I'm a mum of a little boy who has epilepsy but I have included kids with anaphylaxis in here too because I think my question applies to both groups. So, after that long-winded start, I will ask my questions LOL
Okay. We got a diagnosis of epilepsy just before my boy turned 3. He's 3.5 now and it's suddenly just occurred to me that he's going to kindy this year and he will (hopefully) make friends. My concern surrounds him visiting his friends at home without me. Obviously during the kinder years I will most likely be with him but what about when he gets older? Do you word up the parents that there is the likelihood of a seizure? How do you even do that? The thing is that he is controlled with medicine but there is always a chance of breakthrough seizures. Do you find that your kids are not invited out?
I know! A lot of rambly questions! The thing is that, for me, having a child with epilepsy or anaphylaxis over to my house would not phase me; word me up on the plan, give me the relevant phone numbers and the epi pen and I would be good to go. But, I realise that not every one is cool with stuff like this
Any advice? thoughts? ideas? slaps upside the head