Thank you for posting this, when I originally found your post, I was so relieved to find that it wasn't just us with a child suffering with this. My little boy is 4 and has suffered with this on and off since he could talk - probably longer as he was always a dreadful sleeper when he was a baby!
He has the same symptoms, sudden acute pain, when he shouts "ow my bottom". It is transient but comes and goes for hours. He gets very upset and tense. At night, he will be asleep and the pain will wake him, when it passes (normally by me pressing his anus) he drifts off to sleep, but the pain shortly come back again waking him again. It is very distressing for all of us.
The reason I am posting today, is that we have found a solution that works for our little one. Whilst the treatment we use is purely over the counter medication,
*please check with your own health practitioner before trying it.*
One night my little boy had been suffering for hours and was utterly exhausted. He was still screaming in pain, but was so tired, he was still half asleep. In desperation I gave him an antihistamine (chlorphenamine). It crosses into the brain, so makes people sleepy. We sometimes use it when he has a heavy cold to help him sleep. My only purpose for giving it to him was to help him sleep. Within 30minutes he was sleeping peacefully.
I have to admit I was so shattered by the experience, I didn't think much more of it. A few weeks later he had another attack, and we tried all the ususal, warm bath, massaging his anus, pain relief. Nothing worked. Again, hours into the attack, I remember giving him the chlorphenamine last time. I gave him some and again 30 minutes later he was asleep.
Now I was interested. I spent hours that night researching the literature to see if there were any reports of antihistamines being useful in proctalis fugax. I came up with nothing, there is very little research done into it. I guess it is not deemed serious enough a problem to warrant spending the money on the research (but I won't get on this soap box!!). However, I did (re)discover that histamine receptors are in the gut and can cause contractions.
I decided to try a non-sedative antihistamine the next time my son had an attack to see if it was the sedation that was easing the attack or the antihistamine working on the gut. The next attack that came, I waited until he had shouted "ow my bottom" 3 times before giving him the medicine (loratidine). Again the attack subsided (normally once he starts with an attack it is with us for hours).
Today he had another attack and this time I used loratidine on his first cry, the attack did not continue.
I am convinced that the antihistamine is working on his gut relaxing whatever it is that is spasming to cause his pain. I am using a large dose (based on the maximum I can give him for his size). I don't know if this might work for your children, but as these are well established, safe medicines, it might be worth a try **(again please check with your health practitioner)**
I assume that the doctor will tell you there is not any evidence that it will work (they will be right, there isn't, I have searched for it). However it does work for my son, so I would suggest the question you ask is "is there any harm in trying this solution".
Good luck, I hope you all get some respite from this horrible condition.
Edited by rjflc69, 03 November 2015 - 07:41 PM.