I hope this is okay posting this in this section. Background - My DS has always had very shaky, uncoordinated arms and has his fists closed a lot of the time. I've always felt like something wasn't right with him so when he was younger we srated seeing a physio who thought we should see a paed as she thought here was something that needed to be investigated further. We saw the paed twice and he thought he might have Erb's Palsy but wasn't 100% sure so he referred us to a paed neurologist. We saw him and he sort of made me feel like I was exaggerating. He said he thought DS has Motot Dyspraxia and said that we should come back in a few months so he could reassess. He also said if I wanted I could get him put on the MRI waiting list since it was about 5-6 months long and by the time we saw him again we could cancel it if need be. Anyway there ended up being a cancellation a couple of weeks later and the hospital called us first so DS had the MRI done at the end of September when he was 6 1/2 months old.
I called the hospital about a week later to check if they had scanned his head and neck (just because the physio asked me) and they mentioned the results had to be typed up but should be with the neurologist the following week. I didn't hear anything from the neurologist the following week so I called and left a message asking how I would get the results. Day after day I rang and he never contacted me back. Finally I ended up calling the hospital who told me they couldn't give me the results but they could give them to my GP. My GP sent a letter to the neurologist asking for a copy but still nothing. Finally one day I called and his receptionist told me he was on leave for a coupld of weeks. I asked her to send the results to my GP which she did (I think she was as frustrated as I was by this stage). So I saw my GP and there was a note that his frontal white matter was narrow (I can't remember the exact wording) and MY GP wasn't sure how that related to the symptoms we are seeing in DS. So I was back to square one again and I called the neurologist and left another message for when he came back from leave which was a couple of days ago and I still haven't heard!
I just want to know what it all means and I don't have another appt with him until January. Does anyone know what I can do?? I don't understand why he's not contacted me.
Sorry for the essay