Another with a son with retinal disease
We go to the WA equivalent the Lions Eye Institute. Noah my son has damage to his retina and is legally blind in one eye and about 1/6 normal vision in the other eye. It has been a very long drawn out process trying to figure out what disease he actually has! My father and uncles have the same thing but I am fine so it is a x-linked. They are thinking one thing he has is x-linked retinoschisis and the blind eye is affected by micropthalmia. There are all kinds of different tests that they can do with different cameras and things it is amazing.
Alot of these retinal things cannot be fixed though so just prepare yourself for that and many are degenerative but having said that these kids cope so very well and adapt!
This post has been edited by IAmCal: 12/11/2012, 07:49 PM