[ausbokkie]

Well, after 2x m/cs, I am finally making my way back onto EB. After the gamut of tests, I have just tested positive for Lupus Anticoagulant antibodies to a highish level. Has anyone else had this? I am just waiting for the results of the second test and googling too much...

[Natttmumm]

Sorry to hear about your losses. I have had 3 losses and 2 kids. I tested negative to that but positive to a similar thing. I ended up with aspirin and clexane during pregnancy, which did work out well for us. During that no one mentioned to us about the risks of blood clots during pregnancy and also not in pregnancy except recently so we Have been referred to a hematologist. I think you might be referred to a specialist if the second test comes back positive. there are many who have children with what you have without any major issues. Best of luck with the next test.

[creepersgonnacre...]

I do.
Have you been tested more than once? It needs to be tested 2-3 months apart and come back positive both times. There is no highish reading-it is negative, equivocal or positive. Also you may be tested for other antibodies as well.

I have had PEs (clots in the lungs) from it and I have the syndrome (called antiphospholipid syndrome) associated with it and SLE (lupus). I have had m/c (one was at almost 13 weeks) and have 3 live children from 7 pregnancies. I am lucky to have made it through my last as I had a clot that they didn't know of( they thought it was a bad pneumonia with fluid around my lungs) with Sam as well, my kidneys were bad etc but that is likely the SLE.

Basically you may need to take aspirin or inject a blood thinner called clexane throughout )

I can't have anymore because of my history but there are quite a few people who have such antibodies and are fine with the right care.

Best of luck

[BlondieUK]

IAmCal - I thought you could have antiphospholipid antibody syndrome OR SLE, but not both?
APLAS is when you test negative and positive at different times for the Lupus Anticoagulant and have no (or only one )other significant Lupus clinical markers. So how can you have both? Curious -

OP, I've had two children with SLE, having tested +ve for the Lupus anti-coag. I was on a combination of aspirin, clexane and corticosteroids during both pregnancies. If the Lupus AC is the only concern in your blood work, and you have no other Lupus symptoms, then a hematologist should be able to treat you prophylactically to reduce the risk of blood clots.

Best of luck.

[Tate]

OP- I am LAC positive. I was put on aspirin to conceive and then changed to clexane which I injected from 4 weeks up to 36 weeks. Bub was delivered via c-section at 37 weeks.

Blondie UK- Lupus Anti-coagulant is a misnomer- named 'Lupus' because it was found to co-exist with many SLE patients, but not all. The "anti-coag" implies it's a bleeding issue, but it's not- it's a clotting issue.

I have APS, but not SLE. A friend has both. As with all this auto-immune crap- it's the (un)luck of the draw.

ETA: I was also informed that it wasn't about the level and that levels of antibodies can fluctuate depending on what is going on with your health/immune system at any given time. This has certainly proved true with me.

This post has been edited by Tinkah: 14/06/2012, 11:55 PM

[creepersgonnacre...]

you can have both Blondie Uk. You obviously are not well informed on the issue. APS is when you have one or all of the APS antibodies, miscarriages, clotting events. I have had all three. I also have SLE.

Lupus

This is a common ‘autoimmune’ condition affecting up to 1 in 1000 of the female population. The immune system is overactive, with the resultant over-production of a large number of antibodies. In approximately 1 in 5 lupus patients, these antibodies include antiphospholipid antibodies, with the resultant problems of thrombosis and miscarriage.

so I have secondary APS. You are ill informed blondie UK.

And FTR if you have LA doesn't mean you have lupus...

Also like I said

Lupus anticoagulant present in plasma on two or more occasions at least 6 weeks apart, detected according to the guidelines of the International Society on Thrombosis and Hemostasis.

OP I do hope you get the help you need and maybe aspirin would be enough to help you x