I am sorry if this post is disheartening for those who are new to or still fairly young in the journey.
I have twins that were born at 31 weeks and are currently 9.5.
My DS had the harder time in NICU (typical boy lol) yet apart from Asthma and reflux he is a pretty healthy, happy robust kid. He was a slight bit delayed with a couple of things and is shy but that said he is so much like his dad it is genetic thing rather than developmentak thing if that makes sense. he is doing G & t subjects at school etc and you would never know that he was a premmie.
DD on the other hand is the Complete opposite and this is who my post is about. She has had multiple and ongoing issues as a result of being born prem. She was FTT for the first 2.5 years of her live. then she had her tonsils out which resulted in better health and her Sleep apnoea went away and by age 4 we had with the aid of calorie loading etc got her weight to the 75% which was in line with her height, she was healthy and as she was in EI at age 2.5 by the time school came around we still had developmental delays and issues but as far as things were going I was happy, Paed was happy, Speechie was happy so you get the drift.
Then between age 4-6 her weight went down to the 50% and while her Paed wasn't pleased she also wasn't worried as she was at school fulltime etc. So rolling on to now Her weight has ciontinued to decline and she is now back under the 25% percetile and Paed is not happy and starting to become concerned so we have done a complete blood work up today and had a referral to a Dietician which brings me to my whinge. I was having a read of the letter and the thing that jumped out at me was the term "long standning issues from prematurity"
FFS she is almost 10 when is being prem not going to be a problem for her. So much for all the people that say oh they generally catch up by school age. Bah freaking humbug. I just feel like I have failed her so badly. I hate that she is a year behind her twin as she has had to repeat, I hate that she has so many things she needs to deal with it is not bloody fair. is there anyone else about who is still having issues relating back to prematurity so far down the track. i just want it to start getting better for her, to be able to stop obsessing about her weight gains and lack thereof. I want to get given the flick by her paed and told she doesn't need to come back ARGGHHHHH
If anyone can relate please let me know as I am feeling pretty down about it atm.