the rest of my pregnancy - I didnt even have to ask.  I didnt realsied how stressed I was feeling about the care I was getting with the other OB until that happened, feel so much calmer now.

#35 wally_23

Posted 25 October 2013 - 10:06 AM

Great news about your change in care and bub is doi g great! Hope the eye check post birth goes well too.

Im going ok, were on fortnightly scans and bloods now. Amother issues was discovered at thia scan. I have a velamentous cord insertion. I havent seen my dr again yet so waiting to hear what our plans to monitor that will be. From reading up some studies and.others experiences it could affect bub or it could all go fine. Ots a big wait and see :/

#36 mozzoro

Posted 23 February 2014 - 02:57 PM

Bumping up an old thread

Baby has been diagnosed with an anterior encephalocele, first noticed during the NT scan at 13+4 and diagnosed officially at 14+4. I have an early morphology scan booked for this week at 15+5 to check if the brain has herniated or if kidney function is impaired. Luckily no indication of hydrocephaly at this stage.

We have already been offered termination twice this week, but plan to monitor and continue our pregnancy. Baby has been kicking already so finding it hard to think about terminating. Poor fiance is having to look after me as well as I have moderate hyperemesis.

#37 YAH

Posted 09 August 2014 - 10:54 AM

Hey everybody I'm kind of new here and I normally never get on forums,  but I really need some kind of support.
Im currently 34 weeks pregnant and I have Cystic Fibrosis, the doctor wants to induce me at 37 weeks due to my health it's deteriorating faster the longer im pregnant. Sadly the problem I'm having is my husband has been treating me pretty bad the past couple months constantly telling me I'm lazy, that I never want to do anything (im not supposed to be doing anything plus I'm constantly feeling sick), I shouldn't be feeling bad because I don't do anything.  Thing is I've almost died twice thus far from this pregnancy and apparently that hasn't fazed him in the least he still treats me terrible and is verbally abusive at times. Up till a couple weeks ago I was able to clean and go out to friends houses (per his request even though I'm in a great deal of pain and feeling very sick) but I've been unable to really sleep and I have faults labor pains constantly. Im just at my wits end I'm tired of crying and feeling guilty because of him please does anyone know what I'm going through :'(

#38 Mariafaith

Posted 11 August 2014 - 12:38 AM

@yah- iam very sorry for the way your husband is treating you. But who am I to judge him, there is no point of being angry too as you would be just like him. I know you are the one needing all the care and support right now but just give yourself a few moments to reflect that it could be his way of coping through the stress too. Remember it is both your baby. Find a time when he is in a good mood and open a conversation about how he is doing as well then maybe he would start to realize that he is also in a depreessive state that both of you can help each other out... I know it is easier said than done as i dont know him but if he really is just nasty, why dont you move to your parents' house for a while to relax. You dont need stress now. That could also help both of you to have that little space.

I know he should be by your side especially through this tough time, but if he doesnt want to be part of it, find someone like your family, who will. One step at a time.

#39 ontheroadagain

Posted 13 January 2015 - 02:17 PM

I was wondering if there was anyone else experiencing a high risk pregnancy due to cervical incompetance? My first bub was born at just 25 weeks, and now that I am pregnant again I am seeing a high risk specialist. He diagnosed me with incompetant cervix at my first appt. In fact it was only 18mm at my 8 week appt so I am booked in for surgery very soon.
Is there anyone else on this forum who has been in the same boat?

#40 Kizdiz

Posted 16 January 2015 - 06:04 PM

High Risk Spina Bifida
Hello
I Haven't done this before, but I'm going out of my mind. I got a call from dr today to say my bloods for downs came back low risk for downs but Hugh risk for Spina bifida. I have to see a specialist. I am 1 in 30. Just had a melt down and just need someone to share their experience.
Thanks.

#41 Kizdiz

Posted 16 January 2015 - 06:25 PM

I don't know if this is be right place for me. I got a
Call from dr to see her Monday for a specialist referral as I'm a 1 in 30 chance of Spina bifida. This was a result of the NT blood work. The scan looked fine but bloods say something else.
I'm really feeling awful about this and have had several meltdowns. I don't know what I'm
Looking for on here, I think I just needed to vent!

#42 DockerGirl

Posted 30 January 2015 - 02:18 AM

View PostKizdiz, on 16 January 2015 - 06:25 PM, said:

I don't know if this is be right place for me. I got a
Call from dr to see her Monday for a specialist referral as I'm a 1 in 30 chance of Spina bifida. This was a result of the NT blood work. The scan looked fine but bloods say something else.
I'm really feeling awful about this and have had several meltdowns. I don't know what I'm
Looking for on here, I think I just needed to vent!

Hi Kidz,

I was just having a look through this forum, but it doesn't seem to be well attended. How are you feeling and have you had any progress? I believe there is also a group for high risk NT results, with some very experienced members on there so it might be worth it to get on there.

http://www.essential...-nt-results-45/

Please feel free to vent away :-)

Edited by DockerGirl, 30 January 2015 - 02:21 AM.


#43 Stellajoy

Posted 26 February 2015 - 01:49 PM

Not sure if this thread is very active but I'll post here in case anyone wants to start it again. I've just been diagnosed with type 2 diabetes and I am 8 weeks pregnant. Anyone else around struggling with coming to terms with a high risk pregnancy?

#44 mum*mum

Posted 04 March 2015 - 12:56 PM

Hi stellajoy,
Not sure how high risk I actually am just yet. I have been told I am high risk for preeclampsia due to preexisting blood pressure issues. And have just been diagnosed with gestational diabetes. It appears to be my fasting levels that are a problem so I expect I will be on insulin soon enough (I was for my first bub). I am only 13 weeks so the next 27 weeks will be a bit of a wild ride! How is your diabetes going so far?

#45 Stellajoy

Posted 04 March 2015 - 06:58 PM

Hi!

Just had my first insulin injection today. Took me ages to do it though. It's brought my sugars down heaps but not quite in the good range so will probably have my dose upped. My fasting levels are terrible too so I'm hoping to wake up tomorrow to see a difference with the insulin!

#46 SpeedBump

Posted 05 March 2015 - 07:39 AM

Hi all :)

I'm high risk by age (only 38 but the way drs carry on you would think I was 68).  Last 2 pregnancies I also had GD, insulin controlled very early on for each (They are now 2yo and 3yo). As I am prediabetic naturally (genetics) its not a case of if I develop GD but when. Im currently 14 weeks pregnant with a high risk nt scan as well. Just thought i would pop in and say hello.



#47 Stellajoy

Posted 05 March 2015 - 08:21 AM

Hello SpeedBump! Waiting to hear about GD must suck, at least when you know you can just crack on with it

#48 SpeedBump

Posted 06 March 2015 - 04:17 PM

Hello Stellajoy :)

To be honest it doesn't worry me. I'm also high risk due to cone biopsy 20 months ago... that's kind of stressing me more. But I do understand how awful it can be to be diagnosed with GD and have to use insulin. I am not looking forward to the finger pricks again! I have a feeling I have already gone into GD but my dr was rather useless, I see a new GP on Monday so hopefully I will be booked into an antenatal clinic very soon and if its anything like last time they will look at me, have a laugh and tell me to get my butt over to the diabetes educator for booking in.

How are you finding the injections now? I know it's only been a couple of days for you. What were your fasting levels like overnight?



#49 Stellajoy

Posted 06 March 2015 - 06:39 PM

They still take me awhile to gather the courage to get the needle in but they don't hurt which is great. My fasting has been about 7.9 and they upped my dose so I'm down to 6.4 this morning and I've upped again so hoping tomorrow is better! I eat like a saint so not much I can do there. I don't like the finger pricks either but my Educator gave me this neat new little acu check lancet which you can barely feel

#50 Stellajoy

Posted 08 March 2015 - 09:27 AM

4.5 this morning so finally getting. Somewhere!




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