[2blue1]

Hi everyone,

Just wanting to see if we could get some accurate numbers of how many people come into this part of EB.

So even if you just lurk and don't post, could you please reply to this thread once and answer the following:

Your name: (optional you don't have to give that info if you don't want to).

Your child's diagnosis, or special needs:

The state you live in (or country):


I will go first.

Name: Anna

Child's diagnosis: Ryley has Wolf-Hirschhorn Syndrome

State: VIC

Thanks

This post has been edited by starofamp: 23/03/2007, 07:18 PM

[Cath13]

Name: Cathy

Child's diagnosis:CODY- Down syndrome, AVSD, Duodenal Atresia, congenital nystagmus, otitis media.

State: NSW

This post has been edited by Cath13: 23/03/2007, 09:39 PM

[PMU]

Name: Peta

Child's Diagnosis: Landau-Kleffner Syndrome

State: Vic

[madmother]

Name: Tanya
Child's diagnosis: Asperger Syndrome
State: QLD

[haventhadenougha...]

NAME:: Kerry

CHILDS DIAGNOSIS:: T'keyah, Dandy Walker syndrome- Agnesis of the corpus callosum- Cerrelbellar vermis Hypoplasia- Hydrochephelus- developement delay- low muscle tone- stridor

CHILDS DIAGNOSIS:: Kye, Lipoma of the corpus callosum- Agnesis of the corpus callosum- Cerrelbellar Vermis Hypoplaisa- Dandy walker varient

STATE :: NSW

This post has been edited by hadenoughat6: 24/03/2007, 07:35 PM

[~JAS~]

Name: Michaela

Diagnosis: Adam has Total Colonic Hirschsprungs Disease

State: Qld

[annie77]

NAME: Annie

DIAGNOSIS:

Charlotte has DDH (Hip Dysplasia)
She also suffers from possible Absence Seizures
Charlotte was diagnosed at 19 months old with Severe Verbal & Oral Dyspraxia

STATE: NSW

ETA: New Diagnosis!

This post has been edited by annie77: 17/10/2007, 01:19 PM

[*Dory*]

Good idea

Name: Kathi

Child Diagnosis: Down Syndrome (Matthew)

State/Territory: ACT

This post has been edited by *Dory*: 23/03/2007, 08:33 PM

[♥RUBES♥]

Name: Rubiann

Child Diagnosis: Leslie: Pervassive Development Disorder not otherwise specified, Oppositional Defience Disorder, Conduct Disorder.

Child Diagnosis: Gordon: Stickler Syndrome

State/Territory: S.A

Good Luck, Thank You & Cheers Rubiann.

[Tongue~In~Cheek]

Name: Wendy

Child's diagnosis: Ryan had Silent Reflux/GORD - Thankfully he has just outgrown it.

State: S.A.

This post has been edited by wendy1970: 23/03/2007, 09:11 PM