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Hysterectomy Support Group #2
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#1 Freckles

Posted 03 October 2010 - 07:49 AM

Time for a new thread ladies. original.gif I have pinned it for you, although if the demans isn't very high I may unpin it again.

If someone wants to compile a thread with all the advice from the old thread I am happy to pin it for you. original.gif

Old thread is here.

Please PM me if there are any problems. original.gif

Emma


#2 ~twoplusone~

Posted 03 October 2010 - 10:45 AM

Hi  waves.gif

Welcome to all the newbies original.gif

I have been up and down with my recovery it is nearly a year ago.  I had more surgery to repair my vaginal cuff and to remove some adhesions.  Emotionally it has been a rollercoaster and I have put on weight which I am not happy about.  Physically it was the best decision I ever made the hysterectomy has elimated the agonising pain and heavy periods I used to have.  I get pain still but no where near the pain I used to get.  I get tired alot of late but I think that is due to the weight I have put on sad.gif

I hope everyone else is doing well and that we can keep this thread going with support and advice.

Cath

Edited by ~twoplusone~, 21 October 2010 - 06:56 AM.


#3 Jeni

Posted 03 October 2010 - 01:08 PM

Hi I am nearly 9 weeks post surgery and feel great. I recovered a lot better than I thought I would and have found it easier than the 4 ceaser births that I had. I am feeling the best that I have for a long time.
I am starting a course tomorrow and then hope to get back into the workforce, because of my health I gave up work nearly 2 years ago, so really getting back on the track of living lol.

Jeni

#4 cath4kids

Posted 05 October 2010 - 01:23 PM

Hi,
Time for me to join this buddy group. Am having a hysto on 16 Nov. Years of issues from AF and 6 caesars have led me in this direction. Really hoping it will solve issues.
For those that have had one and recovered, has it helped.



#5 SandyR

Posted 09 October 2010 - 08:41 AM

Hi ladies, I'm 11 months down the track from a complete abdominal hysterectomy plus bowel and bladder repair due to adhesions. I have a huge vertical scar frok my belly button down. For me the recovery was slow, definately worse than my c/s even though one was a classical and one my uterus ruptured.

My recovery has also been slowed down due to other medical issues (I have a back injury) but I can honestle say this was absolutely the best decision for me. The bleeding/hemorrhaging and pain are gone and my bladder and bowel problems have lessoned.

I am on hrt now as the menopause issues were doing my head in. things are alot better with the hrt, but I still get some night sweats.

More than happy to answer any questions from those waiting, best to alert me via pm that there is a question though original.gif

All the best


#6 Jen1

Posted 13 October 2010 - 07:25 PM

Just wondering how long you stayed in hospital once you had your hysterectomy?  Did you find you could drive before the 6 weeks or beforehand?

TIA.

#7 cath4kids

Posted 18 October 2010 - 11:32 AM

Hi Sandy,
I have read your journey during my time on EB and I am amazed at what we are able to cope with. You are inpsirational.
My last caesar was vertical due to adhesions and the doc will be taking the uterus through the same cut. I will be keeping my ovaries.
He has done all my surgeries except one, so knows my insides well. I am aware of complications esp with adhesions, my bladder and uterus are joined.
I am expecting to be in hosp for 5 days and will be going home to rest as much as I can, my mum will be staying for as long as we need her.
jeni, I'm glad you have come through this so well, you sound very positive.
I guess I don't really have ?'s but support would be great.
ATM I am in bed recovering from a broken foot and sprained ankle. I fell down stairs. I'm hoping it has recovered by the time I have surgery. Between AF, the flu and broken bones I have spent nearly the last month in bed.
Jen1, I drove post caesar in the 2-3 week mark. But everyone recoveres differntly. If it doesn't feel right, then don't do it.




#8 71Cath

Posted 18 October 2010 - 02:32 PM

Hi all, waves.gif

I actually had my hysterectomy nearly 3 years ago and had a great recovery.  

My question is a bit strange: Since the doctor left my ovaries, I presume I am still ovulating, but I don't know when.  Is it worth getting those OPK's that the ladies TTC use to try and see what is going on?  I guess I don't really need to know at the moment, but keeping a record might be handy for menopause-type symptoms down the track?  Or I guess it could be a way of tracking mood swings/PMS?

Sorry, I am a bit confused!

#9 cath4kids

Posted 26 October 2010 - 12:51 PM

You could map out your mood swings and see if they fit what your cycle should be. I have read that leaving ovaries can lead to an earlier menopause.
Even though my tubes are tied atm I still have ovulation pain. I expect I'll still have that after the hysto.




#10 71Cath

Posted 29 October 2010 - 08:11 AM

QUOTE (cath4kids @ 26/10/2010, 01:51 PM) <{POST_SNAPBACK}>
You could map out your mood swings and see if they fit what your cycle should be. I have read that leaving ovaries can lead to an earlier menopause.
Even though my tubes are tied atm I still have ovulation pain. I expect I'll still have that after the hysto.


Thanks cath4kids for your reply, I had heard that about early menopause.  Since my mum didn't start menopause until her mid 50's, maybe early wont be as early as I think.  I might try tracking my moods (although DH says I am pretty moody at the best of times so that might be interesting!)

#11 cowsnorm1306

Posted 01 November 2010 - 12:11 PM

Hi I am not sure if I am in the right place as this is new to me!!  I had a hysterectomy on the 26th 10/2010 along with an anterior and posterior repair.  I am feeling ok at the moment still some pain and problems with emptying my bladder but other than that every day I am seeing improvement.

I am just wondering if anyone can tell me what sort of things I can be doing now.  I have two boys aged 4 and 7 and a busy husband who is not home very often.  I would like to tackle some ironing and would also like to get a load of washing out of machine that has been in there for little while and put in dryer.  Just not quite sure whether I should be doing any of these things??  

I don't want to undo all the good my gyno has done as I had my hysterectomy because of uterus bladder and bowel prolapse.  Things were all hanging out down there so do not want to go down that path again with bladder and bowel

Thank you and I hope someone can help
xoxo

#12 Tiffysmum

Posted 01 November 2010 - 03:48 PM

Hi I'm new here. I'm not sure what to expect or how I will feel after my hysterectomy, which will be booked for early next year. I am interested in reading others experiences. I will have full details of my op and a date when I see my gyn on the 9th of Nov.

#13 Tiffysmum

Posted 10 November 2010 - 07:39 PM

cowsnorm I think this forum is not active very often. I'm going to look at the hystersisters website (which a friend of mine suggested) and join as its specifically for hysterectomy support. Just thought you might like to know about it.

#14 notorico

Posted 22 November 2010 - 07:49 PM

Hi

It looks like I am heading towards a hysterectomy early next year. Today I went in for a hysteroscopy, d&c and to have a mirena inserted after a history of heavy periods. I now have moderate anaemia so we were looking to see what the reason was and what could be done. My Gyno thought a general clean out may help as well as the Mirena.

When I woke up I discovered they hadn't put in the Mirena. It turns out that because I have had 4 c-sections things are a bit of a mess. My cervix has been drawn right into the uterus, there is not much of a cavity left and I have fibroids, so the hope she had of this procedure fixing my issues has pretty much evaporated.

So it looks like I will be having the hysterectomy, which I am ok with. My family is definitely done. I have had heavy periods, with a 22 day cycle since my last was born (5 yrs). I believe there is no need to take the ovaries so I believe I may be ok in the hormone department (is this correct or am I having myself on).

At the same time I am also getting my pelvic floor fixed. Which I can't wait for, I have lots of issues again as a result of the 4 c-sections.

Anyway, any advice, or any questions I should ask the gyno would be great.

Thanks

#15 mummytoaidan

Posted 30 November 2010 - 04:52 PM

Hi Ladies,

I am Kate, I am mummy to a beautiful little man who is turning 2 on Sunday. My intro may be long, so be warned lol.
I had 4 miscarriages and a partial molar pregnancy before my son, who I had pre-term labour and bed rest with. I was lucky enough to get my miracle little boy but things then went downhill again.
I had hysterectomy done 26th November last yr, one day after turning 23, then last Tuesday I went back in to have remaining ovary removed, had fallopian tubes removed, along with adhesions and endo which covered my bladder. So I spent my 24th bday in hospital.
I am still in a lot of pain and now trying to deal with the instant onset of menopause, they tried me on the HRT patch but I had a reaction to it, so am now on Premarin tablets. The hot flushes are ridiculous, I had heard women talk about them but had no idea! Also I am so teary, I have cried so so much. Also feeling very tired. Kind of over it I can tell you.
Thanks for listening, and look forward to hearing from you'

#16 ~nj~

Posted 26 December 2010 - 07:59 AM

Hi everyone
Seems I am joining this group.  I have been reading your stories with interest - thanks for sharing.  I am booked for a total vaginal hysterectomy, anterior and posterior repairs with both sacro-spinal and utero-sacral hitches in March. (Gravity is NOT my friend!).  I am just a little terrified ... recovery is a big deal and there is a small risk of altered sexual function.  So, I am interested hearing about your experiences ...

#17 ~Bean~

Posted 03 September 2011 - 06:40 PM

Quiet thread...

#18 cath4kids

Posted 06 September 2011 - 11:31 AM

Not the best experience n the world. I think most ppl are willing to give up info if asked.

#19 ~Bean~

Posted 07 September 2011 - 07:01 PM

I understand that Cath, I am a week post hyster and sacrocolpopexy.

I am just surprised for something so massive it is such a quiet group.

And look, my comment drew you out of the thread woodwork original.gif



#20 joddic

Posted 23 September 2011 - 07:55 PM

thought I would join this thread even though there doesn't seem to be much happening.

I had my hysterectomy and repairs 2 1/2 weeks ago due to uterus, anterior and posterior prolapse.  I left hospital with cellulitis.  They have no idea where it came from but has to have been surgery.  After getting the all clear from that, a couple of days later I thought I had a vaginal infection but it went away so wasn't worried.  Then yesterday the pain and discharge started.  Went to the doctors today and am now on 2 really strong antibiotics.  I just want to feel normal again and be able to sit down properly! (I had a vaginal hysterectomy).

Would love to hear about others recoveries.  How soon did you start to do things?  I have an 8 month old and am lucky that my mum was up here immediately following the surgery and now my MIL is here but in a week she will be gone and I will have to lifting the baby again.

And I kept forgetting to ask my doctor about driving.  Am I supposed to wait a certain amount of time?

Cheers,

#21 ~Bean~

Posted 26 September 2011 - 09:20 PM

Hey Jodie,

I am now about 4 weeks post lap hyster. I have been driving for about 10 days now without too much trouble.

I hear you loud and clear on the sitting thing!!! I still find, even not having had a vaginal hyster, that sitting on firm seats for a while makes me ache.

I still haven't been lifting anything heavy, mainly due to the sacrocolpopexy I had too, but hoping to feel way more normal soon. I am now about 4 weeks post surgery  and still have issues with fatigue and tiredness. I find it most frustrating that my head feels awesome, then I do a few things and lo and behold I am exhausted.
I still get a lot of pressure as well which is hard.

I would think because you had a vaginal hyster, you would need a bit more healing time than me.... I hope you heal well JOdie.

Feel free to PM me if you want to chat.



#22 Sheri62

Posted 08 December 2011 - 12:05 PM

Hi Ladies
I had a hysterectomy in Feb 2011, with a front and back repair.... I found an international forum/group called Hystersister which was good for pre and post hysterectomy.

Not the easiest op to go through and still having my ovaries does leave wondering when I am cycling, I was never spot on 28 days. Am seeing the GP today for blood test results to see if I am going through menopause yet......

Bye for Now Sheri

#23 SuzieMbe

Posted 18 July 2012 - 07:50 PM

HI Ladies,

I had a vaginal hysterectomy 2 August 2011, I had heavy bleeding every 2 weeks when it was bad I bled every week. The pill didnt work then Specialist suggested trying the Mirena which made things worse I bled 4 and 1/2 months then saw the Specialist he removed Mirena and booked me in for a hysterectomy. I retained my ovaries but am starting menopause, the hot flushes are like private summers. Still very emotional Im curious does that settle?? Is there any hysterectomy support in Australia?

Thankyou for listening

#24 BboysFlygirl

Posted 24 July 2012 - 10:38 AM

Hi SuzieMbe,
I just got approved (for want of a better word LOL) yesterday for a hysterectomy. I'd been doing my research prior and I haven't found and Australian sites for support. I've been reading Hystersisters a fair bit though and it seems like a great site. Let me know if you find any Aussie support sites.
Thanks original.gif

#25 ~~annelise~~

Posted 05 September 2012 - 03:52 PM

I had my hysterectomy May 2011, by laproscopic vag assisted.

Recovery was difficult, not being able to rest was huge as fatigue really hits you with this operation.

I am now having awful issues regarding HRT.  For the first 12 months, premarin worked a treat, but my body stopped responding to it.  This lead me into awful menopausal symptoms.  Now, five months on, again I am trialing different forms of HRT.  All making me feel equally awful.

Am feeling quite despondent about it all at the moment.

Op fixed my pain though, now having hormonal issues.

- al -






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