Yes I tried Diamox before the shunt. It didn't work!
I was having therapudic LP's every 6 weeks when pregnant with DS2. I was diagnosed at 9 weeks of pregnancy.
My discs became really bad, the shunt was a last resort to save my sight.
The shunt has been fantastic. I feel like a new person, and that I have my life back!!
I'm sorry you have been diagnosed with this. It really is a horrible horrible way to live.
There is not alot of info out there, and I would suggest you do some of your own research and carry it with you. Unfortunately when presenting to CAS the Nurses and Docs have no idea generally about BIH. They just want to give you lots of drugs... which although helps with the pain what you really need is a LP..... they generally put off doing them for as long as possible. (I got to the point where I would direct them where the needle needed to go in!!)
Get a good Neurologist, Neurosurgeon and Opthamologist is my best advice. I don't know where you are but my Neurosurgen is one of the nicest people I have ever met. He changed my world and for that I will be forgever greatful.
Goodluck- Hope Diamox works for you, and you don't have to have a shunt, but if you do it will be fine!!