Here's a thread I never wanted to belong in. Bugger! Yes I've been absent from here and in a world of bother with heart problems.....I'm freaking over it and I'm nowhere near as far down the track as you girls.
The cardiologist I'm under is Tom Gavahanm, just love him. His books are absolutely closed but I have a chum that's a surgeon and he's seen me with all this trouble kicking off and as Tom is a good mate of his got in to see him at 8.30am within 2 days of second 'cardiac episode'. Have since had another 3 that have required being raced to hospital including quite a spectacular epic fail on my stress echo, the poor diagnostic cardio's face was a picture, she shat herself! LOL My heartbeat at peak was 168 and then I semi-fainted thinking I was going to face plant the treadmill so thank God jumped off in time....she screamed at me to lie down immeditely and her gorgeous nurse just shoved me on the bed...within 7 seconds my heart was beating at 55. She's at a loss. Linford Christie I ain't but she couldn't believe monster drop in <10 sec. Still haven't sighted the report but on the back of that boy have I been fastracked to see all my ologists. LOL
She seems to think that I'm having "conduction" problems but she feels my rheamatologist has got to jump right in the frame here and weigh in with her thoughts. Fortunately my rheumy (Professor March from RNS) is back in the country on Thursday and seeing me Friday. Result. Endocrinologist he wanted her feedback from as my Hashimoto's & Menopause/HRT & Type 2 diabetes she looks and any other autoimmune stuff so I'm seeing her this Wednesday. Clearly it pays to fail at stress echo's because all of a sudden you get service.
Respiratory physician been pulled in as cardiologist flapping that perhaps my pulminory sarcoidosis has perhaps become cardiac sarcoidosis. Joy. I see him tomoz. So yeah I'm still so new to this and already freaking over it. My issues are mainly being a chronic autoimmune disease chick and my cardio believes that as the severity of my rheumatoid arthririts is so bad (commenced biologics and bloods not even shifting, $hit!) that it's given up attacking my joints etc and now just starting on my organs. Woot.
Other one I need is my haematoloist and cardio shot off urgent referral to her today so hopefully will get to see her ASAP. I had dodgy findings on my bone marrow back in 2009 and pretty crappy feedback from PET scan. I sat on my hands as busy with my youngest and look where it's got me. Hmmmmmm.
So that's where I'm at. Nice to be able to read what you guys are saying and keep abreast of what you're talking about. I see my cardio again next Monday as by then I would have seen the endo, rheumy, respiratory & hopefully haem by then....should be a cheap week really. ZOMG this crap is exxy! Anyhoo I'm realllllllly pinning my hopes on my rheumy being able to rustle something up. I know when I see cardio I'm in for a CT angio & tilt test & holter & ????? (3 other things I've forgotten the names of) so all of that sounds like a blast. Other than that I'm just so seriiously over feeling so absolutely crap all the time. In knots thinking about school holidays starting next weel, UGH!
Enough whingeing but I'll wait to hear from you girls again, I seriously hope you've both had some good news since you both last posted.