I have previously posted about my DS2 who has severe trachea malacia. He is now 8 months old and we are up to hospital admission Number 7. In the last 4 months he has spent 2 weeks in ICU where he was intubated (life support) for a week and then three other 5 day stays on the ward when he has had bronchiolitis and has required oxygen. It seems to me that his episodes of bronchiolitis are never quite resolving. The days are rare when he is not coughing away and seems unwell. It is almost as if he can never really get the gunk off his chest and fully improve. During the last week at home every time he has his first breast feed of the day (anywhere between 4-6am)he immediately starts coughing and has a huge projectile vomit --I'm not sure if its his body's way of trying to clear the mucous or what?
Has anyone ever experienced issues like this? If so, I would love to hear about anything that helped. I considering trying some kind of phsio. We use a vapouriser at night and have tried elevating the cot, but DS2 moves around so much in his sleep he often ends up head on anyway.
The doctors don't really have any advice at this stage, except wait and see (which I am doing, but it is getting emotionally and physically exhausting)
Thanks for any ideas