Me: Michelle

Child's diagnosis: DS 5.5 brand new (although long suspected) Dx ADD -waiting for medication test and written report

State NSW

Name: Ali

Child's diagnosis: 2 children with Acrodermatitis Enteropathica (Zinc Deficiency)

State: VIC

Name: Kim

Child's diagnosis: Elyssa with Congenitally Corrected Transposition of the Great Arteries

state: Victoria

Your name: Kelly

Your child's diagnosis, or special needs:Bardet-Biedl syndrome. He has polydactyly of both hands and both feet (14 fingers/12 toes) and syndactyly on feet only. He is developmentally delayed, has macrocephaly and some other minor physical abnormalities and will eventually lose his sight from retinal pigmentation. And he's gorgeous

The state you live in (or country): Tassie

...

NAME: Renee

CHILD'S DIAGNOSIS: Jade is 5 months and has Cystic fibrosis.

STATE: Vic

Hey all,

I'm new here, think this is a great way to have contact with the outside world!

My daughter April, who turned 1 last week, has Pulmonary Stenosis and Epsteins Anomaly of the Heart. She has had one lot of surgery and is due a few more in the coming years. She also has developmental delay.

Emma

Hey there girls..

Your name: Jo..

Your child's diagnosis, or special needs: Jake 3rd child has Twisted Femurs and language delay/disability

The state you live in (or country):Country WA

NAME - Renee
CHILDS DIAGNOSIS - cleft lip & palate
STATE - NSW

NAME Sally

MY CHILD HAS fetal valporate syndrome. A direct result of my anti epileptic medication.
Alex had simeon creases on his hands up until about 6 months of age, he has thin tapering fingers, low set ears, broad set nose, short neck, wide set eyes wide set nipples, poor muscle tone although he is walking but was slower to do so than my two other children, has a developmental delayand delayed speech

I am desperate to talk to other parents with a child who has this syndrome, I feel alone.

STATEACT

My name: Sarah

Child's Diagnosis: Violet has Hydrocephalus, Microphthalmia and PHPV, Vascular Malformations, Right Hemiplegia and Dystonia.

Location: Sydney, NSW

Dzejla was born with symtoms of poland syndrome which were later ruled out. Her left arm is shorter and fingers are intact with one another and under developed, the normal fingers were her thumb and baby finger which have had surgery to fix she is 12 months old i would love to find other moms with the same thing thanks!!

Name: Josefa

Child's diagnosis: Apollo suffers from severe eczema....just like his father

State: VIC

Name: Amber

Child's diagnosis: Luke has a mild form of Noonans Syndrome

State: VIC

Name: Bronwyn

Child's diagnosis: Jett has Reflux.

State: QLD (Brisbane)

Hi

Name: Sandra


My son (10 1/2yrs) has PDDNOS (Pervasive Developmental Disorder Not Otherwise Specified)

State: NSW

Cheers I look forward to reading everybody's posts.

Name Kathryn

Childrens diagnosis:

DD1 - severe allergies
DD2 - small Venular malformation

NSW

Hi,

Name..Tracy

Child diagnosis..Dion has been diagnosed with LEIGHS DISEASE..a rare brain disease. Low muscle tone, cant walk, speech delay, fully fed by gastromy tube (button)
Love him to pieces

Live..Brisbane, QLD.

Name: Kylie

Child's diagnosis: Optic Nerve Hypoplasia & Asthma

State: NSW

Your name: Lynn

Your child's diagnosis, or special needs:
Nicole: Autism Spectrum Disorder, ADHD
Kimberly: ADHD, Mild Cerebal Palsy, Chronic Lung Disease

The state you live in: SA

Carolyn

DS has Type1 juvenille diabetes

Live in South Australia

Name: Paula

Child's diagnosis: Autism, Developmental Delay, Landau Kleffner Sydrome (in remission)

Reside: NSW

Name: Pixie

Child's diagnosis: Little Pixie (DD) has mild PVL (Periventricular leukomalacea)which will probably lead to a diagnosis of Cerebral Palsy and in particular Spastic Diplegia
Lazy eye-(premmie issues)surgery coming up soon to fix!

Name: Korrine

DS1: Bailey
- ongoing eye disorder - eyelash ducts blocks, develops chalazion cysts
- expressive language and delay and disorder
- being assessed currently for Autistic Spectrum Disorder
- hearing being assessed in Nov
- Full dev. being assessed at the child dev. unit at WCH in Nov

DS2: Jesse
- Reflux

State: NSW

Name: Isabelle

Diagnosis:Primary Congenital hypothyroidism

Location: Sydney NSW

Name, Jenny

Childs Diagnoses, Mitchell has Epilepsy

State, WA

Name: Jenny
Child's Diagnosis: Oscar has reflux
State: NSW

Guneet

Child: DSon#2 - GER, SID,Oral Apraxia, Tube feeds, Arachnoid cyst, optic disc drusen

State: NSW Sydney


DS#1: 5 and happy in Kindy

Name: Sam

Child's Diagnosis: Ryden has an Immune Deficiency, bilateral hearing loss, speech delay and Food alergys. waiting for an assesment for his lack of social skills .

Tayla has Silent reflux

Teagan is verticly challanged

State: Victoria

Hi

Name: Jacinda

Child's Diagnosis: Son Bryden has

congenital Mixed Gonadal Dysgenesis accompanied by Penoscrotal Hypospadias

congential Tight Gastrocnemius Muscle (calf muscles)

Bilateral Hearing Loss (mild)

Auditory Processing Disorder

Urinary Reflux - with urine leaking all throughout the day

Mild Scoliosis

But above all he is a beautiful positive little guy with a heart of Gold.

Childs Diagnosis: Daughter Devaney died from a congenital heart defect called a Hypoplastic Left Heart.

State: Victoria

Name: Angie

Child's Diagnosis: Gavin has ADHD and paeds and school are after more info for something else, no idea what as yet *sigh*

State: Qld

Name: Louise

Child's Diagnosis: Georgia was denied oxygen at birth from an undetected placenta abrupta. She has been diagnosed with Cerebral Palsy (Ataxic Quadriplegia). Doctors have predicted swallowing disfuncion (although she breastfeeds well, but has suffered from reflux), mental delay and epilepsy, as well as the motor skill delays.

State: Singapore, but from NSW

Name: Petrina

Child: Riley

Diagnosis: MCADD - Medium Chain Acyl-CoA Dehydrogenase Deficiency (rare genetic metabolic disorder)

State: WA

jackie
reece has tourettes syndrome after two years we have realised that it's not then end of the world after all

Name: Cas
Child's Diagnosis: Trisomy 21
State: WA

Name: Jo

Child: Cameron, 10 and Sophie, 7

Diagnosis: Cameron - Noonan Syndrome. Sophie - Urea Cycle Disorder OTC

State: VIC

Wyatt(6yrs)- Developmental Dysplasia Hips and Russell-Silver Syndrome, anaphylaxis, and sometimes Anemia
He has had- undescended testies and RSV

Hayden (3yrs)- Tibbial Torsion

Fredericton, NB, Canada

Name: Kate
Child: Tom - 2 years
Diagnosis: Atypical Autism or PDD-NOS
State: ACT

NAme Belle

Child Zac 3.5 years

Diagnosis We are still in that process but he is somewhere on the Autsim spectrum they believe HF waiting for an assessment at the WCH

Just popping in here to see if I can find some support/info for my girlfriend who has a child with learning disabilities plus other issues. Will get her to look in.

Hi, I'm new

Name: Roxanne

Child's Diagnosis, or special needs: Tyson (3 yrs) was diagnosed in March this year with Autistic Spectrum Disorder. Taj (19 mths) is currently on a waiting list to be assessed as he is showing signs of either ADD or autistic spectrum disorder.

The state you live in: Western Australia

Have a good one!

Roxy

Name: Roni

Child's Diagnosis: Corbin (born 04.05.07) has a cervical lymphatic malformation, variously known as lymphangioma or cystic hygroma. Fitted with long term tracheostomy.

State: W.A.

Anne

Timmy (aged almost 6) - Asperger's Syndrome, high anxiety

Bridget (aged 3) - Regressive autism

ACT

Hi
I'm Erin
My son Corey has cleft lip.
My Brother in law has severe PVL

Your name: Kelly

Your child's diagnosis: Kai (3), Septo-optic dysplasia

The state you live in (or country): Qld

Your name: Nicole

Your child's diagnosis, or special needs: Microtia (Right ear only) moderate hearing loss in affected ear

The state you live in: NSW

Name: Ann

Childs's Diagnosis: Cleft lip and palate, verbal and motor dyspraxia, suspected Aspergers (on waiting list for assessment)

Child's Diagnosis: Cleft lip and palate.

State: SA

Name: Louise

Child Diagnosis: Servere Verbal Dyspraxia

State/Territory: NSW

Name: Christie

Child's diagnosis: Cody- Major Speech Delay, Talipes Eqinovarus.

State: WA

Michelle
Child's diagnosis: PHPV (L)
State NSW