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Therese
post 15/03/2012, 09:24 AM
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Marina_D
post 15/03/2012, 08:15 PM
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Ladies, i am in a panic.... I know this is an ASD related post but i need to share...

My gorgeous son now 19months was dx with stage 4S Neuroblastoma of the adrenal gland, with metastatis to one lymph and liver at 3.5months. He had surgery at 4.5m and when he was 7m he was cleared of all liver lesions etc.

We commenced 3monthly surveillance - urine tests as well as abdominal ultrasounds. Every testing has come back clear with the exception of this time...one year on. His dopamine levels are elevated - outside the normal range. The oncologist said he needs him to follow a specific diet for 24 hours and needs another sample. If its elevated, we do a CT scan to see whats going on. Oncologist felt it could be a dietary thing but my son doesnt eat anything thats on the "foods to avoid" list which could affect dopamine levels.

I read somewhere online (i know i shouldnt do this but i do...) and i read somewhere elevated dopamine levels could have something to do with ASD, OCD etc.

My mind is going mad at the moment...i know im not being rational - but has anyone heard this??

I pray that this is just a one off and it hasnt come back...i dont know what Id do if it did...God help me.
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Posts in this topic
- Therese   ASD/Autism Support Group : below school age   15/03/2012, 09:24 AM
- - sandgropergirl   I win   15/03/2012, 10:01 AM
- - firstatforty   Silver for me!   15/03/2012, 10:58 AM
- - rua   Bronze   15/03/2012, 04:23 PM
- - baddmammajamma   Chocolate.   15/03/2012, 04:25 PM
- - kh79   Sleep   15/03/2012, 04:33 PM
- - baddmammajamma   Sex   15/03/2012, 04:38 PM
- - minimee2b   Wine   15/03/2012, 04:44 PM
- - Mamabug   Hello all, a dear friend of mine has a 4.5yo son d...   15/03/2012, 04:45 PM
- - baddmammajamma   Mamabug, what a dear friend you are. I imagine it ...   15/03/2012, 05:28 PM
- - Mamabug   Thank you for the links and information BMJ. I wil...   15/03/2012, 06:34 PM
- - twistedkites   Marina I don't know anything about brain chem...   15/03/2012, 08:50 PM
- - ellie1326   OMG huge hugs - hope it's nothing   16/03/2012, 07:38 AM
- - jdmum1   MarinaD - i am so sorry you are so stressed...some...   16/03/2012, 08:46 AM
- - Gumbette   Hi Jdmum1 Are you in NSW? Our autism advisor was...   16/03/2012, 09:18 AM
|- - jdmum1   QUOTE (Gumbette @ 16/03/2012, 10:18 AM) H...   16/03/2012, 09:37 AM
|- - Gumbette   QUOTE (jdmum1 @ 16/03/2012, 10:37 AM) Gum...   16/03/2012, 12:55 PM
- - Marina_D   Thanks ladies for your comments and well wishes. ...   16/03/2012, 12:50 PM
- - item   Marina, just saw you post above and thinking of yo...   16/03/2012, 06:22 PM
- - ellie1326   Marina-how is it going? My thoughts and prayers ar...   16/03/2012, 07:46 PM
- - **bubba**   Ellie what a whammy of events to process. I'm ...   17/03/2012, 12:05 AM
- - ellie1326   Thank u everyone for thoughts and prayers my siste...   17/03/2012, 11:06 AM
- - Marina_D   Oh ellie1326 what a turn of events. Im so sorry to...   19/03/2012, 10:24 AM
- - jdmum1   Oh Ellie...wow what a bad run of events for your f...   19/03/2012, 12:18 PM
- - back*again   Hi ladies Firstly OMG Ellie, what a rough week...   19/03/2012, 09:09 PM
- - Marina_D   Hi backagain, When you say the Autism Clinic whic...   20/03/2012, 12:44 PM
- - ellie1326   Hi everyone, thank you so much for all your kind w...   20/03/2012, 07:11 PM
- - back*again   OMG Ellie that is unbelievable! Surely your ...   20/03/2012, 09:26 PM
- - sandgropergirl   hugs to you Ellie.   20/03/2012, 09:34 PM
- - Marina_D   The results are back and they are normal ladies...   22/03/2012, 01:10 PM
|- - twistedkites   QUOTE (Marina_D @ 22/03/2012, 02:10 PM) T...   22/03/2012, 01:19 PM
- - ellie1326   Marina-yeay what great news!!!!   22/03/2012, 01:19 PM
- - back*again   Yay Marina!!   24/03/2012, 10:01 PM
- - ellie1326   Hello everyone-how are you all going? Hope everyon...   26/03/2012, 05:02 PM
- - Marina_D   ellie - sorry to hear you had such a bad experienc...   04/04/2012, 04:10 PM
- - sandgropergirl   hi Marina D day for us as well. Very sucky on all...   04/04/2012, 04:12 PM
- - Marina_D   sorry to hear that sandgropegirl - for your DS or ...   04/04/2012, 05:44 PM
|- - jdmum1   QUOTE (Marina_D @ 04/04/2012, 06:44 PM) s...   04/04/2012, 07:01 PM
|- - Marina_D   QUOTE (jdmum1 @ 04/04/2012, 08:01 PM) Mar...   04/04/2012, 09:22 PM
|- - jdmum1   QUOTE (Marina_D @ 04/04/2012, 10:22 PM) j...   09/04/2012, 09:02 PM
- - sandgropergirl   My DS. And yes it was expected but it still sucked...   04/04/2012, 07:56 PM
- - Marina_D   I keep seeing "II" in the posts - what d...   05/04/2012, 04:29 PM
- - sandgropergirl   II - intellectual Impairment (I think). I also inc...   05/04/2012, 04:34 PM
- - Littleblossom   For various reasons I've not been able to come...   21/08/2012, 12:11 PM
- - ellie1326   Little blossom, glad things are being sorted out. ...   21/08/2012, 05:06 PM
- - bottle~rocket   ..   13/09/2012, 05:27 PM
- - *SYM*   I thought I'd just come in to say hi and intro...   13/11/2012, 02:24 PM
- - Stinkermouse   Hi all, I have been in and out of this section f...   15/11/2012, 11:57 AM


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