IVF multiple cycles & the long Haul Proposed Buddy Group
, Apr 13 2010 02:03 PM
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Posted 27 April 2010 - 10:03 AM
I agree with you Hollywood I am due to see my FS in may will probably have another cycle. I have discussed with my husband that this might be my final year of trying. Unfortunatly we might have to accept the fact that we might be a childless couple and just live a selfish lifestyle.I also looked into surrogacy so that might be another option.I have pm'd a lady in this forum tjat has done surrogacy in india and she is more than willing to help me with any information i might need .
Posted 27 April 2010 - 10:21 AM
I just wanted to ask, for those of you who have had a really hard and long journey - what does you FS say? 17 cycles - what advice does your fs give you? do they say you should keep trying or stop?
I cant imaging how awful it feels for you hollywood...
Posted 27 April 2010 - 01:27 PM
Apparently the rules in Australia are pretty strict on surrogacy, you either need to have no uterus or have a medical condition that prevents you from falling pregnant other than multiple IVF failures??????? Go figure! I had not even entertained the thought of going to somewhere like India, may have to bear that in mind....btw there is nothing selfish about living a lifestyle you don't want too!!! I would be interested to hear what you find out about surrogacy in India. Take care
I have seen 3 different FS, and each one has a different approach, the first one put me on every drug imaginable and it was incredibly hard to cope with, then the 2nd one tried nothing and after 3 cycles told us that it was unlikely we would have a baby ( I was only 28 mind you!) then we moved interstate and found the most amazing clinic and FS, he has been open to trying different things and his attitude is that most people who keep trying will fall pregnant, it is just a matter of the right embryos in the right environment at the right time. He recently told me of a lady who took 22 cycles to fall pregnant with her first and then 1 cycle for her second child. Hearing stories like that spur you on to do more. Everyone has their limits though. Allow yourself those down days, we all have them
It is sad to see your partner interacting with other peoples kids, it is a real reminder of what they are missing out on.
....I went to my first Zumba class last night, heaps of fun....so good to have my body to myself for a while!
hope everyone is having a good day!
Posted 27 April 2010 - 05:39 PM
There are some ridiculous rules in Aust aren't there - that surrogacy one is a classic.
Hope that chocolate pudding helped you feel better Stillinhope. The next 2 weeks before you start again will go really quickly. Is your FS changing anything for you this time?
Cat, I know what you mean about trying not to think about it - but does anyone actually manage that?
Hollywood, that must have been a massive kick to be told you prob. wouldn't have children when you were so young - your 17 cycles just blows me away. I don't know where you find the strength to keep going, but it's wonderful when you hear of a success story like the one from your FS. I have seen the ads for Zumba - looks like heaps of fun!
Zanon, it sounds like you have a lot of thinking to do before your next appt. Are there other protocols that you'd like to try for your next cycle?
I had my tfr yesterday, and got fantastic news from the lab today - 2 frozen blasts!! This is the first time we've made it to the freezer in 5 cycles, so I am over the moon!! I have my first appt with the counsellor this Friday - after falling apart quite badly last time I want to see what I can do to protect myself if it's another BFN.
Posted 28 April 2010 - 12:30 PM
Well im off to see my nurse on friday to get the run down on my new regime and be introduced to two new drugs!
I am not really looking forward to starting this cycle as the last one was soooo hard and devestating.
I am doing an antag this time with clomid LH booster and some other thing i cant remember, aswell as prednisolone, clexane, pregnyl, and ofcourse ogalutran and puragon.Oh how i love puragon pen compared to clexane and ogalutran needles! Spring
- that is so exciting. 2 frosties, one of the early hurdles and a hard one at that..Congrats! Hope you have a good 2ww (if theres such a thing!) and not too stressed. I actually find allowing myself some time on here
(EB) to indulge in my fertility journey each day helps..no one else needs to know!Hollywood
- firstly what is Zumba? sounds fun!
22 cycles? oh my goodness..i dont think i could do that, financially or emotionally...but its so amazing isnt it, and then only one cycle for the second..that gives me hope too..
I know what its like having a fs that says horrible things to you.My first one spoke so loudly that when i was in the waiting room i could hear what she was saying to the other patients. This was my first ap when we realised that things were not right, ap was with a gyno. She sent me for tests and said i had an incrediably thick lining and that i would need a curett and ivf. i couldnt believe it, i was shattered. I was on my own and about to bawl my eyes out. Then she said to me "oh no, i read it wrong its mm not cms, oh thats perfectly normal". She also gave me a heap of brochures about disabilities and when i said what do you do if that happens she said "you terminate". I was stunned and wondered if she had heard anything i had said at all.
I was so upset and hurt by her short and harsh ways - hence never went back there!cheshire_cat
- hope your ok, i know it so hard seeing Dh with other kids. We were sitting our God daughter the other weekend and she adores my Dh. Shes only 16 months. she followed him everywhere and only wanted him to pick her up. Soooo gorgeous and heartbreaking all in one.
Hope your coping with the syneral
hope your weeks are going well..keep us posted!
Posted 06 May 2010 - 08:02 AM
Just an update on me ,We went to see my FS yeaterday and he has me on a new protocol for my next cycle i will be on Prednisolone, clexane and pregnyl for my lateau phase .So he believes not to give up hope because with the way i am responding to treatment it looks promising,anyway we'll see I always feel positive when i start a new cycle but end up disappointed.We are also considering going on the list for donor sperm which has a long waiting list.
I hope you are all well.
Posted 06 May 2010 - 12:53 PM
thats good news. I am just about to start my cycle tomorrow with Clexane and Prednisolone & Pregnyl too. I used them on my last cycle and have heard that people have had good results..fingers crossed hey! I am also having estrogen and clomid with this cycle too.
I know what you mean about ending up disapointed...i am a little apprehensive about this cycle and not very positive which i making me a bit stressed. Dh keeps saying do i want to wait another month..but i dont cos i have been waiting so long already and dont think it will make me want to do it any more than now....
When does your cycle start?
Posted 06 May 2010 - 01:43 PM
I really and truely hope this is the cycle for you please be positive and I do know it is hard to remain positive .Well i am waiting for AF to arrive then 21 days after that i start the lucrin so i am calculating around june will be egg pick up and transfer.
Did you have bad side affects from the Prednisolone?
Posted 06 May 2010 - 04:54 PM
no, no real side effects from the prednisolone, but it was hard to say being on such a concoction of drugs. I generally felt pretty crappy at the time...but it may depend on how high your dose is. I am on 20mg a day. When i googled it, some ladies said they put on weight (just great!)...i'll let you know if i notice anything this time round!
I too hope this is the one and that im not tainting it by not being thrilled to bits about it!!
My Dh will be in Sydney again next week (as he was last cycle) so that doesnt help either..he did tell his boss the other day which was a big step for him , so thats good. He seemed pretty understanding...
So i gather you're having 'time off' this month? Enjoy it..its the best isnt it - having your body feel like normal for a little while....
Posted 07 May 2010 - 07:47 AM
I'll be on 40mg after egg pickup and then 80mg after transfer,he did warn me about wait gain but hey hopefully i get a positive so there will be a happy wait gain anyway.It does feel good having my body back for a little while also when i cycle i become so emotional and touchy i'm like the devil woman.
Posted 07 May 2010 - 07:59 AM
Sorry, I've been MIA lately
Hi to all you lovely ladies, I've been reading just not posting...
Good luck with this next cycle Stillinghope and also Zanon.
Cheshire - your next cycle should be coming up soon?
Spring & Hollywood hope you are well.
Nothing to report on my end just popping metformin, DHEA, COQ10 & baby asprin everyday to get ready for my next cycle which will be in June or July haven't made up my mind yet but I have decided that for the first time I'm going to have a week off work after ET, probably won't make any difference but it'll make me feel better if I take it just that little bit easier.
Looking forward to a nice cold (I love the cold weather) relaxing weekend.
Posted 09 May 2010 - 04:17 PM
I have been a long time lurker and now first time poster in this area. I hope I can be a part of this group. Bit about me - I am 36 and DH is 37. We have been TTC #1 since 2004 and have been through six stim cycles, 2FET's, one donor egg cycle and 18 embryo's and still no success. I've had 2 Fertiilty specialists and and independent review by a third and still nothing. There is some odd things about me (bit of endo, kind of bizarro anatomy, high FSH & poor responder) but all three specialists can't seem to find a reason why our embies don't want to stick. I was really devastated by the BFN from our most recent cycle as it was donor eggs (my beautiful little sister) and I thought by taking my wonky genes/old eggs out of the mix it just might work. Clearly not!!
Anyway mothers day is really a downer and a friend that started this IVF thing about a year after me is having her second child (ICSI) on Tuesday and I am a bit (actually a lot) of a mess.
I am amazed at how you girls have kept on going. I find it quite inspiring and I'm hoping that chatting to some girls in the same boat might get me in a better headspace as nobody else really gets it!
Will go and read up on you all now and be back later for some personals
Posted 09 May 2010 - 06:05 PM
I would love join such a group. We've been TTC our baby for 4 years and think it would be great!
Posted 10 May 2010 - 03:51 PM
Welcome Amanda Mc & barrenbird!!!
what a long and hard journey you've had. I really do feel for you - and as we are all in the same boat (at least simillar) you know that we really do. I'm glad you've joined!
This is a fantastic space that you can share all about your journey and not worry that people are going to tell you to relax or stop trying so hard etc.
With your new FS - have they tried you on any new meds or tried different combos for your cycles? I am on prednisolone, clexane, pregnyl, prognova amongst others but these are suppose to help with implantation...
I have found now that my FS is not looking for the cause of my 'unexplained' infertility but just trying everything to get me pregs..which i guess is good...
Mothers Day - well. As if we dont have enough to deal with! I pretty much deal with mothers days now by only seeing my mum and not going out too much. even facebook is a no go zone with everyone putting up wishes for those who are
mothers....anyway enough of that.
Hows everyone else going?
- i know that devil woman
. she must rotate between us! wow 40 then 80mg of prednisolone..i wonder if i should ask to be put up..??!!
As for me, I am Currently day 5 of my cycle. Started puregon on friday, prednisolone and clomid for good measure! Not feeling too bad except for the hotflushes...dang they're hot! Scan and BT tomorrow..hopefully theres some little follies growing already...OPU maybe Sat/Mon..really hoping for a week day so my FS can do the surgery..
Posted 10 May 2010 - 03:54 PM
hey Kimbar - did ur FS put you on this or did u just get it over the counter?
Posted 10 May 2010 - 03:55 PM
hey Kimbar - did ur FS put you on this or did u just get it over the counter?
Posted 11 May 2010 - 08:18 AM
Stillinhope - you can get it at the chemist in the vitamin section, I get the 150mg capsules and it's about $33 or something like that. My FS didn't prescribe it but after reading a few things on here I decided to give it a go and since it's only a vitamin it's not like it's going to do me any harm.
What's prognova - is that like the provera tablets???? I know some people take them after ET, I have some left over at home from when I was doing the down reg cycles and was thinking of taking them after ET next time.
Welcome Amanda Mc & Barrenbird and hi to everyone else!
Posted 11 May 2010 - 01:04 PM
Got a bit sidetracked and haven't been back!
Stillinhope - I have been on every combo that I could possibly think of.Have done Down Reg, Antagonist, & Min Stim cycles during this journey. The only cycle I've not done is Oestrogen Priming and it sounds shocking so we kind of drew the line! I kind of pushed my FS into trying things even though there was no real reason to do it (clexane & prednisone) the longer this has dragged out the more open he is to trying different things. The last couple of cycles that I stimmed on were Minimal Stimulation Cycles - I seem to get 3 or 4 eggs regardless of the drugs they were throwing at me so they stopped giving me mega doses of injectibles and I had a drug called Femara/Letrozole for the first couple of days and then Puregon/GonalF till egg pick up. This sounds like what you are curenlty doing. They were really easy cycles and yes the hot flushes are gross but still no success for me. The clexane made me bleed and bleed and hgave me bad bruises and the Prednisone wasn't really noticable for me. I also have a condition similar to Chrohn's disease and when I gat flare ups of that I have mega, mega (injected 100mg a couple of times a day then tablets starting at 80 and weaning down) doses of prednisone for extended periods of time. When that happens I get fat and can't sleep and get really moody. The little bit I was on for IVF really didn't register! I hope your scan went well today and things are moving for you.
Kimbar- I used to be a CQ10 girl too I think it is good stuff and it seems to ba a lot cheaper now than when I started using it. I think that my next round will be in June/July (if AF ever decides to show up) so it would be nice to have someone going round with me!
Zanon - Hope things are going well for you as well. You sound like you are pumped up ful of drugs too!
Hope everyone else is chugging along with whatever it is you are up to.
My friend had her baby this morning and I was so cranky until I heard the news and then had a cry in the car before going back to work. Got a great game face here. Honestly it is like a festering wound that just will not heal. I think I might have to go back and get more counselling because I'm not really nice to be around at the moment (for my DH really! He's the only one who see's the sadsack, weepy and evil girl). To top it off AF is missing and I know that I'm not pg and it is doing my head in. Maybe my ovaries are finslly calling it quits. Wish my body would sort itself out. I really hate it at the moment.
Anyway hope all is happy with everyone else and talk soon
Posted 11 May 2010 - 01:04 PM
i Had my scan today..21 follies..thats pretty good for me. I'm just hoing now that there'll be eggs in them so we get a better emby result...onto orgalutran now
Kim - yeah prognova is eostrogen tablets. i have to take them from today - not sure how long for tho...they are to help with the thickening of the lining for implant..yay please please work
Posted 11 May 2010 - 01:23 PM
Stillinhope - 21 follies that's great! Do you have an EPU date yet?
Barrenbird - it will be nice to cycle with someone yay!!
I won't be posting in the 2WW Buddy group though, I'm going to try & keep it low key it just gets so depressing to have to get on there and say, I'm out again....I also get annoyed when there are a bunch of lovely ladies in there giving the run down of everything they're going through and then all of a sudden someone who hasn't been posting at all pops in just to say, Hey I got BFP today, I know I'm being nasty and they just want to share their news but it seems wrong to me - sorry this turned into a bit of a vent......
Posted 12 May 2010 - 09:03 AM
So far no date for OPU - but i have another scan tomorrow so will find out then. I am already on the Orgalutran so guess it maybe sat or mon..im really hoping for monday so my fs can do the surgery..
barrenbird - Oh my, you really have had everything...it it such a hard time when your close friends have a baby. My besti is having hers in july. All i wanted was to be pregnant by then so it would be so bad..
I think the extra counselling is a great idea, i know its sometimes had to think positivly even about that, like what are they even going to be able to do for me, but they know all this and its still good to have someone else to bounce things off and cry too...i really hope you're doing ok and feel for you
kim - fair enough - i dont like the 2ww either anymore. we can just stay here and support eachother...ps its ok to vent here - we all have those times and need to get it out!
hi to everyone else - hope you are all hanging in there
Posted 17 May 2010 - 06:50 PM
Have had a stupid week so ahven't been back for a while. My AF has disappeared altogether (6wks tomorrow - yes I wasted more money on HPT's and guess what it is a BFN) and I have had 2 migraines in the space of 4 days. I went to hospital and got some pethidine yesterday for the last one so I feel good today!! Got a blood test today so hopefully it will figure out what is wrong with my blahhh body and we can get ready for the next FET which will be June if I can get some sort of resolution to the absent AF problem. The times you want it it never comes hey!
Still - 21 follies is huge! Do you get this everytime? I hope by now you have had your pick up and things have gone well for you.
Kimbar - I totally agree on the 2ww buddy group thing. Drives me a bit nuts actually. You kind of always know that you'll be the one posting a BFN when everyone is OMG a BFP....mmm not good. Here will be just fine thanks..
To everyone else I hope all is good
Posted 17 May 2010 - 09:31 PM
well I am full as a googie with follies and hopefully eggs too!
OPU tomorrow, I am totally fine about the procedure but soooo nervous about finding out how many eggs and then no of embys the next day...
This is a record for me, last opu I had 16 follies, 6 eggs and then only 1 emby. The rest didn't fertilize at all. This time we're having ICsi.. I am also nervous about this....
Does anyone else have any exp w icsi?? My besti is preg with her 1st (due July) also an icsi baby, so trying to be hopeful.
Barrenbird- hope af is all back to normal soon, just curious, have u had a pg blood test done?
warm hugs to u all, take care..
Posted 18 May 2010 - 08:02 AM
Good luck today Stillinhope!!
DP & I have always done ICSI and usually all our eggs fertilise - mind you we've never had any to freeze but ICSI has definately worked for us.
Let us know how you go.
Posted 18 May 2010 - 09:01 AM
Sorry I haven't been around for a while - my last cycle didn't work, and I needed to take some time away from thinking about it. Apparently it was a perfect embie, and I really thought our luck had changed, but no. Every failed cycle now seems to be a big step closer to it never working.
stillinhope, good luck with EPU today - we have no sperm problems, but only got around 50% fert. with IVF. We get around 70-75% with ICSI, so hope that this helps you too.
barrenbird - what is with our stupid bodies. The only time you want AF to show up it goes missing! I am also hoping to do my first FET next month.
Kimbar, I also self-prescribed coQ10 - have taken it for the last few months, and last cycle was our best embies - first time any have been ok to freeze. Don't know if it's related, but definately can't hurt.
I am thinking about seeing a naturopath - has anyone else been down that path also? I do eat well, exercise etc, so I don't think that's the reason, but just not sure if it can help implantation at all.
hope everyone is going ok.
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