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Following up on those "niggling" concerns about your child


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#1 baddmammajamma

Posted 17 November 2010 - 07:34 PM

I am re-surfacing a thread from two years ago, but now is the time to take action...before the end of the school year/summer holidays roll around.


When I am not busy on EB being a name nerd or defending "American" practices like Halloween, you will often find me discussing various issues related to ASD, ADHD, early intervention in general, and the importance of trusting your gut when you have concerns about your child's development (not just for ASD & ADHD but for any concerns). If you click on the link in my signature, you can see why I am so passionate about this subject.

Maybe you have the 2.5 year old who isn't combining any words...or the 4 year old who is overly sensitive to sounds and textures...or the 6 year old who is coming off a horrendous first year at school because he can't relate to his peers...or the 8 year old who still isn't getting the "hang" of reading....or the bright but massively underachieving 10 year old who dreams her way through school...

If you have concerns about your child -- big ones or a series of "niggling" ones -- I am encouraging you, parent to parent, to go ahead and get the ball rolling with the appropriate professionals NOW while the school year is still in session and before the summer holidays.

Erring on the side of caution and getting things checked out when you have concerns could save you & your child a lot of pain and time in the long run.

A good place to start is with your GP or MCHN, especially if you think you might need to see a specialist who requires a referral. The parents on EB's Disabilities/Special Needs board are also a treasure trove of information when it comes to suggesting great speech therapists, OTs, developmental paeds, psychologists, and the like.

Waiting lists can be very long for public services like speech and OT -- and waiting lists can even be lengthy to see professionals in private practice. For instance, developmental paediatricians -- who are almost always involved in things like ASD and ADHD assessments -- have notoriously long waiting lists.

I understand that we are entering a really busy time of year for so many families, but waiting until the new year might actually delay your access to professionals by months and months. I've learned this the hard way. Plus, for those of us with school aged kids, now is the time to get meaningful input from our kids' teachers --while their impressions are still very fresh and while school is still in session.

Please forgive me for coming across like a lecturing mother (I know I bang on this topic like a drum!), but this is an area that is so near & dear to my heart.

Thanks so much -- and if you think this message is important, please keep it bumped.

~BMJ


P.S: For those of you who have particular concerns about ASD, there is some very useful information pinned atop the Special Needs/Disabilities Board, as well as each "age related" kids' forum. Additionally, I've put together a quick state-by-state summary of how to go about seeking an ASD assessment in your state or territory:

http://www.essential...smentdiagnosis/

Edited by baddmammajamma, 21 September 2013 - 09:48 AM.


#2 delli

Posted 17 November 2010 - 07:47 PM

Bump, just for you BMJ  original.gif

#3 GennaGal

Posted 17 November 2010 - 08:45 PM

Bumpity bump....couldn't agree more BMJ.  original.gif

#4 Sweet like a lemon

Posted 17 November 2010 - 08:48 PM

Bumping again - With a warm thanks to wonderful members like BMJ who continues to raise awareness, understanding and support for families living with autism.

(OT: On the American note, I am gutted about Krispy Kreme! I love their donuts!)

#5 baddmammajamma

Posted 17 November 2010 - 09:15 PM

Thanks, guys. original.gif

I remember being shell shocked when I called to arrange an appointment with a (private) developmental paed & being given a 5 month wait! And then after that, we were referred to a psychologist for another nice long wait. So many providers shut down or scale back during the holidays, adding even more wait time.

How I wish I had known to book early...to call back frequently to see if there were any cancellations. I also didn't know that you could book a specialist & THEN get the GP's referral letter (before the actual specialist appointment) -- another great time saver.

There are some fabulous resources out there to help children who have developmental needs (not just autism but so many other things), but you have to take that first step of getting your child assessed.



P.S: FT, if Krispy Kreme totally goes under here to the point where you can't find their donuts anywhere, I'll ask my mom to smuggle in a box during her next visit. wink.gif



#6 Ruf~Feral~es

Posted 17 November 2010 - 09:32 PM

THank you OP.  I have just this week had DS assessed by an OT - have the appointment for the "results" next week.  I'm am a bit terrified that he is going to come back with a diagnosis on the Autism spectrum, but it is also time I came out of denial.  He is falling behind with his handwriting etc,  I think he has muscle-tone/physical issues, and I want to get working on it over the Christmas break.

It is hard to take that first step. mellow.gif  But I'm sure it will be well worth it in the long run.  Once I get over my mummy-guilt for waiting this long in the first place!

#7 baddmammajamma

Posted 17 November 2010 - 09:53 PM

Ruffles -- Good luck with everything. Try not to be too hard on yourself. If you poll every mother of a child with "issues," I think you will see that very few of us acted immediately after first suspecting that something was amiss. I sure didn't!

It's great to catch issues as soon as possible, but kids have a remarkable ability to learn new skills & make progress against needs even when they are older.

Please feel free to join one of the ASD-related threads on the SN/Disabilities board -- we have quite a few mums whose kids are going through the assessment process/are not definitively diagnosed. Anyone who wants to ask questions, get information, or just dump buckets in an understanding environment is welcome to join.

#8 Ruf~Feral~es

Posted 17 November 2010 - 10:34 PM

Thanks Badmammjamma.  I'm trying not to beat myself up too much.  His kindy teacher has only recently raised the issue with me too - I think we were both hoping he would "grow out of it"......

Whatever it is, it is pretty mild (I hope original.gif ).  He is very bright intellectually (don't we all say that biggrin.gif ) but has a few physical things.  I'll wait until I get the full report and some future plans before I do a "Woe is me" in the kids with S/N threads.  But I know you lovely ladies are there when we need you - and appreciate it!

#9 i-candi

Posted 18 November 2010 - 05:04 AM

Agree !

I just jumped in with an OT assessment for next week. Gave DS teacher a questionnaire to fill in and he asked me why I'm bothering  rolleyes.gif . I just told him it was to get DS high school sorted now (DS starts high school 2012), I didn't (but wanted to) add that I stuffed his primary school life up I may as well do all in my power not to stuff his high school placement up.

This teacher knows all the problems we are having at the moment !

#10 Asterisk

Posted 18 November 2010 - 06:47 AM

Bump.

Good luck to those waiting for/going through assessments with their children.

We're waiting to see a developmental paediatrician about DS's 'quirkiness'. Getting onto it now really will help with the wait.

#11 mamakitten

Posted 18 November 2010 - 07:59 AM

What sort of things should I be looking out for BMJ?

My twin boys have major developmental delays but I feel like there is something else as well if that makes sense? I just don't know if I'm right or not sad.gif I battle with myself so much about it. I tell myself that their little quirks and issues are just a part of their delays but then I wonder if they aren't actually a part of their delays and are something different. I worry about not treating it if is something else but also think that maybe I am just worrying to much.

They currently go to an EEP at a special developmental school 1 day a week and will be going to SDS 5 days a week next year.

I have a paed appt for them this afternoon so if there is any thing I should be asking or any tips about looking into it please let me know.

Please excuse any typos or jumbled sentences. I have been awake with my twins and 11 month old all night and haven't been to bed yet  yyawn.gif

#12 Soontobegran

Posted 18 November 2010 - 08:10 AM

cclap.gif Good one BMJ.

#13 baddmammajamma

Posted 18 November 2010 - 08:44 AM

Mamakitten, this is from my iPhone, so please forgive any typos. If you have time this morning, jot down the quirks and unusual behaviors that concern you - incl. Frequency and intensity. That way, you won't forget when you see the paed (it's easy to get distracted, especially when you are sleep deprived). Regarding things you should be keeping an eye out for...if you go to the toddlers and kids section, there's a board for 3-5 year olds. At the top, you will see a pinned note about ASD warning signs in pre schoolers (there is a related note for younger kids in the 24-36 months section)
Take a look at that checklist. It is not a diagnostic tool or definitive list, but it does present a good guide of the sorts of things that *might* indicate that there is something more in play than just developmental delays. The mums on the special needs/disabilities board are also super helpful in suggesting questions to raise with paeds. Good luck!

#14 baddmammajamma

Posted 18 November 2010 - 08:53 AM

PS: Just want to add that this thread is not about ASD concerns only...it's aimed at any parent who might have concerns about their child's development -- be it speech, fine motor , sensory, behavioral, all of the above, or something else all together. Taking that first step can be very daunting, but I want people to know that they are not alone and that it IS important to act upon your concerns. Ok, off of my soapbox....x  original.gif

#15 Bel Rowley

Posted 18 November 2010 - 08:58 AM

Another bump for BMJ, we're all very lucky to have you as part of EB original.gif.

#16 wallofdodo

Posted 18 November 2010 - 09:03 AM

I am bumping to tell BMJ to go and book her own appointments.

I had a specialist appointment in July, need to have a test. Still waiting... the only person who does it has quit. So no time soon. So GET ON TO IT WOMAN.

#17 mamakitten

Posted 18 November 2010 - 09:42 AM

Thank you BMJ original.gif I'll go and check out the pinned topic now and work on the list after I have another cup of coffee original.gif

#18 9ferals

Posted 18 November 2010 - 10:14 AM

Great advice, lets see if we can keep it bumped all day!
I've worked with people with disabilities for years and will never forget the parent who told me about her 7 or 8 year old "well, she's got 6 words now, so we don't think we need to do anything at the moment".
Please don't wait, it's much better to be aware of what is going on early and get started with intervention if it is needed.



#19 Sweet like a lemon

Posted 18 November 2010 - 11:20 AM

QUOTE (baddmammajamma @ 17/11/2010, 10:15 PM) <{POST_SNAPBACK}>
P.S: FT, if Krispy Kreme totally goes under here to the point where you can't find their donuts anywhere, I'll ask my mom to smuggle in a box during her next visit. wink.gif


You are worth you weight in gold mate.

#20 mumto4monkeys

Posted 18 November 2010 - 11:42 AM

also to note that a paed and a developmental paed are 2 different things.  Not all paeds are developmental paeds.

#21 mamakitten

Posted 18 November 2010 - 11:43 AM

I just wanted to come back to say Thank you to BMJ.

I read the post you wrote in the 3-5 section and it was full of helpful advice and links. I was nodding along to so many things on the early flags list and common characteristics list.

I have also done as you said and written an A4 page and a bit of my twins quirks and behaviours to take to the paed this afternoon.

Thank you so much BMJ for sharing your experience and knowledge. Thank you so much for trying to raise awareness of ASD on EB. I will be trying to keep this thread bumped from now on original.gif

Again please excuse any errors...I still haven't been to bed yet.

#22 baddmammajamma

Posted 18 November 2010 - 12:14 PM

QUOTE (wallofdodo @ 18/11/2010, 10:03 AM) <{POST_SNAPBACK}>
I am bumping to tell BMJ to go and book her own appointments.

I had a specialist appointment in July, need to have a test. Still waiting... the only person who does it has quit. So no time soon. So GET ON TO IT WOMAN.


Wallofdodo, duly noted! I am on the phone right now! original.gif

QUOTE (mamakitten @ 18/11/2010, 12:43 PM) <{POST_SNAPBACK}>
I read the post you wrote in the 3-5 section and it was full of helpful advice and links. I was nodding along to so many things on the early flags list and common characteristics list.


Mamakitten, I hope you are able to get some rest. Thanks for the kind words -- and I'm glad that you've found that post to be useful. I'm linking it below for other people who might be interested (ASD/Autism in Preschoolers).

http://www.essentialbaby.com.au/forums/ind...howtopic=838627

There is also a very closely related thread, aimed more at the toddler age (ASD/Autism: Recognizing the Early Warning Signs)
http://www.essentialbaby.com.au/forums/ind...howtopic=838618

#23 Kay1

Posted 18 November 2010 - 12:15 PM

Good advice BMJ. And now as my mother would say "GO and look after your children's mother!".


Edited by Kay1, 18 November 2010 - 12:16 PM.


#24 stefnie34

Posted 18 November 2010 - 12:45 PM

Yes yes YES! Great advice as always! I wish I would follow it more often myself!

While we were going through the assessment process for dd recently I knew I needed to make an appointment with her paed to follow up once we received her diagnosis, but I kept putting off making the appointment, and as a result we received a diagnosis in October but don't have an appointment with the paed until the end of January  sad.gif  Not exactly timely.....

And while I'm here, thought I'd post something interesting I found on Sue Larkey's website. It is about how girls with Austism Spectrum Disorder often present much differently to boys. Because of this they often go undiagnosed. To highlight this: My dd's kinder teacher has recently done a development course on Autism Spectrum Disorders. I had a conversation with her about it a few months ago, and she told me that my dd didn't have many (if any) of the characteristics they had discussed in her course. But my dd does have many of the characteristics on the following list, and was in fact recently diagnosed with PDD-NOS, which is an Autism Spectrum Disorder. My point is, girls can be tricky to diagnose, especially in milder cases, so if you have any doubts follow your instincts, even if others are telling you not to worry. YOU know YOUR child best.

Ten Ways Girls with an ASD differ to Boys with an ASD
1. Their special interests are usually animals, music, art, literature.
2. They often have a very good imagination which includes imaginary friends, games, being animals or taking on persona of other girls.
3. They often see speech therapists for their speech and may be diagnosed with specific language disorders however there is something different about this girl no one can quite put their finger on.
4. They often play with older children or much younger children. This play is sometimes unusual for example ‘Mums and Dads’ but she will want to play the same role and game every time. She usually wants to be the pet or baby, whereas most girls want to be the Mum or Dad.
5. They often have hyperlexia – the ability to read but comprehension does not always match their reading skills. They are often the class book worm or write stories but they write the same story over and over changing a few characters. Many have a special interest in literature.
6. They have unusual sensory processing, like the boys, however bigger fluctuations often going from one extreme to the other.
7. They get anxious like boys, however their anxiety is rarely physical or disruptive. In fact many have great copying mechanisms at school however the family see a very different child at home where the anxiety can explode.
8. Often their difficulties with social skills are called ‘shy’, ‘quiet’, ‘solitary’.
9. They often like to organize and arrange objects. I watched one little girl spend hours seemingly playing “My Little Ponies” however on closer examination she was just arranging and re-arranging the horses over and over.
10. The main difference is there are MANY more undiagnosed girls/women than boys/men. Currently we only diagnose 1 girl to 7 boys. In the future it is thought by many psychologists the ratio could be more like 5 to 7 as we become more aware of this group.

Edited by stefnie34, 18 November 2010 - 02:35 PM.


#25 MotherClucker

Posted 18 November 2010 - 12:51 PM

BMJ We totally need to do lunch. I heart you!  wub.gif




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