I have concerns about my DS's developmental milestones for some time. He gained good head control quite late, sat later, smiled later and at 13 months has not crawled, bum shuffled or walked, no pointing, clapping, waving, and pincer grip is more like a claw than being able to isolate finger and thumb. I brought this up with our nurse when he got his one year vaccinations and she referred us to the Children's Developmental Team. My partner made and went to the appointment as he is a SAHD, I actually wasn't aware DS was about to be assessed, I was told it was a physio appointment as otherwise I would have taken some time off work and gone to the appointment as well. Most of the concerns about DS's progress are mine as I am a teacher and very aware of the many different developmental needs of children. As DS is a gorgeous funny little boy I think my partner thinks there just couldn't be too much wrong. I've got to admit, whilst DP is an awesome dad, I'm suspecting some serious denial on his part when it comes to DS's development.
I have been concerned particularly about developmental delays and possibly ASD. When I really started looking at where he should be developmentally at around 10 months, I found he was probably more around the 7 month old mark in a lot of ways. That and a tendency to hand flap which got worse and worse for awhile and a lack of showing behaviours and some communication milestones got me wondering. Initially I just went with the flood of "you're worrying about nothing, he'll get there" advice, months on the gap between where he should be and where he is has widened.
My partner rang me after the appointment much relieved. Whilst obviously the person assessing could not rule out ASD at 13 months, she wasn't concerned at this point. According to DP, DS just had some strength issues in his legs and some delays in his gross and fine motor skills and there were some exercises for him to do and a playgroup run by the CDT that he should attend but otherwise nothing to worry about. I was a bit surprised but definitely relieved and happy to defer to an experienced professional. I asked about the exercises and information sheets that DP was given but they were in the car and it was late at night etc and didn't get them until yesterday. DP just summarised what was on it whilst we were having lunch and left them on the coffee table. DP went out for a well deserved break last night to a friends place and I finally picked up the info sheets when doing some cleaning up and found I had a handout for Low Muscle Tone (Hypotonia). I was like WTH. Is this what's going on with my son? Was he just diagnosed with this?
I txted my partner asking about it and he seemed mystified by the whole thing. He thought that the sheet was given to him as a set of exercises and that the majority of the information about hypotonia had nothing to do with DS. The "exercises" are actually a list of suggested activities kids with hypotonia, most for kids much older that DS can do to increase muscle stamina etc.
I'm just curious if any parents who have children that have formally been diagnosed with hypotonia have been diagnosed in a similar fashion. From what I can tell it was a questionnaire and a short physical examination of DS by the CDT physio. Other forum posts by mums and dads seem to involve a lot more testing than this to come to a diagnosis. I guess I'm trying to work out what the hell just happened. I'll be contacting the person at CDT and looking over report that's supposed to be coming out for clarification but I guess I'm just after what other parents experiences with the diagnosis process so I can fill in some of the gaps in DP's recall of what happened