Sorry to hear that Emma has ongoing issues.
I think "they'll catch up by 2" or "they'll be fine by school" is a fallacy in most cases.
Noone can tell me that a baby can miss the third trimester and have no issues. Impossible. So much brain development, hormone establishment etc happens in that trimester.
The level of issues varies greatly, but I think few children would be completely unscathed.
Then again, some issues our children have may not be related to prematurity! We'd never know.
Molly is only 5 and appears fine, but I know there is more going on.
- She has awful teeth. Very pitted enamel. Hopefully the adult teeth will be better.
- She is still small, though having a growth spurt at the moment.
- She has self regulation issues, anxiety issues, attention issues
- SHe has gross and fine motor delays
- She has ongoing eating issues I believe are directly related to being tube fed
- Her sensory profile shows she is very sensory sensitive.
- She had ROP and there are long term implications of this
Not that I'm all negative.
She is a delightful child who everyone adores.
I've done a lot of reading on The preemie experiment and Neonatology and the rights of families and more.
I also went to a seminar on long term implications of prematurity.
I guess I just deal with it. Molly's issues aren't too bad and are the price I pay for her survival of prematurity. I've been one of the lucky ones. Still brings some guilt though.
Don't be too hard on yourself. Sounds like you are following up on all the issues and dealing with what you can.
It will all be okay.