[Therese]

New thread time

Your last thread is Here

[sparassidae]

GOLD!

Well things are much better this week. Sorry I didn't update here about our move, it was on FB so I forgot about it after that We know where we are going, a house and school is sorted, now we just need to do the packing It was an emotional last day at school, but the children are excited now.

This week is going to be busy with some packing, lots of prep for beach mission (which is straight after Christmas), celebrating birthdays and trying not to go mad with 5 children in the house all the time.

[tassiemumto2]

~Type 1 Diabetes Support Group~



MyAlCoLoMa (Michelle)


32yo Adelaide mum to 4 kids....aged 14, 9, 5 and 2. 14yo Alysha was diagnosed on 2-1-05 at age 9.5. Very scary start to it all, I'm sure I nearly lost her as the hospital said it was 'just gastro' and were going to discharge her without tests (while in severe DKA). Previously on injections and pens, but now on the Cozmo Pump. She's finally starting to accept it all, but it's tough being a teenage diabetic.

tracyw -


Mum to Hudson (5 1/2 years) and Archer (22 months). Both boys have T1 diabetes. Hudson diagnosed at age 4, on Novorapid & Protaphane, & Archer at 10 months on Animas insulin pump.

Rhianna :


Me 44yr DH Geoff48yr ,DD cassie 6yrs (26/02/04) dx exactly 21/2yrs, went in with DKA. We live in queanbeyan NSW near ACT , Canberra is our hospital and clinic. Cassie has a Medtronic pump and has been pumpng for almost 4yrs, before that 6-8 injections a day. Cassie is my little miracle as she come after 12 miscarriges ( so she a bit of a princess). cassie is a JDRF Youth Ambassador, and is in 2nd grade at school this year. .

sandgroper (Julie)


My name is Julie (36), DH (35), DS (4.5) and DD (21 months). My DS, Kai, was diagnosed with Type 1 on 29th Jan 2011. We live in Kalgoorlie WA and our DS was treated at Princess Margaret Hospital for Children in Perth. We continue to be in touch with the educators and Dr's everyday to help sort out Kai's dosages. He is on Novorapid and Protophane twice daily. This diagnosis came totally out of the blue, no family history but apparently I caught it early and Kai was quite healthy when admitted. Kai started Kindy this year and we are in the process of incorporating school into the equation.

*ems* (Emma)

Location - Canberra. Happily married mother to 3 beautiful daughters aged 8,9 & 10. Our middle daughter Lyndsey was diagnosed with T1D at age 7 on 23 April 2007 (not a date we will forget!). She is now on a Cosmo pump which is blessing when managing her other medical issues.

tassiemumto2 (Kate) and tassiedadto2 (David)


Mum (and Dad) to Benjamin (4 1/2Years Old) and Joshua (7yrs). Benjamin was diagnosed 28/04/2008, 10 days after his 1st birthday. Ben has been on pump therapy since Oct 2010, the Accuchek Combo, but was previously on daily injections of Novorapid and Levemir. We live in Tassie, have 2 cats and a very supportive extended family and fantastic, supportive child care centre.

type1diabetes (Melinda)

Mum to Kyle 10 years old. Kyle was diagnosed at 2.5years old. Kyle has been on a Medtronic Pump since August 6th. In Gippsland Victoria.

sparassidae (Mandy)


Mum to 5 children aged 11, 9, 7, 4 and 2. Adara is 7 and was diagnosed on 16/11/06 aged 2 years 8 months. Using an Animas pump and very stable. We live in Sydney and Adara is in her third year of school.

Jennifer -


mum to Ryan (DS1, 7 years, diagnosed age 3 1/2, pumping with Medtronic), DS2 - 5, DS3 - 3. We are in Vic.

carshazzie (Sharon)


I have a son named Adam who is 3 years and 6 months old. Adam was diagnosed at 2 years and 1 month old, admitted to Westmead Childrens Hospital with a BGL of 23.He's on a medtronic insulin pump using novorapid. Also we're from the Western Suburbs of Sydney.

louisebrisvas (Louise)


I am Louise (42 - married), live in Brisbane, my littlest chicken Trinity was diagnosed at 20 months. She turned 3 on 21 December, and has a 6 year old sister and a 19 year old brother. We are on Lantus and Novo rapid.

Neonatal diabetes (Kat)


I am Kat and mum to Sarah who was born on the 28/11/08 she was born at 31 weeks weighing 735 grams and has been insulin dependent since birth. She was Diagnosed with Neonatal Diabetes at 12 hours old and was later Discovered that she had Pancreatic Agenesis (She has no Pancreas) We started on a Animas Pump in Feb 09 when she was about 1800 grams. She is now 2 and weighs 9.6 kgs. :-)


Netmummy(Jeanette)


Brisbane. Mum to 2. DS - 9yrs, diagnosed 29-04-09. Currently using Novorapid and Protaphane via pens

Bmansmum(Nat)


Mum to 2 great kids, DS 5 was diagnosed on the 15*7*09 a day before my birthday sad.gif DD 11*5*07 she is my princess. Brodee was healthy happy and like a switch was flicked began drinking glass after glass of water, I knew in my heart exactly what it was but gave it a week before taking him to the GP who diagnosed and sent us straight to Melbourne, Currently he is on 1 needle in the morning 5 units of Levemir and 1 needle at night 1 unit of Novorapid. We are in East Gippsland, his first HBA1C was 8.7 and his BG was 39.

JacG35 (Jackie)-


DD diagnosed at 11mths Dec 2009 when still breastfeeding. B/fed until she was nearly 2. DKA with 3 Dr have no idea what was wrong in emergency and eventual emergency transfer from Sunshine Coast to Childrens hosp in Brisbane. 2 nights in ICU and 6 in general ward. We have always used pens, with novarapid and levemer - 5 needles a day. One of each with breakfast and one of each with dinner and novarapid at lunch. I have created a very complex scale for the novarapid that varies on meal size and BGL. DD is now 2. I also have DS who is 5 in march.

Mum_and_more (Cherise)


mum to Dominic (2.5yo) was diagnosed with T1D on 5th January 2009. He turned 17 months old 2 days later. In March 2009 we started pump therapy with the Medtronic Paradigm pump. I now have DS2 (Alessio), who is 5 weeks old.


mum2kjr (Tracey)


Mum to Kai, 4, pumping with medtronic - currently on a loan pump but are waiting on a new medtronic pump ( a blue one!! ) in the next couple of weeks.
I also have one other son Jett - who is two and my daughter Rubi who is almost 6 months old. Living in melb south east

Mumma Shazam (Bek)


mum to three great kids T (9), A (5) and D (22months). In October last year my daughter A was diagnosed with type one diabetes. I am a full time uni student studing Nursing, we live in Brisbane. A is on Novarapid and Protapane.

Jewel2 (Julz)


DD (6)DD born with Talipes of foot but treated with Ponseti method and foot looks fab.
She was diagnosed with T1 Diabetes on 23rd December 2010.
Spent Christmas day & week in hospital.
DD takes Novorapid and Protaphane before brekkie and before dinner.
Had very high results of Coeliacs disease from blood test at Christmas.
Coeliacs Disease was confirmed on 14/02/11 after endoscopy/biopsy. Gluten Free for life now.

Fiestycat(Sarah)


Elizabeth was diagnosed on the 27th August 2008 with Type 1 Diabetes, a week before her 3rd birthday. It became our challenge not to be at RCH for her birthday, we made it. Currently Elizabeth is having 2 injections a day, one before breakfast and the other before dinner. She is on Levemir and Novorapid. Elizabeth has just started school this year and we were sorry to say goodbye to her child care center as they had been great from the time of her dx to when she finished there last year. Elizabeth lives with her father, mother, baby sister (10 months) and Fiesty the Cat in Melbourne.

Little1 (Belinda)


Mum to Blake (5 yrs), dx in February 2011, living in Gippsland Vic.

**************************

Let me know any changes that need to be made.

[Fiestycat]

Merry Christmas and a Happy New Year to Everyone,


Good luck Mandy, I hope that all goes well for you and your family with everything that is going on in your world

We have had a roller coaster of a last month, Elizabeth was on CGM for several days that nobody thought was working and it turned out is did record some information. It didn't show us any patterns except that she always goes down overnight. Then we finished school on Wed 16th and then in the early hours of the Fri morning she was vomiting, in hypo and several hours later ketones developed. We were lucky that we managed to keep her at home although it was a close call on several occasions. We were in constant contact with her DE for the duration of a week in regards to doses. Elizabeth still isn't quiet 100% but I am hoping that by the time school starts she will be. She still isn't on her full insulin doses yet and still at times says she feels sick.

How is Everyone going? I hadn't been on here for a while so hadn't realised that we are up to a new thread.

Hope Everyone is well

Sarah

[Batfink]

Hi I hope everyone had a lovely Christmas and new year. I haven't been here for a while but since Andrew is having an extra long nap I thought Id hang around EB for a while.

We've had an exhausting few days. 3 days of constant hypos. Put him on a 70% temp basal and the DE and endo changed insulin sensitivity and basal rates and things are looking good. Andrew has also just discovered that he can rip his cannulas out which is proving a little trying at the moment.

Im wondering if anyone has any tips/suggestions for me. Andrew is starting daycare in 2 weeks (only 1 day a week), but I am just imagining all the illnesses and viruses he is going to pick up while he's there. Does anyone have any tips on how I can minimize this happening? Or am I dreaming?

We are having our first holiday since Andrew's been diagnosed, I feel like a kid Im so excited about it

Hope everyone is healthy and happy

xo

[Fiestycat]

Have a great holiday Batfink

Tips for avoiding bugs, none unfortunately. Elizabeth picks up everything that generally goes around and did when she was in child care. For us everything is manageable except gastro as it tends to come with ketones and hypos. I have found that as Elizabeth has become older she doesn't come down with as much and has actually managed to avoid some of the bugs that have caught up with other children in the class. It is a case of hit and miss I think. I have asked this year that the class teacher let us know if gastro is in the room so that we are forewarned to a point, not that we can prevent it but I can make sure I have extra supplies before Elizabeth comes down as she is normally one of the last as a rule. I have also become more cautious with colds and such and if it seems to last more than 48 hours then I will make an appointment with our gp, generally takes 1-2 days before I can get in unless it is an emergency, and get him to check her over, hopefully before she really comes down with the bug. Sometimes he will medicate and other times let things run it's course but I feel better having her checked and he is understanding about the T1D. I am not sure about vitamins, Elizabeth likes taking a vit c every day but sometimes I wonder how useful it actually is.

[caplaylolmay0212]

hi just wanted to introduce myself my names nat we have 4 children dd 8, ds 7, dd 3, dd 20mths we live in south west victoria.
our 3 year old was diagnosed 13th feb 2011 at age 2 years she was hostpitalized with dka and was very unwell currently on injections 2 a day levemir night/morning novo rapid night and actrapid morning hoping to start pumping this year sometime.

look foward to chatting to you all

[Fiestycat]

Hello and welcome caplaylolmay0212, I hope that you find the support here that I have, these are a great group of parents, although many are on holiday at the moment so sorry for the late response to your post. Nowdays we are more often than not on FB so feel free to join us there as well. Some of us do pop in here regularly as well as not everyone chooses to be on FB and it adds a different perspective to the conversation. Our FB group is EB Facbook Type 1 Diabetes Parents Support Group, I will contact one of the admins to let you in if you choose to join us.

I have a 6 yo DD who was a week shy of her 3rd birthday at dx, I also have a 20 month old DD. We are on the same insulin as you with novo and levemir, we have never used actrapid. I am also in Vic although it is South East Melb now but have family in South West Vic, it is very lovely down that way.

Looking forward to chatting with you.

[Fiestycat]

Bump

I hate heat waves and T1D, the numbers go all over the place, stranger than normal. Sorry just wanted to say that.

Hope everyone is well

[Batfink]

Yep Feistycat heat waves are the worst! It's cooled down a little here (still in the 30s though). Thanks for the tips about preschool.

Hi caplaylolmay0212 welcome The facebook groups that feistycat were talking about are well worth the visit, theres some great support and advice over there (and in here too!) Me, Im great for offering sympathy but wont have much advice as we are still fairly new to it all.

UPDATE ON US:
We have finally found a new GP who seems lovely. He's moved to the town just recently and is great at fitting Andrew in at the last minute (and doesnt make me feel like a crazy paranoid mother like the other one did!). We had a follow up appointment today for Andrew's cannula infection, all is looking good. Its healing nicely and numbers are coming back down to normal. It also turns out that Andrew is, in fact, Lactose intolerant.

We have our next clinic appointment on Feb 8th. I think I will ask the DE about testing for gluten intolerance as we are still having several diet issues and he is having a few of the symptoms. (Has anyone else's LO been diagnosed? The GP wanted me to speak to the specialists about it all as he said it's hard to diagnose since Andrew is so young. Im praying that he doesn't as it's hard enough as it is to get him to eat anything!

Hope everyones numbers are going well and the stress of back to school isn't getting to you too much xo