[*skipper*]

Hi everyone......well its official.....my precious little man got his autism diagnosis yesterday <sigh>. Confirmed by both a psych and dev paed. Wasn't a surprise, we knew it was coming and we're not feeling too bad considering. Big hugs to everyone else in the same boat.

I'm booked into the information session at Lizard Centre in March even though I know there isn't any vacancies. Not really sure where to go next. My DS needs to get an OT but I don't know where to find one....Googling it brings up so many and none have websites grr!! Is there a central website where you can search for ones in your area??

ellie1326....Hope your DD's eating improves, my DS is 2yrs and not eating proper solid food yet either. Absolutely everything has to be mashed! Good luck

twistedkites....<hugs> Know what you're going through. That's great news that your DS can make eye contact and engage! Hope you manage to get the right therapists for him in your area. I'm thinking about trying PECS with my DS too as he loves pictures and photos. My speechie said it could be worthwhile for us but our first hurdle is the eye contact/joint attention thing!

lollipopp....<hugs> Hope all goes well with the Autism Advisor, I have to call up about that too.

jdmum1....<hugs> Those cards look good, never seen them before. I'd be interested to hear others' views on how to allocate the funding too. Gosh its all overwhelming!!

Hope everyone's having a good day

[ellie1326]

[twistedkites]

Ellie1326: wow sounds like you’ve been through a tough time with the health issues! Hats off for staying on your feet & keeping the household going. I so feel your pain re: the asd child and eating issues. My son is so so unpredictable and tricky with his eating patterns (one day its great, the next few it’s nothing). I can really see how as development & autism march forward together he might get to the point of refusing to eat & that’s a bit scary. Have been following your posts with interest, don’t have any advice but I think you are doing an amazing job. Hope the appointment tomorrow goes well.
Skipper: hugs to you. I had the same reaction to you when we got the dx this week i think... wanted to say definitely don’t give up on Lizard. From the info session my understanding is that availability there depends on time slots (like they said they tend to do young toddlers in the morning because they need the middle of the day sleep), and on how flexible you can be about what time slot you can take, the time of the year, whether they are taking on new therapists etc. I actually had a call from them today actually and woohoo we have a potential spot. We’re meeting with Nicole Rogerson next week.

[tel2]

I thought things were progressing ok with DS...met our EI worker who is looking at organising some assessements for DS soon (which we hope will lead to some kind of dx) BUT NOW I have my NT DD who has developed some kind of speech problem (like a stutter) Looks like a trip to Speechie is in order again.....

[ellie1326]

Thanks twistedkites, the eating problem is deffinately big one with DD. I feel so stupid, but I am getting so tired from constantly offering, sometimes I wonder if I offer enough, or maybe if I am tougher it would be better, I just don't know. Hope that after friday's appt we might start getting some answers. Sher has been living of PROFORM for the last 6 months, and I feel really bad about that. But hey, I can't forcefeed her.

Tel2-hope DD's speech thing is nothing but a phaze, and she looses it for you.

Anyway, counting down the days till friday, and getting really nervous about it. I guess I am just scared that they will say your are idiot parents and f... it up for her loosers.....lol. Anyway, I really hope it will be a positive experience and we can get some answers, even if they are small.

[tel2]

Ellie1326 - remember the small answers often when added up make up the big ones

[*skipper*]

twistedkites.....Awesome that you might get a spot at Lizard!!! Doing a happy dance for you!! Hope your meeting with Nicole goes well

ellie1326....All the best for Friday, fingers crossed they are helpful

tel2....Hope your DD is ok and the stutter passes

I'm up to my eyeballs in paperwork at the moment, will definitely be glad when this part is over!

[Marina_D]

I actually had a call from them today actually and woohoo we have a potential spot. We’re meeting with Nicole Rogerson next week.

Yaaaay so happy for you!!! Im booked into the info session next week so hopefully trying to get a spot too. I work full time but will hopefully accept anything they can give me and ask my boss for flexibility.


By the way - does anyone know of any good develomental physio's in Sydney? My DS almost 18months is still not walking yet and im getting a little worried... he has borderline GDD for gross motor skills... can anyone help?

[kh79]

twisted kites - awesome news!! i am very happy that the wait was not too long for you. i know others that are still waiting who went to your info days...but i believe there are a few staff changes which might have helped free some spots up!

[ellie1326]

Hi everyone, hope you all had a wonderful weekend.

So we are (or should I say I am ) kinda just recovering from the diagnosis on friday. I know I knew that it was going to be autism, but there was still that ray of hope that everyone is wrong. Well now it is done, we have a formal diagnosis, it's sealed and delivered and we have to look forward. I feel rather overwhelmed, it all feels a bit too hard, but I will try really hard just to concentrate on today, and I am sure the right path for us will appear.

A bit cheesed off by some people. I told the leader at Sunday school today, because DD was meant to move to the next class, cause she is 3.5yo, but I feel she fits better with the 2yo group. She had a ball today in the 2yo group, but the leader came to me at the ennd, and said that I should forget the doctors, that DD doesn't have ASD and everyone is wrong. Grrrrr, I love the lady, and have outmost respect for her, but GRRRRRRRRRR. Anyway, I guess it is something I better get used to , cause these kind of comments seem to be comming left, right and centre at the moment. Oh well.

Anyway, I will be trialing a new playgroup with DD tomorrow morning, it is just a normal playgroup at our church, so should have all different ages, but I have never been there so just want to investigate if it is anything I could see DD enjoying or not.

Well-hope everyone will have a good start into the week.