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15/03/2012, 09:24 AM
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#1
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Posts: 13,872
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15/03/2012, 08:15 PM
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#2
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Posts: 121
Joined: 13-December 11
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Ladies, i am in a panic.... I know this is an ASD related post but i need to share...
My gorgeous son now 19months was dx with stage 4S Neuroblastoma of the adrenal gland, with metastatis to one lymph and liver at 3.5months. He had surgery at 4.5m and when he was 7m he was cleared of all liver lesions etc. We commenced 3monthly surveillance - urine tests as well as abdominal ultrasounds. Every testing has come back clear with the exception of this time...one year on. His dopamine levels are elevated - outside the normal range. The oncologist said he needs him to follow a specific diet for 24 hours and needs another sample. If its elevated, we do a CT scan to see whats going on. Oncologist felt it could be a dietary thing but my son doesnt eat anything thats on the "foods to avoid" list which could affect dopamine levels. I read somewhere online (i know i shouldnt do this but i do...) and i read somewhere elevated dopamine levels could have something to do with ASD, OCD etc. My mind is going mad at the moment...i know im not being rational - but has anyone heard this?? I pray that this is just a one off and it hasnt come back...i dont know what Id do if it did...God help me. |
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Therese ASD/Autism Support Group : below school age 15/03/2012, 09:24 AM
sandgropergirl I win 15/03/2012, 10:01 AM
firstatforty Silver for me! 15/03/2012, 10:58 AM
rua Bronze 15/03/2012, 04:23 PM
baddmammajamma Chocolate. 15/03/2012, 04:25 PM
kh79 Sleep 15/03/2012, 04:33 PM
baddmammajamma Sex 15/03/2012, 04:38 PM
minimee2b Wine 15/03/2012, 04:44 PM
Mamabug Hello all, a dear friend of mine has a 4.5yo son d... 15/03/2012, 04:45 PM
baddmammajamma Mamabug, what a dear friend you are. I imagine it ... 15/03/2012, 05:28 PM
Mamabug Thank you for the links and information BMJ. I wil... 15/03/2012, 06:34 PM
twistedkites Marina I don't know anything about brain chem... 15/03/2012, 08:50 PM
ellie1326 OMG huge hugs - hope it's nothing 16/03/2012, 07:38 AM
jdmum1 MarinaD - i am so sorry you are so stressed...some... 16/03/2012, 08:46 AM
Gumbette Hi Jdmum1
Are you in NSW? Our autism advisor was... 16/03/2012, 09:18 AM
jdmum1 QUOTE (Gumbette @ 16/03/2012, 10:18 AM) H... 16/03/2012, 09:37 AM
Gumbette QUOTE (jdmum1 @ 16/03/2012, 10:37 AM) Gum... 16/03/2012, 12:55 PM
Marina_D Thanks ladies for your comments and well wishes. ... 16/03/2012, 12:50 PM
item Marina, just saw you post above and thinking of yo... 16/03/2012, 06:22 PM
ellie1326 Marina-how is it going? My thoughts and prayers ar... 16/03/2012, 07:46 PM
**bubba** Ellie what a whammy of events to process. I'm ... 17/03/2012, 12:05 AM
ellie1326 Thank u everyone for thoughts and prayers my siste... 17/03/2012, 11:06 AM
Marina_D Oh ellie1326 what a turn of events. Im so sorry to... 19/03/2012, 10:24 AM
jdmum1 Oh Ellie...wow what a bad run of events for your f... 19/03/2012, 12:18 PM
back*again Hi ladies
Firstly OMG Ellie, what a rough week... 19/03/2012, 09:09 PM
Marina_D Hi backagain,
When you say the Autism Clinic whic... 20/03/2012, 12:44 PM
ellie1326 Hi everyone, thank you so much for all your kind w... 20/03/2012, 07:11 PM
back*again OMG Ellie that is unbelievable! Surely your ... 20/03/2012, 09:26 PM
sandgropergirl hugs to you Ellie. 20/03/2012, 09:34 PM
Marina_D The results are back and they are normal ladies... 22/03/2012, 01:10 PM
twistedkites QUOTE (Marina_D @ 22/03/2012, 02:10 PM) T... 22/03/2012, 01:19 PM
ellie1326 Marina-yeay what great news!!!! 22/03/2012, 01:19 PM
back*again Yay Marina!! 24/03/2012, 10:01 PM
ellie1326 Hello everyone-how are you all going? Hope everyon... 26/03/2012, 05:02 PM
Marina_D ellie - sorry to hear you had such a bad experienc... 04/04/2012, 04:10 PM
sandgropergirl hi Marina
D day for us as well. Very sucky on all... 04/04/2012, 04:12 PM
Marina_D sorry to hear that sandgropegirl - for your DS or ... 04/04/2012, 05:44 PM
jdmum1 QUOTE (Marina_D @ 04/04/2012, 06:44 PM) s... 04/04/2012, 07:01 PM
Marina_D QUOTE (jdmum1 @ 04/04/2012, 08:01 PM) Mar... 04/04/2012, 09:22 PM
jdmum1 QUOTE (Marina_D @ 04/04/2012, 10:22 PM) j... 09/04/2012, 09:02 PM
sandgropergirl My DS. And yes it was expected but it still sucked... 04/04/2012, 07:56 PM
Marina_D I keep seeing "II" in the posts - what d... 05/04/2012, 04:29 PM
sandgropergirl II - intellectual Impairment (I think). I also inc... 05/04/2012, 04:34 PM
Littleblossom For various reasons I've not been able to come... 21/08/2012, 12:11 PM
ellie1326 Little blossom, glad things are being sorted out.
... 21/08/2012, 05:06 PM
bottle~rocket .. 13/09/2012, 05:27 PM
*SYM* I thought I'd just come in to say hi and intro... 13/11/2012, 02:24 PM
Stinkermouse Hi all,
I have been in and out of this section f... 15/11/2012, 11:57 AM![]() ![]() |
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