01/07/2007, 01:10 PM
Child's diagnosis: DS 5.5 brand new (although long suspected) Dx ADD -waiting for medication test and written report
02/07/2007, 11:25 AM
Child's diagnosis: 2 children with Acrodermatitis Enteropathica (Zinc Deficiency)
08/07/2007, 04:50 PM
Child's diagnosis: Elyssa with Congenitally Corrected Transposition of the Great Arteries
09/07/2007, 11:04 PM
Your name: Kelly
Your child's diagnosis, or special needs:Bardet-Biedl syndrome. He has polydactyly of both hands and both feet (14 fingers/12 toes) and syndactyly on feet only. He is developmentally delayed, has macrocephaly and some other minor physical abnormalities and will eventually lose his sight from retinal pigmentation. And he's gorgeous
The state you live in (or country): Tassie
22/07/2007, 06:59 PM
23/07/2007, 05:06 PM
CHILD'S DIAGNOSIS: Jade is 5 months and has Cystic fibrosis.
25/07/2007, 06:36 PM
I'm new here, think this is a great way to have contact with the outside world!
My daughter April, who turned 1 last week, has Pulmonary Stenosis and Epsteins Anomaly of the Heart. She has had one lot of surgery and is due a few more in the coming years. She also has developmental delay.
27/07/2007, 01:58 AM
Hey there girls..
Your name: Jo..
Your child's diagnosis, or special needs: Jake 3rd child has Twisted Femurs and language delay/disability
The state you live in (or country):Country WA
30/07/2007, 09:58 AM
NAME - Renee
CHILDS DIAGNOSIS - cleft lip & palate
STATE - NSW
04/08/2007, 10:46 PM
SallyMY CHILD HAS
fetal valporate syndrome. A direct result of my anti epileptic medication.
Alex had simeon creases on his hands up until about 6 months of age, he has thin tapering fingers, low set ears, broad set nose, short neck, wide set eyes wide set nipples, poor muscle tone although he is walking but was slower to do so than my two other children, has a developmental delayand delayed speech
I am desperate to talk to other parents with a child who has this syndrome, I feel alone. STATE
07/08/2007, 10:17 AM
My name: Sarah
Child's Diagnosis: Violet has Hydrocephalus, Microphthalmia and PHPV, Vascular Malformations, Right Hemiplegia and Dystonia.
Location: Sydney, NSW
10/08/2007, 12:02 AM
Dzejla was born with symtoms of poland syndrome which were later ruled out. Her left arm is shorter and fingers are intact with one another and under developed, the normal fingers were her thumb and baby finger which have had surgery to fix she is 12 months old i would love to find other moms with the same thing thanks!!
Child's diagnosis: Apollo suffers from severe eczema....just like his father
13/08/2007, 07:34 PM
Child's diagnosis: Luke has a mild form of Noonans Syndrome
15/08/2007, 07:02 PM
Child's diagnosis: Jett has Reflux.
State: QLD (Brisbane)
17/08/2007, 10:45 PM
My son (10 1/2yrs) has PDDNOS (Pervasive Developmental Disorder Not Otherwise Specified)
Cheers I look forward to reading everybody's posts.
24/08/2007, 08:56 AM
DD1 - severe allergies
DD2 - small Venular malformation
27/08/2007, 03:22 PM
Child diagnosis..Dion has been diagnosed with LEIGHS DISEASE.
.a rare brain disease. Low muscle tone, cant walk, speech delay, fully fed by gastromy tube (button)
Love him to pieces
Me Plus 3
28/08/2007, 08:44 AM
Child's diagnosis: Optic Nerve Hypoplasia & Asthma
01/09/2007, 12:45 AM
Your name: Lynn
Your child's diagnosis, or special needs:
Nicole: Autism Spectrum Disorder, ADHD
Kimberly: ADHD, Mild Cerebal Palsy, Chronic Lung Disease
The state you live in: SA
DS has Type1 juvenille diabetes
Live in South Australia
03/09/2007, 02:03 PM
Child's diagnosis: Autism, Developmental Delay, Landau Kleffner Sydrome (in remission)
03/09/2007, 04:05 PM
Child's diagnosis: Little Pixie (DD) has mild PVL (Periventricular leukomalacea)which will probably lead to a diagnosis of Cerebral Palsy and in particular Spastic Diplegia
Lazy eye-(premmie issues)surgery coming up soon to fix!
05/09/2007, 09:42 AM
- ongoing eye disorder - eyelash ducts blocks, develops chalazion cysts
- expressive language and delay and disorder
- being assessed currently for Autistic Spectrum Disorder
- hearing being assessed in Nov
- Full dev. being assessed at the child dev. unit at WCH in Nov
12/09/2007, 08:17 PM
Diagnosis:Primary Congenital hypothyroidism
Location: Sydney NSW
12/09/2007, 10:53 PM
Childs Diagnoses, Mitchell has Epilepsy
14/09/2007, 03:06 PM
Child's Diagnosis: Oscar has reflux
18/09/2007, 07:06 AM
Child: DSon#2 - GER, SID,Oral Apraxia, Tube feeds, Arachnoid cyst, optic disc drusen
State: NSW Sydney
DS#1: 5 and happy in Kindy
20/09/2007, 08:48 AM
Ryden has an Immune Deficiency, bilateral hearing loss, speech delay and Food alergys. waiting for an assesment for his lack of social skills
Tayla has Silent reflux
Teagan is verticly challanged State:
22/09/2007, 02:43 PM
Child's Diagnosis: Son Bryden has
congenital Mixed Gonadal Dysgenesis accompanied by Penoscrotal Hypospadias
congential Tight Gastrocnemius Muscle (calf muscles)
Bilateral Hearing Loss (mild)
Auditory Processing Disorder
Urinary Reflux - with urine leaking all throughout the day
But above all he is a beautiful positive little guy with a heart of Gold.
Childs Diagnosis: Daughter Devaney died from a congenital heart defect called a Hypoplastic Left Heart.
23/09/2007, 11:08 AM
Child's Diagnosis: Gavin has ADHD and paeds and school are after more info for something else, no idea what as yet *sigh*
30/09/2007, 02:34 PM
Child's Diagnosis: Georgia was denied oxygen at birth from an undetected placenta abrupta. She has been diagnosed with Cerebral Palsy (Ataxic Quadriplegia). Doctors have predicted swallowing disfuncion (although she breastfeeds well, but has suffered from reflux), mental delay and epilepsy, as well as the motor skill delays.
State: Singapore, but from NSW
01/10/2007, 09:58 PM
Diagnosis: MCADD - Medium Chain Acyl-CoA Dehydrogenase Deficiency (rare genetic metabolic disorder)
07/10/2007, 08:25 PM
reece has tourettes syndrome
after two years we have realised that it's not then end of the world after all
13/10/2007, 10:43 PM
Child's Diagnosis: Trisomy 21
14/10/2007, 08:17 PM
Child: Cameron, 10 and Sophie, 7
Diagnosis: Cameron - Noonan Syndrome. Sophie - Urea Cycle Disorder OTC
15/10/2007, 07:24 AM
Wyatt(6yrs)- Developmental Dysplasia Hips and Russell-Silver Syndrome, anaphylaxis, and sometimes Anemia
He has had- undescended testies and RSV
Hayden (3yrs)- Tibbial Torsion
Fredericton, NB, Canada
18/10/2007, 05:45 PM
Child: Tom - 2 years
Diagnosis: Atypical Autism or PDD-NOS
19/10/2007, 08:39 PM
Child Zac 3.5 years
Diagnosis We are still in that process but he is somewhere on the Autsim spectrum they believe HF waiting for an assessment at the WCH
20/10/2007, 12:20 PM
Just popping in here to see if I can find some support/info for my girlfriend who has a child with learning disabilities plus other issues. Will get her to look in.
22/10/2007, 09:35 PM
Hi, I'm new
Child's Diagnosis, or special needs: Tyson (3 yrs) was diagnosed in March this year with Autistic Spectrum Disorder. Taj (19 mths) is currently on a waiting list to be assessed as he is showing signs of either ADD or autistic spectrum disorder.
The state you live in: Western Australia
Have a good one!
24/10/2007, 06:20 PM
Child's Diagnosis: Corbin (born 04.05.07) has a cervical lymphatic malformation, variously known as lymphangioma or cystic hygroma. Fitted with long term tracheostomy.
26/10/2007, 10:17 PM
Timmy (aged almost 6) - Asperger's Syndrome, high anxiety
Bridget (aged 3) - Regressive autism
30/10/2007, 07:27 AM
My son Corey has cleft lip.
My Brother in law has severe PVL
01/11/2007, 07:23 AM
Your name: Kelly
Your child's diagnosis: Kai (3), Septo-optic dysplasia
The state you live in (or country): Qld
01/11/2007, 09:08 PM
Your name: Nicole
Your child's diagnosis, or special needs: Microtia (Right ear only) moderate hearing loss in affected ear
The state you live in: NSW
02/11/2007, 10:07 AM
Childs's Diagnosis: Cleft lip and palate, verbal and motor dyspraxia, suspected Aspergers (on waiting list for assessment)
Child's Diagnosis: Cleft lip and palate.
07/11/2007, 08:29 PM
Child Diagnosis: Servere Verbal Dyspraxia
11/11/2007, 09:45 PM
Child's diagnosis: Cody- Major Speech Delay, Talipes Eqinovarus.
19/11/2007, 05:25 AM
Child's diagnosis: PHPV (L)
This is a "lo-fi" version of our main content. To view the full version with more information, formatting and images, please click here