For those who have children with Coeliac - how is it monitored, and by whom? My daughter was diagnosed six months ago and we are not sure if we are successfully following the gluten free diet. We are confident regarding reading food labels but are not sure if she is ingesting some gluten through cross contamination. She sometimes complains of tummy pains and seems very tired; she never had gastric issues before diagnosis. Also, her hair seems to be falling out! One patch of hair is very short, and strands come out with her hairbrush. I have read that this could be due to low iron levels (her iron was found to be low normal at the time of diagnosis). We weren't given any information about follow up at diagnosis, but have booked her in to see our Paediatrician to get some more information. For others, what does monitoring involve (repeat bloods, repeat biopsy??), and who is it done by (ie Gastro-enterologist, GP or Paediatrician?).
Thanks in advance for any info.
This post has been edited by lizabeth: 21/12/2012, 06:37 PM